LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Newly Dx'ed with Lyme....

 - UBBFriend: Email this page to someone!    
Author Topic: Newly Dx'ed with Lyme....
Carols4given
Member
Member # 6859

Icon 5 posted      Profile for Carols4given     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi I'm new here and newly dx'ed with Lyme. I have been on doxycycline and cat's claw for 8 days now.

I started getting very achy about day 5 and was running a slight fever, also itchy all over. Are these typical side affects once on meds?

Also, I am going to a "naturalist" doc who did the Western blot test and dx'ed me. Would it be better to find a Lyme doctor or continue with my doc who I am very happy with in all other areas of my health care.

I have been reading here for a few days and want to thank you for being here with all the great info on Lyme.

Before being dx'ed a week ago I knew nothing about Lyme at all. Now I am learning all I can so that I can treat it properly, and know what it is I am up against.

Thank you in advance for any suggestions & info you have for me, and thanks for having such a site to educate people about Lyme. And why is there so little info on it publicaly????? You think if it was so previlant we would hear more about it. Carol


Posts: 24 | From U.S.A. | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338

Icon 1 posted      Profile for Carol in PA     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Carol, I'm so glad to see that you found your way over to Lymenet.

I don't have answers to your questions, but there are many people here on Doxycyline who may be able to help you.

Take care,
Carol



Posts: 6956 | From Lancaster, PA | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
orrn
LymeNet Contributor
Member # 6672

Icon 1 posted      Profile for orrn     Send New Private Message       Edit/Delete Post   Reply With Quote 
Carols4given,

Welcome! Sorry to hear you have LD! Your achiness sounds like a herx. It would make sense that you could run a fever from the inflammation of a herx.

I have always been on the other side of an elavated temp. I usually run about 97.9 to 98.1.

I just got my family doc to switch me over to Armour for my thyroid. I am going to try that.

I also itch alot, but have always contributed my itchiness to hypothyroidism.

I would also bet that a herx could cause itching too.

Just my 2 cents worth! All the knowledgable people will be along to give more info and explanation I'm sure!

I still have the "Lyme Brain" and have to read and re-read. Then if I'm lucky I can remember where I read it and can go re-read a third (or more) time when I can't remember what I read!

It does get better though! Hang in there! These guys are great here.

orrn


Posts: 239 | Registered: Dec 2004  |  IP: Logged | Report this post to a Moderator
liz28
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
Hi, Carol. I've only got a sec, but wanted to let you know the classic herx start time is on day 4 of a new treatment. So that's probably what is happening.

Anti-inflammatories, whether natural, prescription, or over the counter, can help with the discomfort. I just saw a new herbal treatment on the shelves, for example, for people who need COX-2 inhibitors but are giving up Vioxx and Celebrex.


IP: Logged | Report this post to a Moderator
Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707

Icon 10 posted      Profile for Melanie Reber   Author's Homepage         Edit/Delete Post   Reply With Quote 
Good evening Carol,

Welcome to LymeNet! It looks like you are getting a nice welcome from the crew.

You have come to the right place for help...we will do all that we can to get you headed on the road to recovery, OK?

It is great that your doc was able to diagnose you and is also willing to treat, but what you really need now is a thorough examination by a qualified doctor who specializes in Lyme and possible co-infections.

You can hop on over the seeking a doctor section and post there. Someone will get back to you shortly with a name of a Lyme Literate Medical Doctor (LLMD) soon. Perhaps your local doc would be willing to consult with your LLMD?

The achiness and fever are consistent with a Herxheimer reaction to the meds. This is a good thing. The itchiness however could be a slight allergy. It would be best to let your doc know this is happening, and keep a close eye on it, OK?

There are several Doxy Do's (or Don'ts):

-avoid milk and all dairy products within 2 hours of your abx - including ant-acids, many dairy products are hidden, so check labels.

-avoid all iron supplements within 2 hours of your abx. Otherwise the potency of the abx could be reduced. This is true of all drugs in the tetracycline family.

-avoid the sun- including protecting eyes and hands even in the car. Burns can happen very quickly.

-avoid laying down for at least half an hour to avoid esophageal burning.

-be sure to take with food.

-do not ever crush your meds.

-do a thorough drug interaction check with any other meds.

-be sure you are doing pro-biotics to replace the `good' bacteria' being killed by your abx.

-be sure you are following the special low-carb/ low-sugar diet.

-be sure to drink tons of water with fresh lemon.

-and...be sure to go easy on yourself...doxy is known as a tuff med...so give yourself a little break when needed.

For more information re: doxy treatment, please see Dr. B's guidelines...


If you read over the Camp A and Camp B paper, you will understand why there is so much controversy surrounding this illness.

I'm so pleased that you are reading and learning... It is so important that you try and read all that you can in order to educate yourself. We have to become our own best advocates for proper healthcare. Here are a few new member links with information to get you started.

Please let us know if there is anything that we can do!

My very best,
Melanie

LymeNet Links for new members: http://flash.lymenet.org/ubb/Forum1/HTML/009342.html

Dr. Joseph J. Burrascano's Guidelines: http://www.ilads.org/burrascano_1102.html

Rose's 15 Facts for Newcomers: http://flash.lymenet.org/ubb/Forum1/HTML/011977.html

Symptom Check List: http://flash.lymenet.org/ubb/Forum1/HTML/021063.html

Abbreviations for Lyme-speak: http://flash.lymenet.org/ubb/Forum1/HTML/020494.html

Making the most of your LLMD visit: http://flash.lymenet.org/ubb/Forum1/HTML/020605.html

Camp A and Camp B: http://flash.lymenet.org/ubb/Forum1/HTML/021395.html

Something to share with friends and family members: http://flash.lymenet.org/ubb/Forum3/HTML/008886.html

------------------
C O L O R A D O * S U P P O R T * S Y S T E M
[email protected]


Posts: 7052 | From Colorado | Registered: Mar 2003  |  IP: Logged | Report this post to a Moderator
treepatrol
Honored Contributor (10K+ posts)
Member # 4117

Icon 14 posted      Profile for treepatrol     Send New Private Message       Edit/Delete Post   Reply With Quote 
WELCOME To LYMENET

Here's more goodys! A typical response to newcomers.

Hi and WELCOME! Get a LLMD or at least Dr that is willing to learn about lyme. Borrelia Burgdorferi is a clinical diagnosis, based on symptoms and on your response to treatment. Good Luck, bumpy road ahead.

Post for a LLMD in Seeking a Doctor. Ps remember I am not a Dr, just a fellow sufferer.
Conflicts in Lyme

How to Search Courtesy of Danq
TC LymeNet Links for New Members
TC 50 Questions


Newbie's Lingo

Lyme Disease Audio Network
Dr. Joseph J. Burrascano's Treatment Guidelines
CDC Website on Lyme Disease
International Lyme and Associated Disease Society

Lyme Disease Symptoms
Rashes
Co-IinfectionsThanx M

Rose's 15 Facts for Newcomers
Making the Most of Your LLMD Visit
Camp A and Camp B, The Lyme Disease Contoversy
2nd Version Camp A Camp B

Why You Can't Trust Medical Journals Anymore
Something to share with friends and family members But You LOOK Good!

Labs
MDL
Igenex Labs
Q-RIBb
Western Blot Info
FDA It is important that clinicians understand the limitations of these tests

Explaining Borreliosis (Lyme) Western Blot Tests
Explanation of Western Blot Bands
Igenex Labs on the Western Blot
Melissa Kaplan's Lyme Website Explains Western Blot
Dr. C Explains Western Blot
- Not present
+ Low
++ Medium
+++ High
+/- Equivocal = indeterminate (there, but not as intense as Low)

Western Blot

Drug Interactions and Other Drug Info
Drug Digest
American Medical Women's Association Tiscali Reference Encyclopedia
Herxing
What Is a Herxheimer Reaction?
What Is Herxing?
The Herxheimer Reaction

Candidiasis

Ilads

ZIPZIP Thanks

IntestinalFlora

Check Diet Link Atkins Diet
Sexually Transmitted ???
Transmitted Through Sex?
Sex Question-Serious-Adult Content
Video On Demand: Blood Supply May Be Source Of Lyme Disease Infections
Good Site Canadian Lyme Disease Association
FDA on Lyme Testing


Legal Help
Legal Help
Legal Help
Legal Help
Legal Help

GreatSite
MedicalDictionary

Wealth of Info

Good Article

USA Support

SupportGroups Canada

Canada SupportGroups

SupportGroups Australia


( No you don't always see a bite and if there's no bullseye the only way your going to be able to tell is (symptoms) and (((Maybe))) WB or lyme dot blot 3 day urine banged with abx's to free your antigens up for the test. )
See this ( . )thats the size of the larva stage tick...
Next nymph size... ( * )
Next is adult ( o ) to ( 0 )
Pretty small????? HUH

Marnies......... Ten Points Regarding Mg and Lyme Disease
In a Nutshell P1

In a Nutshell P2

Part1 Long over Due
Part2
Part3
Part4
Part5
Part6
Part7

Canlyme MAG

Help with Meds


Vitamins you should Know

Tests Synonyms Guide

Lab Tests Looky

Blood Donor Info

Pregnancy
Pregnancy?
TC Link Pregnancy

Insurance SS Disability Help Minoucat Bunches of Goody's

How to apply Permethrin

Tick Testing

Herbs Be Careful
HerbsCancer Center
Neurologic Lyme
Neurologic Lyme
Neurologic Lyme
Interested in what Trolls are?
1.


2.
A copy of this is stored in computer Help section.


Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003  |  IP: Logged | Report this post to a Moderator
Carols4given
Member
Member # 6859

Icon 7 posted      Profile for Carols4given     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks everyone who responded to my post for the advice given and all the sites given also. Looks like I have a lot of reading to do to educate myself on Lyme and get the correct treatment. Thanks again for all the help! God Bless, Carol
Posts: 24 | From U.S.A. | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.