How many of you experience Raynaud's? Is it related to your lyme?
As the temperature drops I'm finding my symptoms are returning after being virtually nonexistant during the warm, relaxing summer months.
------------------ cheers, AG
Posted by Kara Tyson (Member # 939) on :
I have had it for as long as I can remember. Not related to my Lyme. I wear a jacket if it goes below about 70 degrees and I wear gloves also. My feet are blue and ice cold most of the time. I suppose I have gotten so used to it.
Posted by circuspeanut (Member # 6154) on :
I've had it forever, but then was dxed hypothyroid and the thyroid supplements really helped warm me up. Have you had your TSH levels checked?
Posted by algr (Member # 6197) on :
circus peanut: yup, everytime they take blood they recheck thyroid and anemia panels.
Seems like I'm always having blood taken! I need that blood put back into my hands and feet! lol
------------------ cheers, AG
Posted by circuspeanut (Member # 6154) on :
Heh - I can relate. I think I'm the only person in the neighborhood who needs a heating pad for my feet in July ...
Seriously, even if your thyroid levels are "low normal", it might help you to try a low dose of a supplement (use a broad one like natural Armour) - the test scales are not based on women and most docs now think many women who are hypothyroid go undxed.
Good luck in any case! Stay warm!
peanut
Posted by rosesisland2000 (Member # 2001) on :
I was misdiagnosed with Raynaud's during my 2 year quest for [i]what's making Rosemary so sick[i] campagne.
I know now that that was a misdiagnosis for me, anyway.
Rosemary
Posted by bobdavis (Member # 510) on :
You can save your blood and take your temperature first thing in the morning. If it is always below 97 degrees you have a problem. This will give you evidence that it is your thyroid if that is the problem.
My TSH was 4.5 for years, I had constipation to where Metamucil and Magnesium did nothing. My fingers and lips turned blue. A heart workup revealed nothing, blood oxygen was 98%. Then my TSH jumped to 8.5 and the ducks finally put me on Synthroid (not the best solution). My body temperature jumped up tp 98.4 and my TSH dropped to 3.3.
Posted by Larkspur (Member # 5131) on :
This is an interesting topic to me. I first noticed Raynauds at the age of 12. (I'm 35 now) My hands, feet, and legs would turn all shades of purple with a very mottled appearance. Interestingly, it wasn't always related to being cold, and feeling extra cold wasn't a significant problem for me. Also, it didn't hurt (I've heard that Raynauds can be very painful). As a teenager it was not attractive and I was very self conscious about it It got a bit worse as I grew older, but I got used to it. In my mid 20's I started taking Co enzyme Q10 b/c I had read it might help - it did seem to and the raynaud's became much more mild. Anyway, I "came down" with severe neuro lyme a little over a year ago. Since I've been treated, the Raynaud's has disappeared completely!! Also, the lightbulb went off a couple months ago (duh) - I may have had Lyme in my system since a small child. Perhaps getting bitten several times. I've had many many bizarre health problems just about all my life that no one could really explain. I thought it was just "me" I guess we'll never know 100% but all the evidence certainly suggests this. I'm doing pretty well now. Not 100% but much better. Since being treated for Lyme and having all these things I've been dealing with for 30 years clear up at the same time - to be honest, it's kind of like a new lease on life for me
Posted by TreeLoafer (Member # 6358) on :
I, too, am experiencing increased reynaud's symptoms since my other, arthritic symtoms began.
I've had reynaud's since high school, and it actually started to disappear over the last couple of years (I'm 27 now), until I started having the stiff, painful hands & wrists as my first mysterious symptom.
Now it's so bad, I'm starting to develop dry, painful spots on the ends of my pointer and middle finger.
I'm not sure, but I think it could be the beginnings of finger ulcers. (?)
While we're on the topic of reynaud's, has anyone found a successful treatment for finger ulcers?
Posted by bobdavis (Member # 510) on :
Would ozone help your fingers? I have heard it helps with diabetics and their feet problems?
