LymeNet Flash: Does anyone get cured?

This is topic Does anyone get cured? in forum Medical Questions at LymeNet Flash.

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Posted by hiker53 (Member # 6046) on :

Does anyone who has lyme for several years before diagnosis ever get cured? How long does it take?

Posted by riversinger (Member # 4851) on :

Hi Hiker!

Welcome, and remember when you read these boards that we are a combo of the newly diagnosed, and the hard core folks who have a hard time getting well.

In between those extremes are all the people who are well and are out living their lives, not thinking about Lyme any more. That's where you want to be, right?

Here are a couple of threads for inspiration:

Historical Mileposts
Success Stories

In order to become one of these success stories, I recommend you read all you can get your hands on, so you can participate intelligiently in your treatment.

Get an experienced, highly recommended Lyme doctor, and stick with it. If you don't have one already, go to the section called Seeking a doctor to make a request.

In case you haven't read these:

International Lyme and Associated Disease Society
Treatment Summary
Dr. Joseph J. Burrascano's Treatment Guidelines

[This message has been edited by riversinger (edited 09 August 2004).]

Posted by greg (Member # 1250) on :

Cured is a tricky word with this. Some think, me included, that you never get rid of ALL of them. Some think you can.

Either way, you can get to a point (as I am), where you feel normal most of the time. My last symtom is some stiffness in my ankles, evry once in a while. I work full time, run , cycle, and generally forget about lyme unless Im posting here.

I concider myself a late catch, neuro lymie, that had two coinfections. I was sick. I was diagnosed , and started abx in june of 2001, and went off the "dope" in october of 2003. I manage lyme with a good diet, stress free life, herbs , the rife machine and my bike.

You can and will get your life back with a proper attitude, knowledge, and care for your condition. MAKE LYME YOUR FOCUS RIGHT NOW. You should be doing everything you can to get well. ...I ate organic, drank only purified water, and turned into what my family called a health kook. Put verything else on the back burner. Just get well. Its your new job.

I am still pretty careful with the diet, but Im back to having a few beers, and my cheeto addiction has been reinstated. Things will get back to normal.

For me adopting a marathon runners approach really helped. You know your going to be doing it a while, so just slow down and fight the good fight..

hope this helps...greg

Posted by TheCrimeOfLyme (Member # 4019) on :

Yep. Im living proof. AM I cured? Dont care. Do I feel good ? Yep. AM I symptomless? Yep, 95 percent symptomless, and thats all I care about.

Its hard looking around. Some people just realize that everyone here is sick, and do not realize that some of them are not and dedicate their time to coming back and helping, and others have flat out run away from this board

and as far away from lyme as they can after they are better. I dont blame them. I stick around, or at least will for a bit.

Posted by ELymeNancy (Member # 4930) on :

Crime of Lyme, On behalf of those of us that are still struggling with this awful disease, THANK YOU for sticking around. By hearing that it is beatable from someone who knows, you are helping more than you know.
Nancy

Posted by frenchbraid (Member # 4225) on :

Hey Crime,

I'm with you on this. As you know, my entire family has gotten PAST the "horrors" of Lyme and are living a "Normal" life again atlast. I only pop in from time to time to see if I can help anyone who is still stuggling.

I received so much help here when we were struggling and I made a promise to come back and return the favors, if and when I could. I do a lot of work "behind" the scenes, but I do try to make an appearance here as much as I possibly can.

So, yes, you can beat this and you can move on.

Our story is posted in "Success Stories" if you are interested in reading about it. We went YEARS undiagnosed and regained almost 98% of "normalcy" in about 8-10 months.....depending on which one of us we might be referring to.

frenchbraid

p.s. I forgot to mention that it wasn't just abx that got us through the dark forest. We addressed Candida, parasites, etc. It has made ALL the difference.

------------------
Stay positive. Smile. People care.

[This message has been edited by frenchbraid (edited 09 August 2004).]

Posted by HaplyCarlessdave (Member # 413) on :

I am off antibiotics. I'm still in the slow process of rebuilding and have some annoying lingering effects from the lyme, but I'm pretty sure (you can never be totally sure, and all it takes is one tick to start the whole process again...) that I'm not relapsing.
Here's my basic story: http://dave.clarityconnect.com/LymeDiseaseSUCKS.html
Good luck with it. Do you have a good lyme-savvy doc who knows to prescribe high enough doses of abx for long enough, and considers the co-infections?
That's the starting point.
Also, keep in mind the tests for lyme must be yaken with a grain of salt. If you have the classic symptoms (which are pretty variable!) and are outdoors a fair amount, you probably have it even if they tell you not.
DaveS