LymeNet Flash: Getting PCP to treat with Dr. B's protocol?

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Getting PCP to treat with Dr. B's protocol?

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Topic: Getting PCP to treat with Dr. B's protocol?

moosiefate
Member
Member # 5920

posted

Has any one here been successful in getting their "regular" doctor to treat them according to Dr. B's guidelines? I have a few LLMD's within a 5 hour radius, but the cost is so prohibitive. I am planning to bring a copy of Dr B.'s info as well as a request for testing via Igenex. Has this worked for anyone? Thanks for any pointers.

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~*moosiefate*~
maybe Lyme since 1998
maybe Lyme reinfected 2004
need answers!!

Posts: 12 | From Upstate NY | Registered: Jul 2004 | IP: Logged |

moosiefate
Member
Member # 5920

posted

Some more quick info about my situtation:
4 neg ELISA and 6 neg Western Blots (all via Lab Corp or Quest Diagnostics)
Saw an LLMD in 2001, was not comfortable with his hands-off approach, stopped taking abx three months in.
I convinced myself I was not infected with Lyme... then I found out I had a connective tissue disorder (Ehlers-Danlos Syndrome www.ednf.org)
I thought that accounted for everything.
Then, about 3 weeks ago, I got really ill. Thought it was mono, so sick. I found a small bulls-eye rash on my arm, but it was pale. My PCP gave me 21 days of 200mg doxy (which I know is not enough) another test (neg) and here I am now. Sicker than ever, barely able to hold my job... need any help I can get!!! Please email me if you want to talk or we can chat on AIM. Thanks!!

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~*moosiefate*~
maybe Lyme since 1998
maybe Lyme reinfected 2004
need answers!!

Posts: 12 | From Upstate NY | Registered: Jul 2004 | IP: Logged |

HaplyCarlessdave
Frequent Contributor (1K+ posts)
Member # 413

posted

Seems like it's worth a try. But do you have anywhere to turn (i.e. are there other docs in town) if a certain doc turns out to be an arrogant sob, an ignorant kowtower, or both? (I'd find it hard to stick with such a specimen.)
I didn't know enough yet, when I was rejected by the 'regular doc'...
DaveS

[This message has been edited by HaplyCarlessdave (edited 19 July 2004).]

Posts: 4567 | From ithaca, NY, usa | Registered: Nov 2000 | IP: Logged |

HaplyCarlessdave
Frequent Contributor (1K+ posts)
Member # 413

posted

I ended up having to travel a long way to get to the LLMD. What a phriggin nightmare it was....But the biggest expense was still the drugs. I saved quite a bit by getting them from canadien pharmacies online. I don't know if that's possible any more- new oppressive ...'legislation'.. by the corporate dictatorship of amerika may have put an end to that!

Good luck.

Posts: 4567 | From ithaca, NY, usa | Registered: Nov 2000 | IP: Logged |

moosiefate
Member
Member # 5920

posted

Just seeking any other help, my appointment with my regular doctor is tomorrow. Thanks.

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~*moosiefate*~
maybe Lyme since 1998
maybe Lyme reinfected 2004
need answers!!

Posts: 12 | From Upstate NY | Registered: Jul 2004 | IP: Logged |

Cheryl
Frequent Contributor (1K+ posts)
Member # 75

posted

Hi Moosie,

How'd you make out at your appointment?

Here's some additional info:

ILADS Guidelines: http://www.ilads.org/guidelines_summary.htm

Medical Literature Summaries: http://www.lymeinfo.net/lymefiles.html

Best Wishes,
Cheryl

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http://www.lymeinfo.net
Lyme Disease Information By Email:
http://groups.yahoo.com/group/lymeinfo/

Posts: 1547 | From NY | Registered: Oct 2000 | IP: Logged |

lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622

posted

I was only successful in convincing my PCP to test me through IgeneX, after 2 negative tests from Quest.I faxed him Dr. Burranscano's Guidelines, from the home page here.

But, I ended up going to an LLMD, figuring my pcp wouldn't know how to treat me anyway.

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Julie G.
___________
lymeinhell

Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003 | IP: Logged |

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