Now to the question, could I have been misdiagnosed? Is there a chance that they didn't catch it in the battery of tests they gave me? The symptoms continue today, hives, nausea, dizziness, muscle pain and fatigue, and swollen glands. The other thing is that I am recently married and I have read that Lyme can be passed on. How infectious is it?

Thanks so much for any advise!
 

1. Unexplained fevers, sweats, chills, or flushing
2. Unexplained weight change--loss or gain
3. Fatigue, tiredness, poor stamina
4. Unexplained hair loss
5. Swollen glands: list areas____
6. Sore throat
7. Testicular pain/pelvic pain
8. Unexplained menstrual irregularity
9. Unexplained milk production: breast pain
10.Irritable bladder or bladder dysfunction
11.Sexual dysfunction or loss of libido
12.Upset stomach
13.Change in bowel function-constipation, diarrhea
14.Chest pain or rib soreness
15.Shortness of breath, cough
16.Heart palpitations, pulse skips, heart block
17.Any history of a heart murmur or valve prolapse?
18.Joint pain or swelling: list joints_____________
19.Stiffness of the joints, neck, or back
20.Muscle pain or cramps
21.Twitching of the face or other muscles
22.Headache
23.Neck creeks and cracks, neck stiffness, neck pain
24.Tingling, numbness, burning or stabbing sensations, shooting pains
25.Facial paralysis (Bell's Palsy)
26.Eyes/Vision: double, blurry, increased floaters, light sensitivity
27.Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
28.lncreased motion sickness, vertigo, poor balance
29.Lightheadedness, wooziness
30.Tremor
31.Confusion, difficulty in thinking
32.Diffculty with concentration, reading
33.Forgetfuiness, poor short term memory
34.Disorientation: getting lost, going to wrong places
35.Difficulty with speech or writing
36.Mood swings, irritability, depression
37.Disturbed sleep-too much, too little, early awakening
38.Exaggerated symptoms or worse hangover from alcohol

------------------
oops!
Lymetutu

 

However I can give you a couple of things. Others will be along to help soon.

Break up your lines of text as much as possible, some lymies can't read it all squished up because of vision problems.

If you make your title more specific like "could this be lyme after all these years?" you will get more responses faster.

Also, if you have specific q's you will get those answered easier that way.

Someone here will post a list of links and reading material. Print out the list of links and as you read them, check them off. There is a lot to read.

Now, about your question. Yes, it could be lyme. It often goes undx'd or is misdx'd as I am currently finding out.

Good luck in your search.

 

quote:

---

Originally posted by sd:

Now to the question, could I have been misdiagnosed?
Is there a chance that they didn't catch it in the battery of tests they gave me?

---

YES!
and YES!

I was diagnosed with FM 25 yrs ago. I also have "permanently enlarged lymph nodes." I only found out 4 1/2 yrs ago that I have Lyme disease.

The tests for Lyme are very inaccurate....MUCH more likely to show false negatives than to show false positives.

The labs that are used by most drs are even worse than the tests for Lyme. They miss most Lyme infections.

Lyme can be passed on to children in utero. There are ways to prevent this, but there's no sure-fire way.

It can also be passed on to a spouse or sexual partner.

Here are some links for you. Happy reading!

and welcome!!

Tincup's Links for new members
http://flash.lymenet.org/ubb/Forum1/HTML/009342.html

Dr. Joseph J. Burrascano's Guidelines http://www.ilads.org/burrascano_1102.htm

Rose's 15 Facts for Newcomers http://flash.lymenet.org/ubb/Forum1/HTML/011977.html

Camp A and Camp B http://flash.lymenet.org/ubb/Forum1/HTML/021395.html

Abbreviations for Lyme-speak
http://flash.lymenet.org/ubb/Forum1/HTML/020494.html

Making the most of your LLMD visit
http://flash.lymenet.org/ubb/Forum1/HTML/020605.html

Success Stories http://flash.lymenet.org/ubb/Forum1/HTML/022173.html

Western Blot explanation: http://flash.lymenet.org/ubb/Forum1/HTML/022767.html

The cause and spread of Lyme http://flash.lymenet.org/ubb/Forum1/HTML/032259.html

More info: http://www.ilads.org/

Lyme Wars http://www.wildernetwork.org/Lyme_Wars.html

Lyme Disease State Info http://www.lymeinfo.net/support.html

------------------
oops!
Lymetutu

 

Duh.

I have 16 of the 18 trigger points but almost anywhere you touch me hurts - not just the trigger points. I'd say 98% of my body hurts if you touch it....

I went through twelve different doctors, including an infectious disease doc (ID), who all either never thought Lyme could be the cause of all my symptoms or they ruled out Lyme due to negative tests.

I have not once tested positive for Lyme.

The only odd test result I've had was my C-Reactive Protein (CRP). My test has been 10+ times higher than it should be. Noone could ever figure out why (it is at it's lowest now that I've been on ABX for 2 months).

I am being treated for Bart, Babs and Lyme.

My husband is showing signs of Lyme right now. I believe Lyme is sexually transmitted. I'm sure you could do a search and see the research and information yourself.

Lyme can be given to in utero (sp?) and in breast milk to your child. I had no idea I had Lyme until after my son was born. He has yet to show any symptoms, thank the Lord.

I have had 41 symptoms so far. My muscle spasms, stabbing pains, electric shock pains and muscle twitches are starting to fade. I still have alot of pain (stiffness, pulled muscle feeling, bone/achy pain, flu-like pain, etc), dizziness, lightheadedness, loss of balance, night vision problems, over-extended visions, blurriness, problems focusing, exhaustion and fatigue, sleeping problems, sore throats, nausea and memory/concentration problems....