Areneli
Frequent Contributor (1K+ posts)
Member # 6740
posted
Who pays for your disease?
I would like to get a general idea what is going on in this aspect of our sickness. If possible please give answers in percentages for your monthly average spending (including treatments, travel etc if you have to pay for them yourself, skipped reimburses expenses), such as EMPLOYMENT - 10% FAMILY SUPPORT (spouse) 40% CONSUMPTION OF SAVINGS 50% Together it should add up to 100%.
In may case it is 58% family support, 40% consumption of savings (not much left). I am trying to do some paid work but so far it is not contributing much -it is about 2% from employment for the last month.
[This message has been edited by Areneli (edited 02 February 2005).]
Posts: 1538 | From Planet Earth | Registered: Jan 2005
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Linda LD
Frequent Contributor (1K+ posts)
Member # 6663
posted
nevermind...
[This message has been edited by Linda LD (edited 03 February 2005).]
Posts: 1171 | From Knoxville, TN US | Registered: Dec 2004
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Areneli
Frequent Contributor (1K+ posts)
Member # 6740
posted
Thanks for sharing. So if I understand it correctly it is 100% employment and also some money borrowed?
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
[This message has been edited by treepatrol (edited 03 February 2005).]
Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003
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posted
A lot of consumption of savings as I relapsed and no loner work fulltime. I do however have an internet book site for rare and used books and am in the process of selling another screenplay. This will help.
Posts: 462 | From Newnan, GA | Registered: Aug 2004
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lymiecanuck
Unregistered
posted
.
[This message has been edited by lymiecanuck (edited 03 February 2005).]
Areneli
Frequent Contributor (1K+ posts)
Member # 6740
posted
No, it is not curiosity - it is a real hunger for all possible information on the disease and its impact on us.
Posts: 1538 | From Planet Earth | Registered: Jan 2005
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Before sharing ANY personal information here or on the board...
Please note..
Some of our members have been threatened recently... and you may want to be careful.
Someone is gathering information and threatening Lyme Net members saying they are contacting people's insurance companies, disability income sources, etc.... and plan to report them for whatever they can... to do harm to them.
The type of information requested here is the kind that MAY backfire on you if you respond.
My suggestion is NOT to respond (this isn't vital information for ANYONE to have anyway)... and to edit out any personal information you have already posted.
posted
Exactly - I don't think this is the kind of thing that people should be asking - and poor people who are too ill to think about it before answering, or who havent been involved in something like TC explained might be the ones who end up really losing in the end.
Though James if you want to give me your bank card number and pin I will take it
groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
I thought your question is ok. Before I got sick -- I made a good living. For a couple of years after I got sick I still made a good living. After about 6 years things started going down hill. If I count in infaltion --After being sick for 17 years I make about 20% of what I used to. I only can work part time-- and some times its hard to do that. My RX costs are low at the moment but I think they are going up soon --by about 5x--- maybe new meds. I now have a cool doctor who's fee's are very low-- But I am going to try a new doctor soon who I know is much more expensive. I can see in my future a continued downward sprial. I dont have insurance and the doctors I went to when I did have insurance said I was OK.---- I am usually to sick to spend money except for food and housing. I went to a party for the first time in 2 years a few days ago. I cant drink or really go anywhere so I dont spend much on fun. Lymes has really ruined my life. ----Jay---
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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posted
I don't see the point of your question is is all US, my husband and myself, that pays for our disease. It is his and my employment, our savings, and our lives that paid for this diease. My life and my husbands have been put on hold because of this disease. so 100% of my husband and myself pays for my disease. Nothing else and no one else. Most insurances and doctors don't even acknowledge this disease or we don't fall within thet scope of what they do acknowledge so we can't get help from anywhere else. It is simple no matter how you might break it down it is US that pays for our own disease. staci
Posts: 220 | From Louisiana | Registered: Jun 2004
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
Wow, you are nosy! -- I used to stand at the freeway intersections holding up a sign in one hand, a hat in the other. My husband joined me there later in the wheelchair when he got sick also!
Now I am trying to tell you a way to avoid that - to get well as we did. But sadly - you said "I never believe that"!
Don't believe it, fine; and please quit asking these personal questions. It is impolite, it is bad manners, it is one of those things one doesn't do. If you haven't learned that yet, you might want to start now. It's never too late to learn to respect one's fellowman.
That said, take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
I don't care for this question either. Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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Kara Tyson
Frequent Contributor (5K+ posts)
Member # 939
posted
I dont see a problem with the questions.
In fact, if you look at the Lyme Quilt people say how much they have spent on the illness.
I think it is interesting to note.
Right now my parents support me and my income from a severence package from a lay off.
I spent 33% of my allowance (from my parents) on medical bills.
Areneli
Frequent Contributor (1K+ posts)
Member # 6740
posted
Lyme is affecting us intellectually and physically. The purpose of this question was to demonstrate how functional we were with Lyme (can we work and support ourselves?), how well we can manage our assets, how good we are in obtaining disability payments, how supportive our families are.
I think the question is OK since it is fully anonymous. I wouldn't ask you this question in real life but the Internet does change the reality and makes this type of question acceptable. I wouldn't worry about hackers as they have other more interesting things to do.
As in many other questionnaires used here and there in the field of health that touch similar topics of money spent on treatment or related to income, some people refuse answers. Some, however, answer them without hesitation.
I don't plan to write a report on your answers.
Posts: 1538 | From Planet Earth | Registered: Jan 2005
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3greatkids
Frequent Contributor (1K+ posts)
Member # 3838
posted
Who pays for this disease?
Well,first of all my children have paid dearly.They lost their mother for many months and she was not there to attend to their needs.So...after coming back from the dead I now must,make sure they stay away from drugs and pot and continue to put in their community service.
My husband paid,he lost a friend and watched in agony as she hugged the toilet and spent the night on the bathroom floor.thank God he stuck by her and stayed true to those vows,sickness and health and all that.
She lost her passion for life and is getting around to finding it.She paid big time on that front.
So how did I pay?Love,determination,friends.
Thank goodness,I did not have to beg, borrow or steal.We all pay,big time.
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