LymeNet Flash: Child with Lyme from Oregon stranded in the Northeast- help

This is topic Child with Lyme from Oregon stranded in the Northeast- help in forum Medical Questions at LymeNet Flash.

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https://flash.lymenet.org/ubb/ultimatebb.php/topic/1/27695

Posted by Tincup (Member # 5829) on :

EDITED HERE TO SAY-

THIS IS AN OLD POST. PLEASE DISREGARD.

THE PEOPLE INVOLVED HAVE BEEN SEEN BY DR. JONES FOR POSSIBLE TICK BORNE ILLNESSES.

THEY HAVE SINCE RETURNED HOME SAFELY AND DO NOT NEED YOUR ASSISTANCE AT THIS POINT.

THANK YOU ALL FOR YOUR KINDNESS AND CONSIDERATION.

XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX

An 11 year old child, very ill with Lyme, and her mother are stranded in the Northeast after seeing Dr. Jones.

Can anyone help?

Please see this post... ASAP...

Thanks!

http://flash.lymenet.org/ubb/Forum1/HTML/027665.html

[This message has been edited by Tincup (edited 26 September 2004).]

Posted by lla2 (Member # 2364) on :

where are they now?
someone should have contacted me..i've been off lymenet so long didn't see this one...

I can contact someone from the ri lyme coalition and see what czn be done, but other than pay for meds IF ordered by a physycian and covered by insurance here in RI, there are NO drs here who deal with lyme...it IS a crime..a very sad one....we have a Ronald mcDonald house across the street from RI hospital, but I think you have to be a patient there...hve here give them a call at: 401-274-4447...I"m sure they'll take her in while she is so sick..

Have her call me if she needs to also ...email me for my phone number, or lish's mom has it also, as do some others...

ok...

Posted by Ziggy (Member # 40605) on :

Same reply at the link above in Tincup's post:

Ronald McDonald House in RI
45 Gay Street
Providence, RI 02905-
Phone: 401 274-4447

Ronald McDonald House in CT: http://www.ronaldmcdonaldhouse-ct.org/

501 George Street
New Haven CT 06511
Northwestern corner of George and Dwight Streets,
a 3 story yellow Victorian house with a red brick wall
Telephone: (203) 777-5683

Ronald McDonald House in DE http://www.rmhde.org/

1901 Rockland Road
Wilmington Delaware 19803
Phone
1-888-656-HUGS(4847)
302-656-4847
[email protected]

Miracle Flights: http://www.wildernetwork.org/miracleflights.html

Tincup -do you have my new #?
I am expecting an email from you in the morning anyhow

Let's get them a room, if Ronald McDonald House can't help/?

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http://www.wildernetwork.org

Posted by andie-ws (Member # 6116) on :

They can stay with me in CT.

See my "SOS/Oregon family post.

love,
andie

Posted by andie-ws (Member # 6116) on :

Up for oregon family

Posted by Mo (Member # 2863) on :

Lish's Mom..
Have you talked to Doc J
s office about getting her to Norwalk Hospital if she should go into dietress again?

Doc K has priveledges there, in the neurology ward. This as a plan should she go into arrest again.

Otherwise..are they planning to see Doc K in his office asap?

She needs the team of J and K.

Hoping they get there..

Posted by 3greatkids (Member # 3838) on :

Any word about this poor child and Mom? My heart aches for them...hope they are in a safe a friendly place.

Anyone know? Let us know if they need financial or care package type of help.It is awful being sick and away from home...but to have Lyme and being away from home...Please anyone know and how could we help from long distance...Breaks my heart.

Tincup...heard any news about this child?Poor baby.

Posted by lla2 (Member # 2364) on :

I know I kept checking my email all day so I could give my phone number out..so they could contact me....

tincup what's going on with them?

Lisa

Posted by Ziggy (Member # 40605) on :

Meeee tooooo

trying to be patient, just let us know what is needed.

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http://www.wildernetwork.org

Posted by Tincup (Member # 5829) on :

I am hoping and waiting too.

I have not heard from Lishka's mom.. and finally called her this afternoon.

No one answered.. and I left a message.. so I am waiting to hear back from her.

As soon as I know something.. or she comes back online.. one of us will respond.

In the meantime...

You all are SO wonderful!

So many hands reaching out to help... and so much caring.

That is what life is all about!

Thank you for your kind offers.

We will see what we can do...

Try to hang in there till we get back at ya...

OK?

Posted by lymebrat (Member # 3208) on :

Any word???

You have my email address, let me know if I can help in anyway!!

Continued prayers are being sent their way!!!

~Missy

Posted by cbb (Member # 788) on :

Absolutely distressed over this family's situation.

Is there anything I can do to help, even though I'm so far away?

Just let me know!!

Posted by 3greatkids (Member # 3838) on :

? any news?Could not sleep thinking about this .

Posted by andie-ws (Member # 6116) on :

Hey:

Still here, worrried and hoping for info and to help.

If the Oregon folks still need a place to stay, my house is available.

I'm in CT, about an hour from Drs. J, K and F in NYC.

Dr. K has admitting privs at local hosp. (20 min) from my house.

I'm getting concerned that the reason we haven't heard anything is due to the fact they may be too busy dealing with a crisis.

Like everyone else, hoping for an update.

love,
andie

Posted by Lishs mom (Member # 2344) on :

I have NO information as of yet.

The mothers phone was not working yesterday...but I was able to leave a msg this am and am waiting for a return call.

I have two RI people who are trying to investigate as well, so, maybe we something will open up.

As a result of this terrible sitution, I will ask that everyone boycott Hampton Inn.

Shame on them for being more worried about "having two EMT episodes, so kicking mom out" rather than concern for the child!!!

Posted by Lishs mom (Member # 2344) on :

Top

Posted by kgg (Member # 5867) on :

I'd like to find the contact info for this Hampton Inn and let them know what I think of the "good Samaritan" attitude towards this family.

Karen

Posted by ConnieMc (Member # 191) on :

I think this family should SUE the HELL outta Hampton Inn. I feel sure this type of discrimination is very illegal.

Posted by Rita on :

It's Monday night. Where are mother and child? Do they have a roof over their heads?

Posted by Lishs mom (Member # 2344) on :

Mom has been given the list of resources that you all have provided me. She is in a different hotel this evening, and will hopefully, after discussing with Dr. Jones, what the next step will be.
She CANT afford to stay in the motel, but had checked in when she finally contacted me. (her cell phone had died w/no battery plug in until she got to a motel or something)
I also sent her the URL here, and she was on the phone, and on a computer, and was touched!...she will get a good night sleep and then begin to worry about tomorrow when tomorrow arrives. She is totally exhausted!!

I have some contact with some higher ups who are going to begin looking at this and hopfully offering some legal remedy for what has happened.

I asked her to post here, but she was going to nap first...I suspect that her nap may take a very long time, as shes exhausted.

Will keep you posted.

PS Daughter is seeming stronger today.

Posted by 3greatkids (Member # 3838) on :

Ahh, thank you for the info..keep us posted if you can..they have been thru the ringer.I'm not close but can send a care package if needed or offer an ear..I know the will both have much needed rest and you are special to see that they are ok. Night

Posted by Ziggy (Member # 40605) on :

Good they are safe tonight.

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http://www.wildernetwork.org

Posted by Tincup (Member # 5829) on :

How can anyone not love all you guys!

You are the greatest!

Posted by efsd25 (Member # 2272) on :

Lishs mom,

Thanks for keeping us updated. If she would like, perhaps folks who can help, could call the hotel and pay for a night for her and her daughter. At least she would not have to worry about lodging.

Please email me at [email protected] if you think something like this will work.

Posted by lla2 (Member # 2364) on :

Theresa,

don't forget I'm here in ri too..only a few short steps away, and I'm a nurse...don't hesitate to call ....please! I KNOW you have my numbers...

Lisa

Posted by andie-ws (Member # 6116) on :

Dear Lish's Mom:

Thanks for the update!

Please add me to the list of people willing to contribute.

I want to support whatever approach feels most managable for this poor, beleaguered mom and child.

Tomorrow is going to be another bit of "pedal to the metal" day with some of
JC's issues (mostly health/school admin/ appts)but I will give Dr. J's office a call to let them know I'm available, too.

Thanks for keeping us posted, Lish's Mom!

And...for the other Mom and little girl out there..if you're reading this:

We are here for you and you don't have to do this alone anymore!!

I wish I knew how to do some great funny faces and graphics to cheer you up, but I'll leave that to my more technically talented compatriots. (And you know who you are! )

All the best,
peace and prayers,
andie

Posted by Ziggy (Member # 40605) on :

Hoping that Oregon Mom and Daughter continue being safely sheltered, lovingly monitored by Dr Jones and watched over by the angels.

------------------

http://www.wildernetwork.org

Posted by Lishs mom (Member # 2344) on :

Updated:go to pg 2 of this link http://flash.lymenet.org/ubb/Forum1/HTML/027665.html

Posted by Tincup (Member # 5829) on :

Thank you all for the kind offers.

As things become more clear.. more information will be posted as to what is needed.

Thanks to Lishka's mom for her assistance and caring.

And to all of you who responded with such open hearts.

You are the BEST!

Posted by lil' angel (Member # 6208) on :

quote:
Originally posted by Lishs mom:
Updated:go to pg 2 of this link http://flash.lymenet.org/ubb/Forum1/HTML/027665.html

Hello ist is me, I am having trouble going to the other page with info onit?? They have changed the website and updating or something?? My phone is on the fritzs, so I have nohone until the new one gets here, but i am able to be on line.

Maybe you can send a short cut or someone could to help me out on what is going on?? I know you, you are super busy, so only when you can. I hope all is well with your family and everyone out there..
Lil angel and daughter....

Posted by andie-ws (Member # 6116) on :

Hey Lil' Angel!

We've been thinking about you and the little one!

Everybody here wants to know how you're doing and whats been happening since your return.

I hope things have settled a little and you have gotten a bit of a plan of acton. You couldn't be at a better place to get that kind of support than here at Lymenet.

There are so many wise Lyme folks here who are generous and willing to share what they know.

Kind of like a "random acts of kindness day" except its 365.

Being without a phone is the pits; thank goodness for the internet!

That being said, I'm not sure about how to transfer you to the right site...sorry.

But I will push this "to the top" so those in the know can help out.

Please keep us posted when you can.

Hugs to you and kisses to your little sweetie.

love,
andie

Posted by Tincup (Member # 5829) on :

THIS IS AN OLD POST. PLEASE DISREGARD.

THE PEOPLE INVOLVED HAVE BEEN SEEN BY DR. JONES FOR POSSIBLE TICK BORNE ILLNESSES.

THEY HAVE SINCE RETURNED HOME SAFELY AND DO NOT NEED YOUR ASSISTANCE AT THIS POINT.

THANK YOU ALL FOR YOUR KINDNESS AND CONSIDERATION.

Posted by lla2 (Member # 2364) on :

thanks for reminding us tincup....

sometimes i forget to look at the dates ....

Lisa