.Two years ago I started abx and took for about 10 months, relapsed after 3 months, and started again for 3 more months, relapsed big time with serious neuro problems, tingling in arms and legs and big time memory problems and change in personality. My doc up here said he didn't know how to treat me for the neuro stuff and referred me to a doc in NY. Two weeks ago I also say a neurologist in NY that specializes in perepheral neuropathy.
It looks like we will trying IV antibiotics. I have looke into the MP, but it seems pretty scary, and Ny doc doesn't want to do it.
For those of you who have had IV what type of port do you use, to the chest or through the arm with tubing through the chest. Just curious, in case I have a choice.
Anyway, this site has been very informative and look forward to participating.
Welcome to LymeNet!
I had a Hickman for 15 months with no problems except going in and coming out .
Here are two links with information about the various catheter lines. Hope this helps.
Central Line Catheters: http://flash.lymenet.org/ubb/Forum1/HTML/021365.html
Problems: http://www.venousaccess.com/complications.htm
My best,
Melanie
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C O L O R A D O * S U P P O R T * S Y S T E M
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When what I had to do was explained to me I couldn't imagine 1) having the port at all 2) infusing myself or 3) removing the needle at the end of the week.
After the first try, piece of cake
I recommend it, but I haven't experienced a picc. I think there are reasons for using one or the other, like the projected length of treatment (?).
good luck.
monkeyshines
I didn't like either way.. so I will have to refrain from responding in order to not sound grumpy. HA!
But I CAN say.. just be sure they don't stick it in your ear!
NOT comfortable!
Everytime you need to lean over to put on your shoes.. the darn thing gets all tangled up around your knees and stuff... and you can hardly move!
Worse yet... once it is tangled all around your knees... you have to walk around all day with your butt sticking up in the air until someone kindly untangles you!
Yes.. it IS past my bedtime.
~smile~
Just wanted to say hey.. and welcome.. and hope you feel better soon!
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If you get the choice to sit it out or dance...
Here's TREEPATROL's and tincup's combination newbie links.
\
Print off the links then check them off as you read as you could spend several months reading all of this.
print & read Dr. Barrascono's info first; you will come back to this often.
Betty G., Iowa
I chose port over picc to have full use of my arms and to be able to swim when de-accessed, and to ont have lengths of tubing to tangle from my arm.
I'm making great progress with iv zith.
I have been getting more stamina, exercising, and decrease of smyptoms.
Today herxing some...last few weeks have been better every day though. I guess that's just how it goes. hope this doesn't last long
I wish you well with your decisions... I'm close to ME...let me know if I can help.
Hi and WELCOME! Get a LLMD or at least Dr that is willing to learn about lyme. Borrelia Burgdorferi is a clinical diagnosis, based on symptoms and on your response to treatment. Good Luck, bumpy road ahead.
Post for a LLMD in Seeking a Doctor. Ps remember I am not a Dr, just a fellow sufferer.
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God Bless You and I wish you the best,
Pam