I was diagnosed last summer with late stage Lyme. I've been on Doxy, and now have been on Mepron, Zithromax and Ceftin. All this since July 04.
I have been herxing all the time, and some symptoms are worsening. The chronic pain at first in my low back and hips, is now in every joint and all over the body.
Yesterday my LLMD told me he thought I should go on the Marshall Protocol. He is weaning me off all antibiotics in a thoughtful manner and starting me on the MP with Benicar. He says once we get the inflamation and pain under control we will add lower doses of antibiotics.
He feels I have a systemic inflamation that we need to address first. I have thought for a long time that my immune system is almost non existent...but I am not a doctor!
I hope someone with experience in the Marshall Protocol will come on here and give me some help. I've been on the MP web site but can only absorb a little at a time.
What has your experience been? What might you suggest about the NOIR glasses. There are so many to choose from.
If someone with a complicated case of Lyme has a success story around the MP please do share. I'm hopeful and open, but cautious.
I appreciate any imput from you guys and gals. There is a lot of depth of experience in this community.
Thanks,
Ann
I personaly dont bye into it yet.
Sorry
But heres some other info.
WELCOME To LYMENET
Here's more goodys! A typical response to newcomers.
Hi and WELCOME! Get a LLMD or at least Dr that is willing to learn about lyme. Borrelia Burgdorferi is a clinical diagnosis, based on symptoms and on your response to treatment. Good Luck, bumpy road ahead.
Post for a LLMD in Seeking a Doctor. Ps remember I am not a Dr, just a fellow sufferer.
Conflicts in Lyme
How to Search Courtesy of Danq
TC LymeNet Links for New Members
Newbie's Lingo
Lyme Disease Audio Network
Dr. Joseph J. Burrascano's Treatment Guidelines
CDC Website on Lyme Disease
International Lyme and Associated Disease Society
Lyme Disease Symptoms
Rashes
Co-IinfectionsThanx M
Rose's 15 Facts for Newcomers
Making the Most of Your LLMD Visit
Camp A and Camp B, The Lyme Disease Contoversy
2nd Version Camp A Camp B
Why You Can't Trust Medical Journals Anymore
Something to share with friends and family members But You LOOK Good!
Labs
MDL
Igenex Labs
Q-RIBb
Western Blot Info
FDA It is important that clinicians understand the limitations of these tests
Explaining Borreliosis (Lyme) Western Blot Tests
Explanation of Western Blot Bands
Igenex Labs on the Western Blot
Melissa Kaplan's Lyme Website Explains Western Blot
Dr. C Explains Western Blot
- Not present
+ Low
++ Medium
+++ High
+/- Equivocal = indeterminate (there, but not as intense as Low)
Drug Interactions and Other Drug Info
Drug Digest
American Medical Women's Association Tiscali Reference Encyclopedia
Herxing
What Is a Herxheimer Reaction?
What Is Herxing?
The Herxheimer Reaction
Candidiasis
Check Diet Link Atkins Diet
Sexually Transmitted ???
Transmitted Through Sex?
Sex Question-Serious-Adult Content
Video On Demand: Blood Supply May Be Source Of Lyme Disease Infections
Good Site Canadian Lyme Disease Association
FDA on Lyme Testing
Legal Help
Legal Help
Legal Help
Legal Help
Legal Help
GreatSite
MedicalDictionary
Wealth of Info
( No you don't always see a bite and if there's no bullseye the only way your going to be able to tell is (symptoms) and (((Maybe))) WB or lyme dot blot 3 day urine banged with abx's to free your antigens up for the test. )
See this ( . )thats the size of the larva stage tick...
Next nymph size... ( * )
Next is adult ( o ) to ( 0 )
Pretty small????? HUH
Marnies......... Ten Points Regarding Mg and Lyme Disease
In a Nutshell P1
Part1 Long over Due
Part2
Part3
Part4
Part5
Part6
Part7
Pregnancy
Pregnancy?
TC Link Pregnancy
Insurance SS Disability Help Minoucat Bunches of Goody's
Herbs Be Careful
HerbsCancer Center
Neurologic Lyme
Neurologic Lyme
Neurologic Lyme
Interested in what Trolls are?
1. 
2.
A copy of this is stored in computer Help section.
Do a search on MP spelled out & you should see anyone else's story about this.
I love my NOIR 901 and 907! Buy them direct from Noir & don't go thru anyone else..eye wear store. They charged me $10-14 more & gave NO discount. Noir will give MP folks 20-25% off!
If you go to MP OFF topic site, you can read my story of my NOT being on MP as prescribed.
You can read what my LLMD put me on & how I've reacted to things.
Be sure to print off Treepatrol's newbie links, check off what you read as there are months of reading there.
Print off DR. BARRASCANO's lyme treatment guidelines; it was 38 pages for me. Become familiar with it...keep handy to read over & over.
Best wishes. Betty G., Iowa
I haven't posted too much but I've been on this site for a while. I'm very familiar with a lot of your site suggestions and have printed many of them for my edification.
Thanks Betty for the tip on the Noir glasses. That was helpful. I will look up your story. I've done an MP search. Because of my eyes and headaches I can't stay on too long.
I'm still hoping more will come along and share their personal experiences so I can learn more of what to expect.
Best to both of you,
Ann