I don't know how far you are into your treatment or how long you have dealt with Lyme before getting diagnosed, but please do not give up!

You must listen to your body and your LLMD, of course, to make sure you are not having an adverse reaction to the meds. But if you are 10 days in, perhaps you are experiencing a massive die off of Bb?

Hang in there. And it's okay to throw a pity party. Don't every apologize for that, okay?

It will get better.

------------------
Tabby

 

especially after making many many gains and becoming sicker than before i ever started treatments.

but what is the alternative? it's cliche but be thankful for what you do have, no what you don't.

set a goal and you will reach it. that goal is health and it doesn't come pre-packaged, one size fits all in the mall.

it's a struggle, a climb of desperation and determination. it's the challenge of a lifetime, your lifetime.
 

I was misdiagnosed for about 18 years , and it finallly went to my brain..i had horrible headaches for about 3 years..found a good llmd , did oral abx, and now the headaches are gone, but I'm so discouraged by this weird feeling in the frontal portion of my head, like a building panicky feeling that keeps comign and going all day..I can barely stand it, and no one knows what it is...

this disease is so frustrating..I was at 95% adn now slipping back to endure this..but please don't give up..things will get better..you'll slowly notice whole days, adn then groups of days where you feel better ..then weeks at a time....

it's just time consuming..I know how frustrating it is....but we're always here to listen and to try to reassure you if we can....

hang in there....

best,
Lisa
 

Yes, it's in my brain too. But I figure at least there's something in there taking up space

We've got to all hang in there. Just like zipzip said. There is not alternative.
 

Try and get some sort of over-the-counter or alternative anti-inflammatory. Alas, it's no longer safe now to recommend Celebrex or Bextra. Sigh.

I hope we all feel a little more "up" soon. I know for me part of it is the holidays coming on too. I don't know about you, but i hate the holidays. The cold and the cheerful spirits are like salt on a wound today, but it'll get better.

Maybe you'll be like many of us on rocephin, 3 or 4 days of absolute h*ll and then a dramatic reduction in pain. I hope so, it's entirely possible.
 

I would be happy to try to help by staying connected to this post. What can I do for you?
warm regards
paisley
 

I am so sorry you are feeling so bad! I know that i was feeling so down and posted here and it really helped me. Never feel bad about telling all of us becasue we all have probably felt that way too a time or two.

Afterall just because we don't feel human doesn't mean we aren't!!!!!!!!

Blessings on you and I will say a specail prayer for you!!!!!!!!!

i don't know what we would do without this site!

mule
 

I hope you will be feeling better soon...and like everyone else said..hang in there..don't give up..these feelings will pass.
I get depressed sometimes too...it's horrible so I know how you feel.

I will say a prayer for you too,
Beverly
 

I am so sorry for how you feel.

My first two months on IV I felt like I had been hit by a truck..literally.

I don't know if it helps to say that WE need you..

The Lyme community needs every one of us..we're in it together and we will help you anytime, anyday.

When you get to feeling better, you will be a strong advocate for this disease.

In the meantine we love you and want to help you through these more difficult times.

Sounds like a horrible herx..

Do drink lots of lemon water, take good vitamins, hot showers or baths as tolerated and call in on any and all favors from friends and family, neighbors, churches now.

You are going through what can and should be considered the effects of chemotherapy..you need all the support you can get.

We're here..

Mo
 

I was cleaning my room today, going through all my clothes, my shoes, my fancy clothes, that I have not worn for years.

I sat there and cried for the woman that I miss so much, I am not that woman anymore, but today, I VOWED that I would get that woman back.

I started to RIFE a few days ago, and GEEZ!!!!!!!!!!!!! forgot about how sick I can get from the herxing, I have not rifed for a few days, and am herxing today... so sick was crying in bed all day, not able to move... mind like I was in suicidal hell.... then it passed somewhat.

Hang in there, and def cut back if you have to, I really believe that for me anyways, too much herxing is not a good thing, it brings down the immune system... and one then does not have the immune system to fight.

For me, when I am herxing too much, my herpes canker sores come out... that is not a good thing.

Best to find a tolerable herx... cause I feel you wont get better if the herxing is too much, that happened to me, had to cut back antibiotics.

Herxing stresses the adrenals as well, bigtime, and without strong adrenals you WILL NOT get well from lyme.

Balance.

Hope you feel better, it is hell this DREADED disease.

Trish
 

I remember all that so well like it was yesterday. I was already so sick just being on antibiotics and whatever meds they were given me at that time so I can't imagine how difficult it is for you right now with yours. I also had major healing crisis when I went on other herbal programs as well so at that time I thought dying was a better choice. Now I realized that I had chose to live especially a health life so I accepted the facts and dealt with it from moment to moment.

Another problem I had to dealt with at that same time was my family and friends did not understand so I had no support. I also did not know of this kind of support forum like this to share my pain & suffering. It was tough.

It is a physical pain for the time being. Just hang in there and we are all here for you. Take many deep breaths during the toughest parts and have couple warm bath with sea salt or epsom salt to help release some toxins which helps to relax your body.

Get well soon.

------------------
Lyme Disease Help
http://www.wildcondor.com
 

Ready for some good news?

Here is what will happen.

You will .. after so many days of feeling like you WANT to die... and you just can't take it anymore...

Suddenly have 1/2 of a good day. Just out of the blue.

Then... the rest of the day and the next two or three will be horrible.

You will cry even more to know you FINALLY got a break from that JUNK... and now the bad is back again.

That is about when the "why me's" hit... and you wonder "what's the use"?

Then.. another good part of a day will appear... out of nowhere. You will say.. "wow".

You will then panic trying to figure out what you did to make that happen. You won't be able to figure it out... so don't waste energy on it. Then.. sure enough.. more bad will hit you and that knocks you back down again.

Then... another good day.. and a couple of bad ones.

Then a longer stretch of good.. then a few bad days.

Suddenly you will start having about 1/2 good days.. and 1/2 bad days.

Eventually you will have a bit more good than bad.

Then.. a nasty herx set back... and you will sit there and worry that the meds aren't working and you are getting worse instead of better.

You will want to quit it all again.

Then.. a few more good days. Less bad days.

As time goes by.. your bad days won't be AS bad.. and the good days you have will be better than the good ones you had earlier.

Finally you will notice that you are only having occasional bad days.. and things will start looking up.

Hang in there.

We want you to feel better... and you WILL.

My eyes filled with tears after reading your post as I remember those days of darkness all too well.

I remember wanting to give up and actually found a little humor in the fact that I was too weak to even consider ending it all. So ironic!

Now that I've had a year with no relapses, part of me has stored those hellish memories in a file cabinet in the basement of my brain.

It's so hard to tell someone to say hopeful when the sadness and pain just goes on and on and on with no guaranteed end in sight.

I can't even tell you exactly how I got through it because, like so many other folks on this site, I lost a lot of friends and hope, too.

The things that brought bright moments to my wretched days were my pets, a bath (if I had the energy), a soft pillow to support my vibrating head and music (when I could tolerate it).

My Dad really summed it up when he said in a silly voice (always trying to make me laugh) when he said, "Lyme sucks cuz ya can't do nothin!" It was so simple but so precise.

You can read my success story under the recent post of success stories and "maybe" it will give you a lift.

I think the number one thing that helped me through was a sense of humor. I think I went for three weeks without washing my hair (I have very long hair).

Along with that, I had the bloated candida eyes and embarrassingly enough, some type of bumps/warts in an ungodly place.

I felt like a troll. To top it all off, when I got out of the bathtub one night, I fainted and hit my skull on the side of the tub only to have a mammoth bruise down the right side of my body.

I was a creature double feature...but for some reason, it made me laugh...like, my Lord, can it really get any worse than this?

The final straw was when I passed gas (sorry for the graphics but I know this will make people laugh), it came out in spurts in my sweatpants.

My Dad had another key line which made me laugh heartily..."never trust a fart".

Lyme Disease is so incredibly humbling and is the ultimate test in patience and hope. I am thinking about you, Jan, and praying that you can just hold on.

You know that Wilson Phillips song, "hold on for one more day and things will go your way...hold on for one more day".

Two years ago, I spent Christmas in bed and alone. This Christmas I have a friend visiting and we'll be heading to the Keys in FL for fun and sun.

Please do not give up...as Wildcondor once wrote me..."giving up is not an option!"

With thoughts & prayers,

Susan
 

Thank God it didn't work as inteneded but now there may be lifelong problems..

Hang in there..lymemomtooo