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Posted by jackieu (Member # 6418) on :
 
Hi, I was recently diagnosed with lyme and just received my lab work back. I wanted to post for all to look at and send feedback. My main worry is that my ANA screen came back positive which could indicate lupus or some other autoimmune disease. Here goes:

ANA Screen: Positive

Lyme AB Screen: 4.09

Western blot IGG & IGM Screen:

IGM B. Burgdorferi AB - Negative
w/ reactive result for the 41 KD IGG band

IGM B. Burgdorferi AB : Positive
w/ reactive 23KD and 41KD bands

White Blood Cell count: 11.8 (high)

Platelet Count 475 (high)

Absolute Neutrophils 8850 (high)

Again, I'd appreciate any feedback...there is so much confusion with regard to false positive and false negative test results, my head is spinning. but, from what I've read I'm pretty confident that my doctor is right and Lyme is what I have.



 


Posted by rosesisland2000 (Member # 2001) on :
 
Many of us here have or have had in the past elevated ANA's.

Just yesterday was a post on this subject.

Here's how to use the search key located up under Post New Topic:


http://flash.lymenet.org/ubb/Forum5/HTML/000464.html

And, if you haven't been through this post yet, Tincup's Links for New LymeNEt Members:


http://flash.lymenet.org/ubb/Forum1/HTML/009342.html

You'll definitely want to bookmark the above post so you can return to it again and again. The more knowledge you have the better off you'll be, for this is a very, very and I mean very complicated disease.

Remember that Lyme is a clinical diagnosis and supported by the tests. And, you test is positive, so you have LD.

My numbers to your other tests looked almost the same. I have Lyme and have been treated and am still in treatment and most of those numbers, WBC, etc. are now back in the normal range.

So, with treatment you have something to look forward to...getting your lab numbers back to normal.

The most important thing you can do, if you have not already, is to get into see a Lyme Literate Medical Doctor, an LLMD. You can post over in the Seeking a Doctor forum for someone in your area. But, be aware, there are not a whole lot of LLMDs in the US and most of us have to travel great distances to see someone who truly knows how to treat this disease.

Oh, and Welcome to LymeNet!!!

Rosemary
 


Posted by treepatrol (Member # 4117) on :
 
WELCOME To LYMENET

Here's more goodys! A typical response to newcomers.

Hi and WELCOME! Get a LLMD or at least Dr that is willing to learn about lyme. Borrelia Burgdorferi is a clinical diagnosis, based on symptoms and on your response to treatment. Good Luck, bumpy road ahead.

Post for a LLMD in Seeking a Doctor. Ps remember I am not a Dr, just a fellow sufferer.

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Rose's 15 Facts for Newcomers
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Why You Can't Trust Medical Journals Anymore
Something to share with friends and family members But You LOOK Good!

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FDA It is important that clinicians understand the limitations of these tests

Explaining Borreliosis (Lyme) Western Blot Tests
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Melissa Kaplan's Lyme Website Explains Western Blot
Dr. C Explains Western Blot
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( No you don't always see a bite and if there's no bullseye the only way your going to be able to tell is (symptoms) and (((Maybe))) WB or lyme dot blot 3 day urine banged with abx's to free your antigens up for the test. )
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Next nymph size... ( * )
Next is adult ( o ) to ( 0 )
Pretty small????? HUH

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Posted by Corgilla (Member # 4066) on :
 
Hi,

I'll start by saying that this is a very difficult question to answer for lay people. We're not doctors.

Lyme Disease can cause many of our systems to react in many different ways.

You definitely have an active Lyme infection since your western blot IgM is postive. Plus you have a very high Elisa (Lyme AB screen).

The 23kd is the telltale band. 41 doesn't mean much.

I've had Lyme for quite a while now and my 23 always comes up positive. Just a few months ago that was confirmed by a PCR which actually found Bb DNA in my blood.

You definitely need to treat the Lyme. I'm not sure if Lupus treatments include steroids but if they do, stay away.

Steroids help Lyme penetrate deeper in to your tissue and also lowers your immune system. A very bad combo when trying to fight this bug.

A lot of weird symptoms have been resolved by antibiotic treatment in lyme patients.

You may also have coinfections since you platelets and WBC are high. I don't even know what a neutrophil is...

I'm not a doctor. This is only my opinion. Please try to find a Lyme Literate Doctor (LLMD) as soon as possible for help with Lyme treatment. Also, try to start antibiotics as soon as possible while you wait for an appointment.

Maybe you can even ask about your lab results when you make the appointment.

Look at the "links for new members" post. There's a whole lot of info in there for all of us.

Good Luck,

Corgilla
 


Posted by jackieu (Member # 6418) on :
 
Thank you. I will seek out a doctor who specializes in Lyme. I'm scheduled for follow up blood work in a couple of weeks and will discuss my test results more thouroughly with my doctor.

I'm the type who never gets sick, so this disease is totally wiping me out. I can't believe how tired I get mid-day. And, when I get tired, I get a "sick/weak" feeling too. Very strange....

Originally posted by Corgilla:
Hi,

I'll start by saying that this is a very difficult question to answer for lay people. We're not doctors.

Lyme Disease can cause many of our systems to react in many different ways.

You definitely have an active Lyme infection since your western blot IgM is postive. Plus you have a very high Elisa (Lyme AB screen).

The 23kd is the telltale band. 41 doesn't mean much.

I've had Lyme for quite a while now and my 23 always comes up positive. Just a few months ago that was confirmed by a PCR which actually found Bb DNA in my blood.

You definitely need to treat the Lyme. I'm not sure if Lupus treatments include steroids but if they do, stay away.

Steroids help Lyme penetrate deeper in to your tissue and also lowers your immune system. A very bad combo when trying to fight this bug.

A lot of weird symptoms have been resolved by antibiotic treatment in lyme patients.

You may also have coinfections since you platelets and WBC are high. I don't even know what a neutrophil is...

I'm not a doctor. This is only my opinion. Please try to find a Lyme Literate Doctor (LLMD) as soon as possible for help with Lyme treatment. Also, try to start antibiotics as soon as possible while you wait for an appointment.

Maybe you can even ask about your lab results when you make the appointment.

Look at the "links for new members" post. There's a whole lot of info in there for all of us.

Good Luck,

Corgilla[/QUOTE]


 


Posted by Corgilla (Member # 4066) on :
 
Hi again,

Here's a link to another post about ANA:
http://flash.lymenet.org/ubb/Forum1/HTML/028991.html

You can also use the search link at the top right of any post to look up things you want to know more about.

Best Wishes,

Corgilla
 


Posted by jackieu (Member # 6418) on :
 
thank you!!

Originally posted by Corgilla:
Hi again,

Here's a link to another post about ANA:
http://flash.lymenet.org/ubb/Forum1/HTML/028991.html

You can also use the search link at the top right of any post to look up things you want to know more about.

Best Wishes,

Corgilla[/QUOTE]


 




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