This is topic Newly Dx'ed with Lyme.... in forum Medical Questions at LymeNet Flash.


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Posted by Carols4given (Member # 6859) on :
 
Hi I'm new here and newly dx'ed with Lyme. I have been on doxycycline and cat's claw for 8 days now.

I started getting very achy about day 5 and was running a slight fever, also itchy all over. Are these typical side affects once on meds?

Also, I am going to a "naturalist" doc who did the Western blot test and dx'ed me. Would it be better to find a Lyme doctor or continue with my doc who I am very happy with in all other areas of my health care.

I have been reading here for a few days and want to thank you for being here with all the great info on Lyme.

Before being dx'ed a week ago I knew nothing about Lyme at all. Now I am learning all I can so that I can treat it properly, and know what it is I am up against.

Thank you in advance for any suggestions & info you have for me, and thanks for having such a site to educate people about Lyme. And why is there so little info on it publicaly????? You think if it was so previlant we would hear more about it. Carol
 


Posted by Carol in PA (Member # 5338) on :
 
Hi Carol, I'm so glad to see that you found your way over to Lymenet.

I don't have answers to your questions, but there are many people here on Doxycyline who may be able to help you.

Take care,
Carol



 


Posted by orrn (Member # 6672) on :
 
Carols4given,

Welcome! Sorry to hear you have LD! Your achiness sounds like a herx. It would make sense that you could run a fever from the inflammation of a herx.

I have always been on the other side of an elavated temp. I usually run about 97.9 to 98.1.

I just got my family doc to switch me over to Armour for my thyroid. I am going to try that.

I also itch alot, but have always contributed my itchiness to hypothyroidism.

I would also bet that a herx could cause itching too.

Just my 2 cents worth! All the knowledgable people will be along to give more info and explanation I'm sure!

I still have the "Lyme Brain" and have to read and re-read. Then if I'm lucky I can remember where I read it and can go re-read a third (or more) time when I can't remember what I read!

It does get better though! Hang in there! These guys are great here.

orrn
 


Posted by liz28 on :
 
Hi, Carol. I've only got a sec, but wanted to let you know the classic herx start time is on day 4 of a new treatment. So that's probably what is happening.

Anti-inflammatories, whether natural, prescription, or over the counter, can help with the discomfort. I just saw a new herbal treatment on the shelves, for example, for people who need COX-2 inhibitors but are giving up Vioxx and Celebrex.
 


Posted by Melanie Reber (Member # 3707) on :
 
Good evening Carol,

Welcome to LymeNet! It looks like you are getting a nice welcome from the crew.

You have come to the right place for help...we will do all that we can to get you headed on the road to recovery, OK?

It is great that your doc was able to diagnose you and is also willing to treat, but what you really need now is a thorough examination by a qualified doctor who specializes in Lyme and possible co-infections.

You can hop on over the seeking a doctor section and post there. Someone will get back to you shortly with a name of a Lyme Literate Medical Doctor (LLMD) soon. Perhaps your local doc would be willing to consult with your LLMD?

The achiness and fever are consistent with a Herxheimer reaction to the meds. This is a good thing. The itchiness however could be a slight allergy. It would be best to let your doc know this is happening, and keep a close eye on it, OK?

There are several Doxy Do's (or Don'ts):

-avoid milk and all dairy products within 2 hours of your abx - including ant-acids, many dairy products are hidden, so check labels.

-avoid all iron supplements within 2 hours of your abx. Otherwise the potency of the abx could be reduced. This is true of all drugs in the tetracycline family.

-avoid the sun- including protecting eyes and hands even in the car. Burns can happen very quickly.

-avoid laying down for at least half an hour to avoid esophageal burning.

-be sure to take with food.

-do not ever crush your meds.

-do a thorough drug interaction check with any other meds.

-be sure you are doing pro-biotics to replace the `good' bacteria' being killed by your abx.

-be sure you are following the special low-carb/ low-sugar diet.

-be sure to drink tons of water with fresh lemon.

-and...be sure to go easy on yourself...doxy is known as a tuff med...so give yourself a little break when needed.

For more information re: doxy treatment, please see Dr. B's guidelines...


If you read over the Camp A and Camp B paper, you will understand why there is so much controversy surrounding this illness.

I'm so pleased that you are reading and learning... It is so important that you try and read all that you can in order to educate yourself. We have to become our own best advocates for proper healthcare. Here are a few new member links with information to get you started.

Please let us know if there is anything that we can do!

My very best,
Melanie

LymeNet Links for new members: http://flash.lymenet.org/ubb/Forum1/HTML/009342.html

Dr. Joseph J. Burrascano's Guidelines: http://www.ilads.org/burrascano_1102.html

Rose's 15 Facts for Newcomers: http://flash.lymenet.org/ubb/Forum1/HTML/011977.html

Symptom Check List: http://flash.lymenet.org/ubb/Forum1/HTML/021063.html

Abbreviations for Lyme-speak: http://flash.lymenet.org/ubb/Forum1/HTML/020494.html

Making the most of your LLMD visit: http://flash.lymenet.org/ubb/Forum1/HTML/020605.html

Camp A and Camp B: http://flash.lymenet.org/ubb/Forum1/HTML/021395.html

Something to share with friends and family members: http://flash.lymenet.org/ubb/Forum3/HTML/008886.html

------------------
C O L O R A D O * S U P P O R T * S Y S T E M
[email protected]
 


Posted by treepatrol (Member # 4117) on :
 
WELCOME To LYMENET

Here's more goodys! A typical response to newcomers.

Hi and WELCOME! Get a LLMD or at least Dr that is willing to learn about lyme. Borrelia Burgdorferi is a clinical diagnosis, based on symptoms and on your response to treatment. Good Luck, bumpy road ahead.

Post for a LLMD in Seeking a Doctor. Ps remember I am not a Dr, just a fellow sufferer.
Conflicts in Lyme

How to Search Courtesy of Danq
TC LymeNet Links for New Members
TC 50 Questions


Newbie's Lingo

Lyme Disease Audio Network
Dr. Joseph J. Burrascano's Treatment Guidelines
CDC Website on Lyme Disease
International Lyme and Associated Disease Society

Lyme Disease Symptoms
Rashes
Co-IinfectionsThanx M

Rose's 15 Facts for Newcomers
Making the Most of Your LLMD Visit
Camp A and Camp B, The Lyme Disease Contoversy
2nd Version Camp A Camp B

Why You Can't Trust Medical Journals Anymore
Something to share with friends and family members But You LOOK Good!

Labs
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Igenex Labs
Q-RIBb
Western Blot Info
FDA It is important that clinicians understand the limitations of these tests

Explaining Borreliosis (Lyme) Western Blot Tests
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Igenex Labs on the Western Blot
Melissa Kaplan's Lyme Website Explains Western Blot
Dr. C Explains Western Blot
- Not present
+ Low
++ Medium
+++ High
+/- Equivocal = indeterminate (there, but not as intense as Low)

Western Blot

Drug Interactions and Other Drug Info
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American Medical Women's Association Tiscali Reference Encyclopedia
Herxing
What Is a Herxheimer Reaction?
What Is Herxing?
The Herxheimer Reaction

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Ilads

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( No you don't always see a bite and if there's no bullseye the only way your going to be able to tell is (symptoms) and (((Maybe))) WB or lyme dot blot 3 day urine banged with abx's to free your antigens up for the test. )
See this ( . )thats the size of the larva stage tick...
Next nymph size... ( * )
Next is adult ( o ) to ( 0 )
Pretty small????? HUH

Marnies......... Ten Points Regarding Mg and Lyme Disease
In a Nutshell P1

In a Nutshell P2

Part1 Long over Due
Part2
Part3
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Part6
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Help with Meds


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Interested in what Trolls are?
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A copy of this is stored in computer Help section.

 


Posted by Carols4given (Member # 6859) on :
 
Thanks everyone who responded to my post for the advice given and all the sites given also. Looks like I have a lot of reading to do to educate myself on Lyme and get the correct treatment. Thanks again for all the help! God Bless, Carol
 


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