posted
Hi, I'm new here. I've been visiting the site for a couple of months and decided to register. I live in Maine and have lyme. Diagnosed finally 2 years ago and doc seems to think that I've had it for 20 years. Which answers alot of questions.
Two years ago I started abx and took for about 10 months, relapsed after 3 months, and started again for 3 more months, relapsed big time with serious neuro problems, tingling in arms and legs and big time memory problems and change in personality. My doc up here said he didn't know how to treat me for the neuro stuff and referred me to a doc in NY. Two weeks ago I also say a neurologist in NY that specializes in perepheral neuropathy.
It looks like we will trying IV antibiotics. I have looke into the MP, but it seems pretty scary, and Ny doc doesn't want to do it.
For those of you who have had IV what type of port do you use, to the chest or through the arm with tubing through the chest. Just curious, in case I have a choice.
Anyway, this site has been very informative and look forward to participating.
Posts: 55 | From Maine | Registered: Jan 2005
| IP: Logged |
posted
Hi, I don't know where you live, I have much family in Standish, Farmington and other places and am thinking of moving up. My LLMD was just up in Waterville and Augusta talking about Lyme. Email me separately and we can write about our experience etc. Blessings, Marblenose Posts: 287 | Registered: Nov 2004
| IP: Logged |
Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Good evening LymeinMe,
Welcome to LymeNet!
I had a Hickman for 15 months with no problems except going in and coming out .
Here are two links with information about the various catheter lines. Hope this helps.
posted
I have a port in my chest. The procedure to implant it was easy (outpatient). After the first couple of weeks of getting it settled in, having the incision heal, etc., it doesn't bother me at all, other than not being able to shower or get it wet M-F. Mostly, I just forget it's there.
When what I had to do was explained to me I couldn't imagine 1) having the port at all 2) infusing myself or 3) removing the needle at the end of the week.
After the first try, piece of cake
I recommend it, but I haven't experienced a picc. I think there are reasons for using one or the other, like the projected length of treatment (?).
good luck.
monkeyshines
Posts: 343 | From Northern VA | Registered: Oct 2004
| IP: Logged |
NP40
Frequent Contributor (1K+ posts)
Member # 6711
posted
My son had the PICC line run through a vein in his arm. Said it was a piece of cake. He's on IV's for about 4 weeks now, with no problems. Some folks respond much better to the IV's than the orals. Good luck.
Posts: 1632 | From Northern Wisconsin | Registered: Jan 2005
| IP: Logged |
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Hey there new member.. Welcome!
I didn't like either way.. so I will have to refrain from responding in order to not sound grumpy. HA!
But I CAN say.. just be sure they don't stick it in your ear!
NOT comfortable!
Everytime you need to lean over to put on your shoes.. the darn thing gets all tangled up around your knees and stuff... and you can hardly move!
Worse yet... once it is tangled all around your knees... you have to walk around all day with your butt sticking up in the air until someone kindly untangles you!
Yes.. it IS past my bedtime.
~smile~
Just wanted to say hey.. and welcome.. and hope you feel better soon!
------------------ If you get the choice to sit it out or dance...
Here's TREEPATROL's and tincup's combination newbie links. \ Print off the links then check them off as you read as you could spend several months reading all of this.
print & read Dr. Barrascono's info first; you will come back to this often. Betty G., Iowa
Posts: 1 | From US | Registered: Aug 2015
| IP: Logged |
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
WELCOME To LYMENET
Here's more goodys! A typical response to newcomers.
Hi and WELCOME! Get a LLMD or at least Dr that is willing to learn about lyme. Borrelia Burgdorferi is a clinical diagnosis, based on symptoms and on your response to treatment. Good Luck, bumpy road ahead.
( No you don't always see a bite and if there's no bullseye the only way your going to be able to tell is (symptoms) and (((Maybe))) WB or lyme dot blot 3 day urine banged with abx's to free your antigens up for the test. ) See this ( . )thats the size of the larva stage tick... Next nymph size... ( * ) Next is adult ( o ) to ( 0 ) Pretty small????? HUH
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
.
Printer-friendly view of this topic