posted
Ugh, I wonder why bother repeating igenex lab tests annually as recommended via my llmd. Historically my results were equivocal for relevant Lyme bands- and have been treated accordingly. But, for the first time ever I tested completely (-) for ALL bands! What the heck??! I don't feel like I should have negative results! This is sooo baffeling!
Two months ago I had gallbladder surgery and sent a biopsy to MDL lab; results were (-)!!
Any feedback is welcomed!
-------------------- Bullsye rash: 1994, tx w/ ABT, Symptomatic:1999 Hospitalization: 2004 Equivocol results (specialy lab) resulting in chronic use of ABT, herbs, etc ever since. Severity of symptoms continue to worsen intermittingly. Posts: 140 | From maryland | Registered: Oct 2006
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
It could be that co's are your central issue...
Of course, if you're treating with abx that can throw off the WB too...
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
You could have viral infections. Have you been tested for HHV-6, EBV, enterovirus?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Keep treating---end of frustration.
The borrelia have a protein that has the ability to hide other organisms as well as itself.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
Haha, Lymetoo and Pinelady give direct, to-the-point advice!
Why don't you ask your LLMD why they're making you test repeatedly? You shouldn't do anything unless you know why you're doing it, that included, especially if you're the one paying for it.
Perhaps the borrelia bacteria have reverted into cyst form, hiding from everything, thus your body cannot create antibodies against something that it doesn't recognize as even being there.
I agree with the others, when you're fighting Lyme disease you have to be aware that--more likely than not--you're fighting a bunch of other bugs, too, that came from the same tick bite. If treatment for one isn't working, switch it up and fight something else. And if your doctor isn't helping you improve, get another one!
Posts: 512 | From USA | Registered: Sep 2010
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posted
I am guessing that the doctor knows people who are being successfully treated often start producing antibodies again after being seronegative before. So, it could be a way of checking to see how you are doing?
Posts: 8430 | From Not available | Registered: Oct 2000
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posted
My LLMD does not do a repeat test if you have a positive one. The test is ONLY to prove exposure. It does not prove that the Lyme is gone. Once you have a positive test (to make the insurance company happy as it's really a clinical diagnosis), you treat based on SYMPTOMS not testing!!
I also agree that Lyme is not just Lyme, unless perhaps you were just bitten yesterday.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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quote:Originally posted by sixgoofykids: The test is ONLY to prove exposure. It does not prove that the Lyme is gone. Once you have a positive test (to make the insurance company happy as it's really a clinical diagnosis), you treat based on SYMPTOMS not testing!!
By jove, I think she's got it!!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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