oops! Lymetutu
I was told i have babesia and neither docs have treated it yet. The one who got the test from bowen said i had babesia M. said it was minimal and never treated it.
The other doc said that he would treat it after they got the lyme. Which i know according to here that is not the proper order.
I just dont want to spend the money and travel that far if i still will end up in the same rut.
I also think im having problems with my system im on thyroid and have for years had problems with t3 actually the lac of it.
ARE you improving and how thanks?
Is this the post you were referring to?
"What do you like about Dr C?" http://flash.lymenet.org/ubb/Forum3/HTML/004140.html
Maybe you could e-mail people who answered the question - if you don't get any responses here.
Be sure to say you're "graneet on LymeNet."
quote:
Originally posted by graneet:I was told i have babesia and neither docs have treated it yet. The one who got the test from bowen said i had babesia M. said it was minimal and never treated it.
The other doc said that he would treat it after they got the lyme. Which i know according to here that is not the proper order.
And many people test negative and then the docs don't try a round of babesia meds to make sure that it wasn't just a false negative.
My test was "borderline" but I had it bigtime.
I'm doing great! The only bad news is that I'm still taking abx.
Dr C will probably suggest the hormone testing for you. That has helped me tremendously!
Good luck! When are you coming?
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oops!
Lymetutu
I saw him for the first time in February. At that time I woke up every morning feeling 90 yrs old (at the time I was 27) and seriously thought that I would leave this earth, in agonizing pain before too much longer. Now, almost five months later, I am recovering nicely. Dr. C knows his stuff! He keeps up with it, goes to conferences, etc. And best of all, he cares, he listens, and he wants your opinions on treatment. Not that I've ever given mine. I would pour gasoline on myself and light a match if he told me to. If he told me it would make me better. But really, he's the only lyme doc I've ever been to, but he's the only doctore I've ever had that I really liked.
Oh yeah, I'm babbling now. But seriously, go see him, I seriously doubt that you will be disappointed.
James
I have been on antibiotics for 4 1/2 months now, and am doing much better.
He is a very informative lyme doctor, and goes to many seminars, to keep up with the latest lyme treatments, breakthroughs, and testing.
He gives you all sorts of information on lyme disease, and gives you written instructions on your treatment process.
He is the most open-minded medical doctor that I have ever been to, and does not rely on one strict protocal like a lot of doctors. He will have you try one thing; and if that does not work, move you on to something else.
He also recommends many books for you to read, very informative books.
DMC
Thank you all hope some more reply. I would be glad for even a partially normal life out of bed with out hurting always.
I read about what a good doctor i just wanted to know that people are getting better to. For that i also will travel for.
Thanks again graneet
They have been ill for 5+ years and in treatment for almost 3 years.
It seemed like we were missing something and wanted to see what Dr. C could offer.
He tested both of them for possible Heparin use and hormone deficiencies. Jordan will start Heparin (Jake's blood was OK), and both have hormone deficiencies. Jordan's growth hormone level was 269 and it should be 600-6000.
I'm really hoping this will be what gets them better. We have a phone consultation with Dr. C on July 22nd to discuss these results and treatments.
So, it's too early to see any changes with Jake and Jordan. But, Dr. C has lots of options for them.
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My improvement over the last year has been slow and steady....always in the right direction...it seems.
I am currently treating for Bartonella and have seen great things from it.
We MAY try Mepron soon....I have been treated for babesia in the past..but, it wasn't significant when being treated with clyndamycin and quinine.
I think you will find that he goes with your input as his partner....he'll give you options and go with what you feel is best.
He WILL DEFINATELY go after the Babs.... I can't believe the others hadn't.
Babs and resistant bartonella REALLY hold people back.
Good Luck,
and tell the Doc Hello for me...we will be seeing him in 2 weeks on the 26th.
(MY 2 girls visit him that day...Mom is riding along.)
Trout 