Kara Tyson
Frequent Contributor (5K+ posts)
Member # 939
posted
I have had it for as long as I can remember. Not related to my Lyme. I wear a jacket if it goes below about 70 degrees and I wear gloves also. My feet are blue and ice cold most of the time. I suppose I have gotten so used to it.
Posts: 6022 | From Mobile, AL | Registered: Apr 2001
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posted
I've had it forever, but then was dxed hypothyroid and the thyroid supplements really helped warm me up. Have you had your TSH levels checked?
Posts: 67 | From Dutchess Co., NY | Registered: Sep 2004
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posted
Heh - I can relate. I think I'm the only person in the neighborhood who needs a heating pad for my feet in July ...
Seriously, even if your thyroid levels are "low normal", it might help you to try a low dose of a supplement (use a broad one like natural Armour) - the test scales are not based on women and most docs now think many women who are hypothyroid go undxed.
Good luck in any case! Stay warm!
peanut
Posts: 67 | From Dutchess Co., NY | Registered: Sep 2004
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rosesisland2000
Frequent Contributor (5K+ posts)
Member # 2001
posted
I was misdiagnosed with Raynaud's during my 2 year quest for [i]what's making Rosemary so sick[i] campagne.
I know now that that was a misdiagnosis for me, anyway.
posted
You can save your blood and take your temperature first thing in the morning. If it is always below 97 degrees you have a problem. This will give you evidence that it is your thyroid if that is the problem.
My TSH was 4.5 for years, I had constipation to where Metamucil and Magnesium did nothing. My fingers and lips turned blue. A heart workup revealed nothing, blood oxygen was 98%. Then my TSH jumped to 8.5 and the ducks finally put me on Synthroid (not the best solution). My body temperature jumped up tp 98.4 and my TSH dropped to 3.3.
Posts: 499 | From Western NY | Registered: Dec 2000
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posted
This is an interesting topic to me. I first noticed Raynauds at the age of 12. (I'm 35 now) My hands, feet, and legs would turn all shades of purple with a very mottled appearance. Interestingly, it wasn't always related to being cold, and feeling extra cold wasn't a significant problem for me. Also, it didn't hurt (I've heard that Raynauds can be very painful). As a teenager it was not attractive and I was very self conscious about it It got a bit worse as I grew older, but I got used to it. In my mid 20's I started taking Co enzyme Q10 b/c I had read it might help - it did seem to and the raynaud's became much more mild. Anyway, I "came down" with severe neuro lyme a little over a year ago. Since I've been treated, the Raynaud's has disappeared completely!! Also, the lightbulb went off a couple months ago (duh) - I may have had Lyme in my system since a small child. Perhaps getting bitten several times. I've had many many bizarre health problems just about all my life that no one could really explain. I thought it was just "me" I guess we'll never know 100% but all the evidence certainly suggests this. I'm doing pretty well now. Not 100% but much better. Since being treated for Lyme and having all these things I've been dealing with for 30 years clear up at the same time - to be honest, it's kind of like a new lease on life for me Posts: 921 | From PA | Registered: Jan 2004
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posted
I, too, am experiencing increased reynaud's symptoms since my other, arthritic symtoms began.
I've had reynaud's since high school, and it actually started to disappear over the last couple of years (I'm 27 now), until I started having the stiff, painful hands & wrists as my first mysterious symptom.
Now it's so bad, I'm starting to develop dry, painful spots on the ends of my pointer and middle finger.
I'm not sure, but I think it could be the beginnings of finger ulcers. (?)
While we're on the topic of reynaud's, has anyone found a successful treatment for finger ulcers?
Posts: 7 | From arlington, va, USA | Registered: Oct 2004
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posted
Would ozone help your fingers? I have heard it helps with diabetics and their feet problems?
Posts: 499 | From Western NY | Registered: Dec 2000
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