This is topic How do you know if it is late lyme or early lyme? in forum Medical Questions at LymeNet Flash.


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Posted by threefries (Member # 6959) on :
 
My symptoms are:

tingling (brief)
muscle (bone?) pain everywhere
shoulder and neck pain
lightheadedness (brief)
possible heart arythmia
tics and muscles twitches (small)
some brain fog (again, brief)

I don't know when I could have recently been infected. I live in Georgia.

However, I used to live in Wisconsin - and camp there every summer.

Any one the difference?

PS I know I ask too many Q's
 


Posted by NP40 (Member # 6711) on :
 
Early lyme, Threefries.

You're not even old enough to be late stage.

Wisconsin uh ? I live near Wausau.

Whereabouts did you vacation ?

Wisconsin is loaded with ticks, top ten for sure.
 


Posted by Lymetoo (Member # 743) on :
 
quote:
Originally posted by threefries:

PS I know I ask too many Q's

It's healthy! Besides, we're all "bonding!"

------------------
oops!
Lymetutu

 


Posted by Recipegirl05 (Member # 6729) on :
 
Hi Threefries,

Camping in Wisconsin?


That should tell your doctor everything.


Others will visit with more expert advice than me, but I've read that some have neuro symptoms early on. It depends on so many variables like patient immunity, whether the tick was carrying other infections, such as Babesia, Bartonella & Erlichiosis and other factors.


Babesia and Bartonella can both cause neuro problems, along with the Lyme bacteria.


For some, it seems to go to the weakest areas of our body; or, where there's been an old injury.

Hope this helps a little.

Take Care,
Jan
 


Posted by threefries (Member # 6959) on :
 
I went to the Dells. I'm not even sure where that is. i was so little

so, it's not likely I've had this for years?

I mean, I haven't been camping there for several years, so....
 


Posted by NP40 (Member # 6711) on :
 
quote:
Originally posted by threefries:
I went to the Dells. I'm not even sure where that is. i was so little

so, it's not likely I've had this for years?

I mean, I haven't been camping there for several years, so....


The Dells is a kid's paradise. Great time, but watch the wallet.
Your symptoms are almost identical to my son's and he was infected last Aug/Sept.

When did your symptoms first manifest ?


 


Posted by Aniek (Member # 5374) on :
 
There really is no easy way to tell. I know mine is late stage because I had a bug bite with a typical rash when I was 12. But, it took about 18 months for any other symptom to arise. Then it was kind of in remission for many years.

If you put together a chronological medical history, it may help you pinpoint a potential infection point. You may have been sick with a sign of infection, or had a bad flu with really bad muscle aches. Or there was maybe a time when you just seemed under the weather for a few months.

I'd recommend working with your mother on it, since she'll remember things from your childhood that you won't. You could probably get medical records from your pediatrician too. The history is also a good thing to bring with you to doctors.

 


Posted by bg (Member # 46416) on :
 
Also, buy the NEW 8-04 publication from the LDA:

LYME DISEASE UPDATE: Science, Policy, and Regulations

It's paperbook either $12 or $15 includes postage. You will learn so much in there.

It answers the early/late stage, and written in user friendly language.

The new children's lyme book, ages 8-12, was good too, and I learned a few things the LD UPDATE did not have in it. $6 includes postage ... both on LDA site, and perhaps shown on this site. I haven't checked.

Betty G.
 


Posted by James H (Member # 6380) on :
 
quote:
Originally posted by threefries:
My symptoms are:

tingling (brief)
muscle (bone?) pain everywhere
shoulder and neck pain
lightheadedness (brief)
possible heart arythmia
tics and muscles twitches (small)
some brain fog (again, brief)

I don't know when I could have recently been infected. I live in Georgia.

However, I used to live in Wisconsin - and camp there every summer.

Any one the difference?

PS I know I ask too many Q's


All of the heart arythmia and some of the muscle pain may well go away if you start taking a little Magnesium. Mg is a critical electrolyte, and the Borrelia seem to deplete it. I started to get heart rhythm problems that were scaring me (might it just STOP??) and the Mg fixed it.

You might have to go to a good vitamin store to find the Magnesium Citrate or Maleate forms, but even then it shouldn't be very expensive.

Mg is so important to Lymies and we can get so depleted that sometimes it is given in the form of a big injection in the buttock if they can't get the levels up enough orally for some reason. (I say this just to emphasize its importance.) Muscles and nerves cannot work right without it... including the heart.

Not to suggest taking massive doses... just a small amount according to label directions is probably sufficient and is harmless if you don't need it.

Get some of the sublingual B vitamin drops at Walgreens and try them. You might find they help some of the neuro symptoms and the fog and tiredness. The B12 is very hard to absorb orally, and taking antibiotics makes that worse. That is why some of us get it in shots if it helps. (They are small and painless.)

Note this from Tincup's post about diagnosing MS:
http://flash.lymenet.org/ubb/Forum1/HTML/032150.html

It is critical to exclude other diseases that can mimic multiple sclerosis, including vascular disease, spinal cord compression, vitamin B12 deficiency, central nervous system infection (e.g., Lyme disease, syphilis), and other inflammatory conditions

There are Lyme and probably Babesia and 2 strains of Malaria clear across the South too. We are pretty sure we got ours locally in Texas.

It may be the STARI strain though, which is less apt to be picked up by the poorly designed Lyme tests that are only sensitive to strains from the Northeast.

[This message has been edited by James H (edited 05 March 2005).]
 


Posted by James H (Member # 6380) on :
 
Here is some information on the strain of Borrelia one is likey to get living in the South... Borrelia lonestari or "STARI".
http://www.texaslyme.org/stari.html

This short article is a good one to print out and use to explain the situation to family and friends as it covers alot in plain English in a few words, and mentions urban and suburban settings and Georgia specifically.

You will find the very symptoms you list, as well as common misdiagnosis as MS, and difficulty getting poorly designed tests to pick up this strain.

This is a good one to print out and use like a handout when you need it.

Early or late? It is hard to know unless you remember a bite. It can progress so slowly for many years, or even stay dormant.

From what you describe I would expect you to see improvement fairly soon with treatment. Your symptoms and their severity sound kind of similar to ours.

My wife and I have seen alot of improvement already, and we are just on oral Minocycline and a few basic nutritionals. Her feet and sometimes her hip had burning pain all the time for 2 years, and she thought she was developing arthritis.

Her "arthritis" is GONE already as are my headaches.

You will get feeling better too.
 




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