Has any one here been successful in getting their "regular" doctor to treat them according to Dr. B's guidelines? I have a few LLMD's within a 5 hour radius, but the cost is so prohibitive. I am planning to bring a copy of Dr B.'s info as well as a request for testing via Igenex. Has this worked for anyone? Thanks for any pointers.
------------------ ~*moosiefate*~ maybe Lyme since 1998 maybe Lyme reinfected 2004 need answers!!
Posted by moosiefate (Member # 5920) on :
Some more quick info about my situtation: 4 neg ELISA and 6 neg Western Blots (all via Lab Corp or Quest Diagnostics) Saw an LLMD in 2001, was not comfortable with his hands-off approach, stopped taking abx three months in. I convinced myself I was not infected with Lyme... then I found out I had a connective tissue disorder (Ehlers-Danlos Syndrome www.ednf.org) I thought that accounted for everything. Then, about 3 weeks ago, I got really ill. Thought it was mono, so sick. I found a small bulls-eye rash on my arm, but it was pale. My PCP gave me 21 days of 200mg doxy (which I know is not enough) another test (neg) and here I am now. Sicker than ever, barely able to hold my job... need any help I can get!!! Please email me if you want to talk or we can chat on AIM. Thanks!!
------------------ ~*moosiefate*~ maybe Lyme since 1998 maybe Lyme reinfected 2004 need answers!!
Posted by HaplyCarlessdave (Member # 413) on :
Seems like it's worth a try. But do you have anywhere to turn (i.e. are there other docs in town) if a certain doc turns out to be an arrogant sob, an ignorant kowtower, or both? (I'd find it hard to stick with such a specimen.) I didn't know enough yet, when I was rejected by the 'regular doc'... DaveS
[This message has been edited by HaplyCarlessdave (edited 19 July 2004).]
Posted by HaplyCarlessdave (Member # 413) on :
I ended up having to travel a long way to get to the LLMD. What a phriggin nightmare it was....But the biggest expense was still the drugs. I saved quite a bit by getting them from canadien pharmacies online. I don't know if that's possible any more- new oppressive ...'legislation'.. by the corporate dictatorship of amerika may have put an end to that!
Good luck.
Posted by moosiefate (Member # 5920) on :
Just seeking any other help, my appointment with my regular doctor is tomorrow. Thanks.
------------------ ~*moosiefate*~ maybe Lyme since 1998 maybe Lyme reinfected 2004 need answers!!
I was only successful in convincing my PCP to test me through IgeneX, after 2 negative tests from Quest.I faxed him Dr. Burranscano's Guidelines, from the home page here.
But, I ended up going to an LLMD, figuring my pcp wouldn't know how to treat me anyway.
------------------ Julie G. ___________ lymeinhell
