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Posted by eronvica (Member # 6342) on :
 
Hi all,
Can Lyme still be diagnosed after 10 years? Can it lie dormant for so long? I had the Lyme rash 10 years ago was treated for it with antibiotics (at that time I thought successfully) and now I'm having symptoms again.

Thanks for all your help!


 


Posted by lla2 (Member # 2364) on :
 
yes, my lyme, bartonella adn babesia was dormant for 11 years with no symtoms until I had elective surgery in 2001 adn then all my symtoms came out inthe form of neuro lyme..really bad! they say when the immune system is fighting something like surgery it can no longer fight off the lyme etc..adn the spirochetes win and come out again..

this explains why when we're very stressed or have a crisis of some kind to our body our symtoms get worse..also anesthesia also is a stress on our body which brings out the lyme even stronger

so the answer is yes..it can be dormant for many many years and then come out...

Lisa
 


Posted by eronvica (Member # 6342) on :
 
Did you test positive for it 11 years later? How was it established that you had it again?

 
Posted by lla2 (Member # 2364) on :
 
No I didn't try to test because I thought it was gone..then I had surgery adn all my sysmptoms resurfaced adn more neuro than ever....

but it was 11 years later...my immune system had kept it in check that long..i had noticed when i was especially tired etc..I'd notice some small symptoms , but not full blown like after the surgery...but I never tested positve, even after the surgery..my immune system was too tired of fighting it,a dn too used to the bacteria to even recognize it any more...

dr. diagnosed my symptoms which is what any good lllmd will do...find a good one and he'll do that and then treat you for it. you dont' need a positive test to be treated anymore

Lsia
 


Posted by Nancy-OH (Member # 3567) on :
 
My understanding is that the bacteria lies dormant until a stress of some sort comes along.

A car accident, death in the family, surgery, etc.

Then it returns and must be treated again.

This happened to a friend of mine. Her mother-in-law had a stroke and had to move in with them for a few months. YIKES! It returned after being gone for almost two years.

I'm sorry to hear yours returned; but the good news is that you know how to treat it and you know you can get back to your life once again.

--Nancy
 


Posted by rosesisland2000 (Member # 2001) on :
 
I figure that, when I started having symptoms, I must have had LD for many years, probably more than ten years.

I had a severe head trauma from a bad fall on concrete...it was after that that my LD symptoms started occuring.

Also, your treatment (tx) for Lyme years ago you may not have been given enough antibiotics (abx) for a long enough duration.

You own immune system can be working against this bacteria for years without you knowing it.

Have you been given the following essential links? Tincup's Links for new LymeNet members


http://flash.lymenet.org/ubb/Forum1/HTML/009342.html

You'll definitely want to bookmark the above link.

If you'd like to search through posts on any subject pertaining to LD, then this post will walk you through how to do just that. Dang's Hot to use the LymeNet Search


http://flash.lymenet.org/ubb/Forum1/HTML/009342.html


Welcome to LymeNet the best support for Tick Borne Illnesses on the Net.

Rosemary
 


Posted by lookin4answers (Member # 4974) on :
 
Eron, yes, it is true.

I can count back at least ten years + when my symptoms started to show.



 


Posted by jbgoth (Member # 5567) on :
 
Yes, it can be dormant.

I had symptoms about 15 years ago and we never put two and two together to figure out i had lyme.

The symptoms went away until i had surgery 1.5 years ago. I have been sick ever since.

Jordan

------------------

 


Posted by lynnic86 (Member # 3634) on :
 
It can definitly be dormant.
For me it was my two preg. that brought out the worst of the symptoms and the neuro symptoms came out with my last preg. over 5 yrs ago and with anti I am better but will never be completly ok again.

 
Posted by ArtnSoul (Member # 4561) on :
 
I don't know about it being dormant, but I probably had undiagnosed lyme for about 35+ years.

Been dealing with symptoms most of my life.

I had 3 major surgeries wthin 9 months time and my symptoms got a lot worse.

My duck didn't have any answers for me until I developed Bell's Palsy.
 


Posted by ArtnSoul (Member # 4561) on :
 
quote:
Originally posted by eronvica:
Hi all,
Can Lyme still be diagnosed after 10 years? Can it lie dormant for so long? I had the Lyme rash 10 years ago was treated for it with antibiotics (at that time I thought successfully) and now I'm having symptoms again.

Thanks for all your help!

You need to see an LLMD. Did you post under "finding a Doctor"? Also, know that you are not alone here!



 


Posted by eronvica (Member # 6342) on :
 
Did you get a positive lab result ten years later?

I've been trying to find a "Lyme" doc near me, but so far no one I have written to has been able to provide me with any information. I am truly disappointed. I have already e-mail about 10 people. I live in Hamburg Germany right now, but I would be willing to travel home (Morrsitown New Jersey or NYC) to get treatment. Could someone supple me with some information either near me or in the States.
Thanks again! especially for all your very informative replies. Blessings.......
 


Posted by rosesisland2000 (Member # 2001) on :
 
I'm sending you back to the first page where maybe someone will see it and reply to your last question.

But, if travel is no problem...here's one of the more popular LLMDs...he's in Springfield, MO and they have an airport there.
www.drcharlescrist.com

I hope you find success in finding the right doctor for you.

Also, Dr. C, above, is one of the LLMDs that doesn't think it is necessary to see you each and every month or two. My daughter and her two daughters saw him for the first time on August 30th and they weren't required to return to see him until January, 2005.

So, keep that in mind when choosing an LLMD...some do require seeing them more often than others. He will also do phone appointment between visits if necessary. And, he will work hand-in-hand with your PCP. He understands that most of his patients come from all over, even from Europe. So, he will definitely work with you.

Here's what others have said about him:


http://flash.lymenet.org/ubb/Forum3/HTML/004140.html

Let us know how it goes, ok?

Again,

Rosemary
 


Posted by treepatrol (Member # 4117) on :
 
WELCOME To LYMENET

Here's more goodys! A typical response to newcomers.

Hi and WELCOME! Get a LLMD or at least Dr that is willing to learn about lyme. Borrelia Burgdorferi is a clinical diagnosis, based on symptoms and on your response to treatment. Good Luck, bumpy road ahead.

Post for a LLMD in Seeking a Doctor. Ps remember I am not a Dr, just a fellow sufferer.

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