I would like to get a general idea what is going on in this aspect of our sickness. If possible please give answers in percentages for your monthly average spending (including treatments, travel etc if you have to pay for them yourself, skipped reimburses expenses), such as EMPLOYMENT - 10% FAMILY SUPPORT (spouse) 40% CONSUMPTION OF SAVINGS 50% Together it should add up to 100%.
In may case it is 58% family support, 40% consumption of savings (not much left). I am trying to do some paid work but so far it is not contributing much -it is about 2% from employment for the last month.
[This message has been edited by Areneli (edited 02 February 2005).]
Posted by Linda LD (Member # 6663) on :
nevermind...
[This message has been edited by Linda LD (edited 03 February 2005).]
Posted by Areneli (Member # 6740) on :
Thanks for sharing. So if I understand it correctly it is 100% employment and also some money borrowed?
Posted by treepatrol (Member # 4117) on :
[This message has been edited by treepatrol (edited 03 February 2005).]
Posted by hobokinite (Member # 6132) on :
A lot of consumption of savings as I relapsed and no loner work fulltime. I do however have an internet book site for rare and used books and am in the process of selling another screenplay. This will help.
Posted by lymiecanuck on :
.
[This message has been edited by lymiecanuck (edited 03 February 2005).]
Posted by liz28 on :
Until earlier this year, it was 1) my retired parents, who deserved a lot better, and 2) a graveyard shift bonehead job at a law firm.
Even with insurance, my out of pocket expenses have ranged from $200-350 per month.
Posted by lymesux (Member # 6248) on :
why do you ask these questions? out of curiosity?
Posted by TheCrimeOfLyme (Member # 4019) on :
Are you doing a study we arent aware of?
Posted by ConnieMc (Member # 191) on :
.
[This message has been edited by ConnieMc (edited 03 February 2005).]
Posted by beachcomber (Member # 5320) on :
Edited out.
[This message has been edited by beachcomber (edited 03 February 2005).]
Posted by artbyjessie2 on :
removing my response
i should have known not to answer -- naive gal that I am!
[This message has been edited by artbyjessie2 (edited 03 February 2005).]
Posted by Areneli (Member # 6740) on :
No, it is not curiosity - it is a real hunger for all possible information on the disease and its impact on us.
Posted by Tincup (Member # 5829) on :
Before sharing ANY personal information here or on the board...
Please note..
Some of our members have been threatened recently... and you may want to be careful.
Someone is gathering information and threatening Lyme Net members saying they are contacting people's insurance companies, disability income sources, etc.... and plan to report them for whatever they can... to do harm to them.
The type of information requested here is the kind that MAY backfire on you if you respond.
My suggestion is NOT to respond (this isn't vital information for ANYONE to have anyway)... and to edit out any personal information you have already posted.
Posted by James H (Member # 6380) on :
Would you like us to give you our Social Security numbers, bank accounts and pin numbers?
Just ask, we're gullible easy prey.
Posted by lymesux (Member # 6248) on :
Exactly - I don't think this is the kind of thing that people should be asking - and poor people who are too ill to think about it before answering, or who havent been involved in something like TC explained might be the ones who end up really losing in the end.
Though James if you want to give me your bank card number and pin I will take it
Posted by hopeful123 (Member # 3244) on :
so totally and completely an inapporpriate question
Posted by daniella (Member # 6753) on :
100% from ME...............
Nice question.
Why don't you ask us next if we are worth it?
Posted by groovy2 (Member # 6304) on :
I thought your question is ok. Before I got sick -- I made a good living. For a couple of years after I got sick I still made a good living. After about 6 years things started going down hill. If I count in infaltion --After being sick for 17 years I make about 20% of what I used to. I only can work part time-- and some times its hard to do that. My RX costs are low at the moment but I think they are going up soon --by about 5x--- maybe new meds. I now have a cool doctor who's fee's are very low-- But I am going to try a new doctor soon who I know is much more expensive. I can see in my future a continued downward sprial. I dont have insurance and the doctors I went to when I did have insurance said I was OK.---- I am usually to sick to spend money except for food and housing. I went to a party for the first time in 2 years a few days ago. I cant drink or really go anywhere so I dont spend much on fun. Lymes has really ruined my life. ----Jay---
Posted by SpdDrv (Member # 5861) on :
I don't see the point of your question is is all US, my husband and myself, that pays for our disease. It is his and my employment, our savings, and our lives that paid for this diease. My life and my husbands have been put on hold because of this disease. so 100% of my husband and myself pays for my disease. Nothing else and no one else. Most insurances and doctors don't even acknowledge this disease or we don't fall within thet scope of what they do acknowledge so we can't get help from anywhere else. It is simple no matter how you might break it down it is US that pays for our own disease. staci
Posted by GiGi (Member # 259) on :
Wow, you are nosy! -- I used to stand at the freeway intersections holding up a sign in one hand, a hat in the other. My husband joined me there later in the wheelchair when he got sick also!
Now I am trying to tell you a way to avoid that - to get well as we did. But sadly - you said "I never believe that"!
Don't believe it, fine; and please quit asking these personal questions. It is impolite, it is bad manners, it is one of those things one doesn't do. If you haven't learned that yet, you might want to start now. It's never too late to learn to respect one's fellowman.
That said, take care.
Posted by HEATHERKISS (Member # 6789) on :
I don't care for this question either. Posted by Kara Tyson (Member # 939) on :
I dont see a problem with the questions.
In fact, if you look at the Lyme Quilt people say how much they have spent on the illness.
I think it is interesting to note.
Right now my parents support me and my income from a severence package from a lay off.
I spent 33% of my allowance (from my parents) on medical bills.
Posted by yankee in black (Member # 4309) on :
Areneli,
Well, since you are nosey.....I'll just bragg away
Independent wealth beyond your wildest dreams
If you travel at all, by plane, train or automobile.....you are adding to it!
Walking would not add to the family firm...sadily
Posted by GEDEN13 (Member # 4151) on :
what's the matter scumbag?you and your storm trooper buddie's need to regroup and start a new plan..is that all youz can do? empty slander?
you know if you reply to me,folk's here will see the real you.
go back in your sewer...i don't care if you have lyme or not!
best reguard's to you and your's...the ever respectful,gary
p.s. oh! and church might not be a bad idea...
------------------
Posted by Areneli (Member # 6740) on :
Lyme is affecting us intellectually and physically. The purpose of this question was to demonstrate how functional we were with Lyme (can we work and support ourselves?), how well we can manage our assets, how good we are in obtaining disability payments, how supportive our families are.
I think the question is OK since it is fully anonymous. I wouldn't ask you this question in real life but the Internet does change the reality and makes this type of question acceptable. I wouldn't worry about hackers as they have other more interesting things to do.
As in many other questionnaires used here and there in the field of health that touch similar topics of money spent on treatment or related to income, some people refuse answers. Some, however, answer them without hesitation.
I don't plan to write a report on your answers.
Posted by 3greatkids (Member # 3838) on :
Who pays for this disease?
Well,first of all my children have paid dearly.They lost their mother for many months and she was not there to attend to their needs.So...after coming back from the dead I now must,make sure they stay away from drugs and pot and continue to put in their community service.
My husband paid,he lost a friend and watched in agony as she hugged the toilet and spent the night on the bathroom floor.thank God he stuck by her and stayed true to those vows,sickness and health and all that.
She lost her passion for life and is getting around to finding it.She paid big time on that front.
So how did I pay?Love,determination,friends.
Thank goodness,I did not have to beg, borrow or steal.We all pay,big time.
