Has anyone taken this treatment? I'm on it and not sure if it is actually helping-of course I'm on IV rocephin and doxy as well.
Posted by rosesisland2000 (Member # 2001) on :
I do know that there was a lot of talk about Samento during this past Spring.
You may want to learn how to search through those posts. How to use the Lymenet Search :
BTW, do you have an LLMD? Just curious, for it can and does make all the difference in the world if you have one or not.
Rosemary
Posted by Team Mom (Member # 4677) on :
I'm very lucky-my PCP is the one who finally diagnosed me with LD after many referrals to neuros and mulitples of test. I even went to the famous UTSW in Dallas who told me I was basically mental. I also see a neuro here in Bedford, Tx. Apparently there are only a handful here in Tx that really work with LD. And I normally pay out of pocket but unfortunately I haven't been able to see him in several months. He had me on a regimine but I gradually weaned myself off in July after I was feeling great. I've just now had a relapse so I'm guessing I'm having to start all over. Samento just really makes me break out and I'm 39!! I have never had an acne problem until I started treatments.
Posted by Laczitag (Member # 90) on :
SAMENTO..... Yes, I take Samento 600mg to 1800mg a day. I feel that it definitely helps me. I am now moff all antibiotics, as they were making me sicker. I only have Lyme. I have always tested positive for Lyme, and not for any co-infections. I believe it. The doctor I now go to says I should up the Samento when ever possible, and she has me on a lot of supplements... E-mail me if you want more specifics.... Laczi
Posted by Team Mom (Member # 4677) on :
Are you taking pills? I'm taking liquid form and I'm up to 12 drops a day. Was advised to take it slow as it is very powerful and may cause major herx. I'm on a regimen of homeopathics as well as arx due to a major relapse.
Are you on a specific regimen?
Posted by lymeHerx001 (Member # 6215) on :
Yes samento does cause a herx.!!!
I stopped for a while and then woke up and popped 2 pills (the good kind)
I felt good in the morning,, then after they kicked in very achey,foggy etc
Take it easy with the good stuff
Im taking the ENZYMATIC THERAPY of course
Posted by Lyma Bean (Member # 1914) on :
Hi Team Mom!
Welcome to Lyme Net
Is your PCP rx'ing the rocephin and doxy? If so that's a rarity around here. Your lucky to have him/her!
I was in the original study for Samento. That was before they had the liquid. After a year of it, some other alternative stuff and no abx., I went into remission. Then I had sinus surgery and relapsed.
I've done 6 months of abx. since then and am currently off.....hoping I'm in remission again. If I do relapse, I'm going to go the Samento route.
Of course everyone differs but I felt like the capsules were more effective than the liquid- just can't afford them! I'll have to do the liquid if it becomes necessary.
Do you go to The Alternative Health Shoppe ? They can really help with stuff for herxing. I know I used to break out during herxes.
