I called Dr. C's office just now and spoke to his receptionist and she told me it was ok to copy anything that was copyrighted or in general info.

No one should copy a personal protocol. Everyones should be specific to their needs.

I have a copier and all the handouts so I will start coping for anyone who wants them.

Just email me your mailing address and I will get them to you.

Good health to all
Starr

 

I am absolutely amazed at the good will and compassion of people who are dealing with this horrible disease (the disease that doesn't exist.)

Thanks, Starr
 

You are a star to do this, and many thanks to Dr. C. as well!

Sue
 

Can't wait to read them. Thanks again!!!!!!

aunty
 

Thanks, Huggss
 

Just to give ya'll a clue to why we get overwhelmed 90% of the pages are from our first visit with Dr. C and the rest are given at different visits.

I have around 30 pages front and back then about 5 that are just on the front.

Remember I am not sending ANYTHING that has a certain protocal on it. As his patient you get even more then what I am sending out.

This is all research he has done and in general info. I was just re-reading some of the pages and it was like ohhhhh, yeah..right.. He is a totally amazing man.

Starr

 

I am totally amazed how many of ya'll want this, over 30 so far.

I put 5 in the mail yesterday and have the rest ready to go first thing Monday morning.

If it helps just one person fighting this disease then it is worth all the work.

Happy reading.
Starr
 

I have heard sooo many wonderful things about some of Dr. C's complimentry protocals (such as those involving hormones and such) that I would love a copy of what-ever you can send me---I need to learn all that I can

I am sending you an e-mail--but here's my e-mail if you see this thread first

[email protected]

Let me know if you would like any postage and handling monies??

God Bless, and in Good Health( good health for a lymie)
 

It is costing to mail $1.75 per envelope.

So if ya'll want and a BIG if ya'll want and most of all "IF" you can afford it and it makes you feel better then my address is on the package.

Hugs.
Starr
 

Jamie
 

This is so nice of you! I'm sure it will be helpful to so many people.

I think of you guys every time I cut the Heparin in 1/2. By the way, does Dominic like lemon? I found crystallized lemon packet that the kids use to get the Heparin taste out of their mouth. I could send him some packets if he would like to try it.

------------------

 

Thanks so much for the offer. Dominic loves his heparin with the vanilla flavoring.

How is Jordan doing on the heparin? Have ya'll seen a decrease in his fatigue?

I am getting nervous and excited about our trip to Dr C on the 13th. We see what the next step is for Dominic and what MY first step will be.

Keep ya'll fingers crossed for good news.
Starr
 

Jordan stopped the Heparin last week. He was so bad and we thought it was a herx.

He had a sinus infection and was treated with Zithromax (Z-pack). On the 5th day he didn't want to move. He said that it was so painful just to move his eyes. And he has been through a lot the last 5 years.

The Zithromax really hit him hard and it was only 6 pills. I think the Heparin much have made it so much more effective. He had been on Zithromax twice a day for three months for Bartonella before and didn't herx this bad.

He had stopped Heparin for 5 days because of a mix-up with the doctor and pharmacy. He had recently increased to 6000U twice a day. We now know that he still has Lyme or co-infections.

Jordan and his dad just left for Kansas City for an appointment with Dr. S (endocrinologist). He will have dual stim testing done tomorrow. His growth hormone is extremely low.

After tomorrow's appointment, Dr. C will decide what he wants to do from here. I'm thinking that he needs to go on an antibiotic.

------------------

 

Thanks so much.

Linda
 

I think you are a marvelous woman to offer to do this for so many lyme patients whose LLMD's don't make handouts available like Dr. C.

I've read marvelous things about him too. 1 of his patients also shared some handouts with me...thorough!

Thank you Dr. C for sharing your expertise with the nationwide/intl. lyme world!

Hope you get wonderful results for your son and your 1st patient appt! Betty G., Iowa

Glad to see you showed how much postage is per envelope plus the copying is extra too since everyone is on their own fixed budget including you. Betty G., Iowa
 

I bet you'll need to buy lots more paper, ink, and mailing envelopes, plus driving to the post office.

I want to contribute $10.
Carol

I would love to have a copy Dr. C's handout.
My email is on its way. How wonderful of you to do this. I would be only too happy to send $ to cover the cost.

Thank you so much.
Swiss
 

I have anyone who has asked me before this post info will go out first thing Monday morning.

After this post I have to run more copies,ect.. so I won't beable to get them ready for the mail until Wed.

I don't have a paypal account...sorry.

If ya'll want my address is on the envelope ya'll will be getting. Postage is adding up fast.. 1.75 per envelope and I am already well over 30 request.

I am going to make 20 more copies to have them ready to go.

Hopefully this helps.
Starr

 

Only a $1.75 postage Starr, what a bargain for all the "wealth" of information you're sending out!

More than willing to assist with the postage....will be sent asap.

Praying for a wonderful trip to Mo. and Dr.C for you and Dominic.

You're a jewel, Starr......but don't overdo....you're getting stressed, I can tell!

------------------
oops!
Lymetutu

 

PLEASE, PLEASE DO NOT PUT THIS ON THE INTERNET, DON'T SCAN TO MAKE IN EMAIL FORMS.

I hope this helps many people but if in the wrong hands could hurt one very wonderful dr.

Anyway it does take alot of time to copy, and get ready for mailing so after Wed that will be it.

I have to pack for MO on Thur to leave on Friday. I will be gone a week but I will be checking in on dial up so i won't be around much.

Starr

and I will send you my address etc.

Thanks,Sue from Downunder.
 

I have one question about the handouts that maybe you or anyone who received the copies can answer.

I had 3 one-sided sheets. One of them begins with "Try 2 tsp. apple cider vinegar". It doesn't have a title and almost seems like it's supposed to be a second page to something but I went thru all of them and can't figure out what it goes with. Anyone know?
 

It is nice to have.

I too noticed the page on the appple cider and wondered where the page was that must go before it. I thought it was just my lyme brain and I needed to go through the paper work again later.

I hope to get a check in the mail today for you.

Thanks for taking on this big project.

I know the info on the herx helped me.
 

Debbie
 

Hope it helps ya'll even a little bit.

The one page ya'll are talking about was just an extra page he gave me. As far as I know it didn't go with any other page.

Starr
 

quote:

---

Originally posted by MADDOG:
Hi,I have not heared of doc. C. can someone Email me were he is ,maybe I could see him. MADDOG

---

It's hard to believe that you haven't seen that link in all the posts that it has been posted. Maybe you didn't realize that this was the one and the same that folks are talking about when saying Dr. C of MO...but, anyway, there it is.

Just curious as to how you've miss him.

Here's the Lymetoo's link that is in General Questions forum titled, What do you like about Dr. C?

http://flash.lymenet.org/ubb/Forum3/HTML/004140.html

I'm sure you can find his contact information if you were to go to the site www.drcharlescrist.com

Rosemary

quote:

---

Originally posted by beach4so:
The one page ya'll are talking about was just an extra page he gave me. As far as I know it didn't go with any other page.

---

Thanks, Starr! Glad to know it wasn't my brain fog keeping me from figuring out what it belonged to.

I recieved my package in the mail from you. Thank you so much for taking the time to do this for us all. I am sending an envelope out to you.

I appreciate it so much great info.

Thank you again,
Swiss
 

I am so excited that we may both be able to regain our health.
Kathy
 

Thankyou so much for the handouts I got them today.I have only read a few but the info is invaluable.Shall give a copy to my doc.He might get some new ideas from them,

Take care and I really appreciate it,Sue.
 

Add my name to the list -- emailed you my address. Are you sure $1.75 is sufficient to cover postage and copy costs?

Am unhappy with my husband's LLMD and am thinking of Dr. C as an option. Hopefully this info will shorten my initial phone call requesting info about the office.

Have learned the hard way to ask lots of questions in advance about insurance and costs and follow-up appointments etc.

Thanks again.

Bea Seibert
 

Add my name to the list. Sending you email with address. Are you sure $1.75 is sufficient to cover postage and copy costs???

Am unhappy with my husband's LLMD and am considering Dr. C as an option. Hopefully copies will shorten my initial phone call to his office asking questions.

Have learned the hard way to ask lots of questions in advance regarding insurance and costs and follow-up appointments etc.

My biggest concern is does Dr. C have someone on call nights and weekends to cover emergencies such as drug allergies or questions about med reactions ? This has been a problem with other doctors.

Also, will the doctor make changes to med protocols during phone appointments or between office visits? My husband has had some really scary med problems and we had to wait almost 2 months with no antibiotics until our next appointment.

Another time I faxed his current doctor and asked what I should give my husband for pain -- a new symptom. He was in so much pain he was nauseated and having dry heaves which led to "seizure-like" activity. The next day the doctor sent me a fax and suggested I take Steve to a pain clinic!

Thanks in advance.

Bea Seibert