I am trying to gather "numbers" of things for research purposes.
A simple yes or no is what I am looking for.. no details.
Thanks!
Posted by Melanie Reber (Member # 3707) on :
yes
------------------ C O L O R A D O * S U P P O R T * S Y S T E M [email protected]
Posted by Aniek (Member # 5374) on :
No
Posted by laserred (Member # 6796) on :
Yes
Posted by Ms. Myoclonus (Member # 6750) on :
yes
Posted by Paisley (Member # 6502) on :
yes
Posted by Corinne E (Member # 4670) on :
Yes
Posted by yankee in black (Member # 4309) on :
Tinny Girl,
DiD you have to remind me--it's a hush-hush topic at my house
YES
Drives me insane!
Posted by HaplyCarlessdave (Member # 413) on :
YES- I lost a substantial amount of income, to the point of crisis, since I'm starting with a dsability to begin with.... DaveS
[This message has been edited by HaplyCarlessdave (edited 27 February 2005).]
Posted by shadow13 (Member # 1467) on :
That would be a big YES.
Posted by dontlikeliver (Member # 4749) on :
Ten years worth of YES.
DLL
Posted by shassler64 (Member # 3479) on :
yes
Posted by lymesux (Member # 6248) on :
yup
[This message has been edited by lymesux (edited 27 February 2005).]
Posted by Gabrielle (Member # 5329) on :
Me: NO Hubby: YES
So total: YES
Gabrielle
Posted by cigi (Member # 6600) on :
yes
Posted by lymemomtooo (Member # 5396) on :
Yes..Does it still count if we used it for medical deductions on income tax? However we only estimated so am sure we didn't count everything.
Posted by Lymetoo (Member # 743) on :
Absolutely YES An incredible amount of income has been lost over the past 11 yrs.
------------------ oops! Lymetutu
Posted by DC (Member # 6633) on :
Yep and still losing $.
Posted by CA quest (Member # 6827) on :
yes!
Posted by duramater (Member # 6480) on :
yes.
Posted by Cheryl (Member # 75) on :
Huge YES
Posted by Nestle (Member # 878) on :
YES
Posted by lynnic86 (Member # 3634) on :
Definite YES...on disabiliy... not even half of previous income
Posted by Foggy (Member # 1584) on :
Tin, is this in regards to the Class action you contemplated in '01?
Posted by brighty (Member # 6808) on :
In the apst 5 years I have lost $350,000 in gross income plus loss of pensionable service and benefits.
How cna you tell I have lmye?
However there have been positive benefits.
I have been home watching and available for my autistic son. He is 7 now and is high functioning autistic, just doesn't understand social cues or situations.
My wife also has many symptoms of lyme and we are thinking of having her checked by a llmd. I have an appointment with this llmd today and will be starting on abx tomorrow.
Posted by kam (Member # 3410) on :
Yes. (Where is that graphic of someone rolling on the floor laughing)
Posted by Mathias (Member # 5298) on :
Yes
Posted by ShelleyA (Member # 49) on :
Yes
Posted by bg (Member # 46416) on :
yes,
over 6 yrs. of work and NO SS disability benefits awarded to date.....arg!
Betty G., Iowa
Posted by lightfoot (Member # 2536) on :
Yes.....10 years plus
------------------ C O L O R A D O * S U P P O R T * S Y S T E M [email protected]
"A friend is someone who knows the song in your heart and can sing it back to you when you have forgotten the words". Unknown
Posted by HEATHERKISS (Member # 6789) on :
affirmative
Posted by Coyotecrazy (Member # 6707) on :
No. I haven't actually stopped receiving income, just spent a lot of it on doctor visits, tests, meds, etc. So ..... is that a yes ?
Posted by sofy (Member # 5721) on :
es, I lost my ability to work and struggle to exist each day
Posted by vandeb (Member # 6345) on :
definitely yes.....had to give up my job of 30 years.......still waiting for disability......
------------------ Debbie V.
Posted by deb obrien (Member # 5239) on :
quote:Originally posted by Tincup: I am trying to gather "numbers" of things for research purposes.
A simple yes or no is what I am looking for.. no details.
Thanks!
YES
Posted by kam (Member # 3410) on :
quote:Originally posted by bettyg: yes,
over 6 yrs. of work and NO SS disability benefits awarded to date.....arg!
Betty G., Iowa
Betty,
When I read your post, I thought of Bernie the Attorney with the CFS Association.
He helps with the wording for SSDI I believe and has a wife with CFS/fibromalgia who is President of the organization.
Since I have had two others who came down sick at work the same time I did and who received workmen's comp and medical retirement with a CFS/fibro label....it might be the door to knock on.
I am just hoping I haven't missed out because I went for getting my health back instead of focusing on getting workmen's comp and medical retirement as they did.
I had no idea this thing would be such a big battle.
Bernie's number is 617 227 2020.
He also can be reached via the web site for CFIDS.
There also is an attorney who helps lyme patients with obtaining SSDI but I don't recall who that is.
You may all ready now these things. Sorry, if I am being redundant.
Posted by monkeyshines (Member # 6406) on :
No.
Not yet.
Posted by Pitnum (Member # 4906) on :
A big YES!
Posted by long2bbetter (Member # 6792) on :
Yes! Yes! Yes!
Posted by arg82 (Member # 161) on :
A big yes!! So far 2 + years and counting.....I'm just wondering when to file diability???? I don't want to give up hope, but we are ALL starting to suffer $$$$, my whole family.
How do you know when to file?
Posted by JillF (Member # 5553) on :
Yes Yes Yes Yes
and it sucks!
Posted by liz28 on :
I lost a beloved social crowd of 100-300 people, give or take a few stragglers, who were the best friends anyone could have. I used to race home from work, never knowing which one of these fabulous people would be free to see a movie, or a play, or have dinner or just a warm conversation over hot coffee.
I lost the love of my life, who moved to LA, offhandedly asked if I'd move there, too, then got set up on a blind date there and married the person. Can't say if the story would be different had I not been disabled for four years, but you never know...
I lost an entry-level job as a news assistant at the Wall Street Journal, which already felt like family, and I lost many members of my real family. But I freelanced from home, and got into journalism school. If I hadn't risked doing that, I'd have nothing now.
I worked for years as a graveyard shift secretary as a law firm, since that was the only job I could handle with Lyme, bart and babs. That panned out to about $13k a year after taxes; an urban cub reporter makes between $30-50k.
Every penny I had over the past four years went to rent, bills, school supplies, and medical expenses. My parents helped out by buying life insurance with their life savings. My father and I cannot have a convesation with his bitterness spilling out.
Posted by treepatrol (Member # 4117) on :
Yes Yes Yes
Posted by TheCrimeOfLyme (Member # 4019) on :
yes
Posted by ShadowHawk (Member # 6263) on :
OMG...of course I have.
That's a very BIG YES.
Posted by Lymelighter (Member # 5310) on :
a rhetorical question, to say the least...
Posted by ConnieMc (Member # 191) on :
yes
Posted by Kathi (Member # 2261) on :
yes
Posted by map1131 (Member # 2022) on :
yes!
Pam
Posted by hopeful123 (Member # 3244) on :
yes, yes, yes
Posted by lymebrat (Member # 3208) on :
Yes.
Posted by SteveInMinnesota (Member # 6661) on :
Yes, I've lost my billfold twice....
Sorry, just kidding. The real answer is "no" so far, but it is touch-and-go each day. I'm waiting for the day when my boss calls me into a 4 hour meeting and I start muttering gibberish and pass out...
Posted by riversinger (Member # 4851) on :
yes
Posted by Tincup (Member # 5829) on :
THANKS.. we are getting somewhere!
I will count up later.. once we get 100 folks to respond.
Keep the answers coming!
PLEASE!
Posted by Kari (Member # 4154) on :
yes...quite a bit.
Posted by JillF (Member # 5553) on :
I stopped working when I had my son.
I tried to go back but I just couldn't - both physically and emotionally.
I now realize that partly it had to do with Lyme - that is why I was so tired, sick, in pain, anxious, etc.
I don't think I could go back now even if I wanted. Too stressful for me. I feel so bad most days that I'd be fired for taking too many days off. My brain doesn't work right and I have no memory. Some days I can't even drive - and I definitely cannot drive at night do to my bad night vision.
Heck, I don't think I'd be able to be competent long enough for the interview....
So, I am missing at least $2k a month for not being able to go back to work.
Posted by minoucat (Member # 5175) on :
Yes, for the hubby and for me.
Posted by MADDOG (Member # 18) on :
I have lost thousands of bucks.I work on a commission basis ,and I can't work nearly as hard so i loose bigtime. MADDOG
Posted by lhm312 on :
Yes
Posted by teri64 (Member # 6971) on :
Yup
Posted by James H (Member # 6380) on :
Yes.
Posted by SteveInMinnesota (Member # 6661) on :
quote:Originally posted by Tincup: I will count up later.. once we get 100 folks to respond.
Well I have only seen 4 "no" answers so far. I would think that it would be virtually impossible to have Lyme and not have it affect your income. I responded "no" but the truth is that I've gone from a "top performer" to a "barely hanging on". Although I have not lost or quit my job, my performance due to Lyme will definately affect my long-term earning potential.
Posted by Trillian (Member # 6857) on :
Yes. Definitely.
Posted by cmichaelo (Member # 5873) on :
Yes.
Posted by islandgirl (Member # 5914) on :
From Canada (do we count in this survey?)
A definate YES.
NO INCOME PAST 1.5 YEARS, LOST MY BUSINESS.
Posted by robi (Member # 5547) on :
yes
Posted by Wink9 (Member # 4516) on :
YES, I now make 1/3 of what I made before Lyme.
Posted by Beverly (Member # 1271) on :
Yes
Posted by Kira (Member # 2676) on :
YES
Posted by LymeinME (Member # 6849) on :
yes
Posted by snowboarder (Member # 6346) on :
Hello Tincup,
Yes thousands and thousands. I have a home based business and am still able to have an income but lost my big corporate job that paid the big bucks!
Posted by Kaykay (Member # 6732) on :
No, but have no vacation either
Posted by tequeslady (Member # 6832) on :
Yes
Posted by lymemomtooo (Member # 5396) on :
Yes, a couple of years ago my daughter had a part time job and was able to make approx $75 a week..She is too ill to consider any type of job at the moment.
Posted by josiestrann (Member # 5319) on :
loss of income?! YES! And heres a detail! I've lost over $36ooo a year!!!
Posted by nan (Member # 63) on :
yes
Posted by lymiecanuck on :
YES!!!
All of it.
Lymiecanuck
Posted by jewood69 (Member # 5945) on :
No
Posted by lymemomtooo (Member # 5396) on :
Yes, indirectly..Can't work due to daughters illnesses..
Posted by Lyddie on :
Yes - from the illness of self and three children.
Posted by needleseye (Member # 6037) on :
yes
Posted by MonaR (Member # 6972) on :
Yes! Ongoing loss
------------------ Ramona
Posted by tickitout (Member # 6982) on :
YES
Posted by Rene (Member # 4870) on :
yes
Posted by Lymeblue (Member # 6897) on :
I've lost the hability to sell homes . I do it now occasionally....is difficult to drive my buyers...the math for me is more difficult..
Posted by lymeam2pm (Member # 6103) on :
No but I missed out on most of my son's senior year in high school by being too sick to enjoy his time at home, etc.
Peggy
Posted by Walnut (Member # 6585) on :
Yes
Posted by lymemomtooo (Member # 5396) on :
up
Posted by Lymetoo (Member # 743) on :
I already answered yes.....just figured it up. A conservative estimate would be $450,000 and still counting. That's lost income only, no other expenses counted.
------------------ oops! Lymetutu
Posted by lymemomtooo (Member # 5396) on :
up
Posted by lymemomtooo (Member # 5396) on :
Foggy..this is to help with documentation for the upcoming MD bills, I think...Basically to get legislation to save lives...
Posted by cindy_leigh (Member # 3514) on :
yes
Posted by lymemomtooo (Member # 5396) on :
up
Posted by paulscha (Member # 6334) on :
YES
Posted by lymeHerx001 (Member # 6215) on :
a big YES
Posted by SuZ-Q (Member # 5903) on :
Yes, and my daughter is the one with lyme.
Posted by NP40 (Member # 6711) on :
Yes !
Posted by proud pup (Member # 4152) on :
YES, Am self-employed and $1 short of losing everything.
Posted by bg (Member # 46416) on :
too far down for those who have NOT responded to date...
Betty G.
Posted by hatsnscarfs (Member # 6562) on :
YES
Posted by pq (Member # 6886) on :
yes
Posted by sarahjane (Member # 6517) on :
yes
Posted by sapphire101 (Member # 6638) on :
Yes
Posted by AL76 (Member # 6576) on :
YES
Posted by Lymiedad on :
YES for me YES for my wife
Posted by bunny1215 (Member # 4382) on :
I feel very fortunate to be able to say NO.
Posted by Dream4Distance (Member # 7005) on :
Yes!
Posted by rcmdesigns (Member # 5922) on :
yes!
Posted by Tincup (Member # 5829) on :
STOP HERE..
THANKS!
Will post answers later gators.
Posted by TinaAStPierre (Member # 7120) on :
YES
Posted by burnbitter (Member # 7088) on :
quote:Originally posted by HeadPain: A big yes!! So far 2 + years and counting.....I'm just wondering when to file diability???? I don't want to give up hope, but we are ALL starting to suffer $$$$, my whole family.
How do you know when to file?
Immediately. You should have filed the first day you stopped working. But can't be helped now. You can start it on the website. I highly recommend a disability lawyer though, I didn't get approved for 3 years and about halfway through got a lawyer. I think that it made a difference. Also having good records of all your medical stuff is vital. You get retroactively rewarded to the date you filed. (or they judge the date that your diability began) medicare sucks though.
Posted by burnbitter (Member # 7088) on :
Yes 3.5 years, would have been more but I like to eat.
Posted by mil (Member # 5774) on :
yes
Posted by Brite (Member # 915) on :
yes
Posted by Michelle M (Member # 7200) on :
No!
Michelle M
Posted by I Have Lyme Etc (Member # 7439) on :
Yes
Posted by surg (Member # 6937) on :
Oh Yes!
Posted by bg (Member # 46416) on :
Hi Tincup,
Since we've gotten so many more members than when you initially started the 4-5 polls to take to your state legislature, here's an idea!
Would you copy the 4-5 poll links & naming them and post on TREEPATROL'S newbie links so he can incorporate them into the newbie links so others can read the valuable answers to the questions you raised?
I'd read 2 of your questions that you STOPPED because you had your info by your deadline for the legislature.
Thanks TC & Treepatrol.
bettyg
Posted by Erica (Member # 4619) on :
YES!
Posted by deja vu (Member # 7656) on :
10 years now!
Posted by aliyalex (Member # 6976) on :
yes
Posted by lymeloco on :
YES
Posted by 2bostons (Member # 6249) on :
Hey Tincup...
I had to add my yes too..I was a graduate student and I also had a job...I had to leave both for over a year..I didn't collect much disability from the state(6weeks) and I didn't have any disability benefits through work..
Lyme bills really add up!!!!!!!!
Posted by Mo (Member # 2863) on :
God yes...
Posted by DJP (Member # 5893) on :
No, I'm a stay at home mom
Posted by no2lyme (Member # 6978) on :
That would be a he** yes!
Posted by Andie333 (Member # 7370) on :
Yes
Posted by Maryland Mom (Member # 2043) on :
Hi Tinny, Me, YES. Husband, not yet, but considering disability.
Posted by seibertneurolyme (Member # 6416) on :
Hubby -- Yes -- Unable to work since 2/13/01
Been waiting over a year for Social Security Disability hearing to be scheduled.
Bea Seibert
I do not have a tick-borne illness, but I have also been unable to work as hubby requires full time care.
Posted by believe3 (Member # 6216) on :
yes
------------------ Peace and Love, Merrie Believe in the power of your spirit..for it will carry you through the darkest hours of your life
Posted by zing (Member # 7124) on :
yes
Posted by Tracy9 (Member # 7521) on :
YES!
Posted by digirl02 (Member # 7177) on :
yes
Posted by perplexed (Member # 1913) on :
Yes!!!
Posted by Chocolat (Member # 5138) on :
YES
Posted by Amanda24 (Member # 7227) on :
YES!!!!!
Posted by JesusisLord (Member # 5776) on :
Yes!!!
Posted by caat (Member # 2321) on :
YES!
Posted by Korinne21 (Member # 7472) on :
YES
Posted by Kate D (Member # 7051) on :
Yes. Can only work very part time. Almost a decade now (diagnosed one year ago).
- Kate D.
Posted by Neil M Martin (Member # 2357) on :
Yes
Posted by cawpo (Member # 5744) on :
Yes! Also my husband as at times since 12/03 I have needed 24 hour care he has had to take care of me. So he has been unable to work Cheryl
Posted by Hagen (Member # 948) on :
Yes!!!!!!!!!!!!!!!!!!!!11
Posted by Krispy (Member # 5088) on :
Ha Ha Ha, That is the funniest saddest question anyone has asked me in a while! Yes I've lost income and my personality, my perspective, social life, i've aged rapidly blah, blah, blah . you've either heard it or experienced it before. If I didn't have parents that own a multi unit home I would be living on the sidewalk -Even though I work 32 hours per week- which has been exhausting. Every year I feel better. going on 8 years and I know I have better and better things to look forward to. One thing that i really look forward to is getting better so that people will see that i'm not lazy and stupid by nature and i can say to them, "see now that I'm well I'm no longer lazy and stupid". Keep in mind that i have made about 20 speeling corrections in this poaragraph just now.
Posted by lyme_suz on :
oops! 
