posted
I am going to dr C in mo in the near future i know there was a post a while ago about people likeing him one reason im going. However thats been a while and i would like to know from those who are his patients. Time has passed are you improving. I have to go a twelve hour ride to him and i dont mind if i will improve. I have tried two other drs and no better.
I was told i have babesia and neither docs have treated it yet. The one who got the test from bowen said i had babesia M. said it was minimal and never treated it. The other doc said that he would treat it after they got the lyme. Which i know according to here that is not the proper order.
I just dont want to spend the money and travel that far if i still will end up in the same rut.
I also think im having problems with my system im on thyroid and have for years had problems with t3 actually the lac of it.
I was told i have babesia and neither docs have treated it yet. The one who got the test from bowen said i had babesia M. said it was minimal and never treated it. The other doc said that he would treat it after they got the lyme. Which i know according to here that is not the proper order.
Wow, graneet....I would say this is exactly why you are not improving! Babesia should be treated EARLY, not "late" or never!
And many people test negative and then the docs don't try a round of babesia meds to make sure that it wasn't just a false negative.
My test was "borderline" but I had it bigtime.
I'm doing great! The only bad news is that I'm still taking abx.
Dr C will probably suggest the hormone testing for you. That has helped me tremendously!
posted
Dr. C is amazing. That's the best way I know to put it. I would travel halfway around the world to see him (but only halfway, otherwise I went the wrong direction).
I saw him for the first time in February. At that time I woke up every morning feeling 90 yrs old (at the time I was 27) and seriously thought that I would leave this earth, in agonizing pain before too much longer. Now, almost five months later, I am recovering nicely. Dr. C knows his stuff! He keeps up with it, goes to conferences, etc. And best of all, he cares, he listens, and he wants your opinions on treatment. Not that I've ever given mine. I would pour gasoline on myself and light a match if he told me to. If he told me it would make me better. But really, he's the only lyme doc I've ever been to, but he's the only doctore I've ever had that I really liked.
Oh yeah, I'm babbling now. But seriously, go see him, I seriously doubt that you will be disappointed.
James
Posts: 18 | From Peoria, IL, USA | Registered: Jan 2004
| IP: Logged |
I have been on antibiotics for 4 1/2 months now, and am doing much better.
He is a very informative lyme doctor, and goes to many seminars, to keep up with the latest lyme treatments, breakthroughs, and testing.
He gives you all sorts of information on lyme disease, and gives you written instructions on your treatment process.
He is the most open-minded medical doctor that I have ever been to, and does not rely on one strict protocal like a lot of doctors. He will have you try one thing; and if that does not work, move you on to something else.
He also recommends many books for you to read, very informative books.
DMC
Posts: 221 | From fort smith, arkansas, usa | Registered: Feb 2004
| IP: Logged |
posted
Jake (18) and Jordan (13) went to Dr. C for the first time on May 17th.
They have been ill for 5+ years and in treatment for almost 3 years.
It seemed like we were missing something and wanted to see what Dr. C could offer.
He tested both of them for possible Heparin use and hormone deficiencies. Jordan will start Heparin (Jake's blood was OK), and both have hormone deficiencies. Jordan's growth hormone level was 269 and it should be 600-6000.
I'm really hoping this will be what gets them better. We have a phone consultation with Dr. C on July 22nd to discuss these results and treatments.
So, it's too early to see any changes with Jake and Jordan. But, Dr. C has lots of options for them.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/