posted
I was diagnosed with Fibromyalgia my senior year of high school, they ran a ton of tests at the time, and that is what they came up with to explain my fatigue and pain among other symptoms. But as I am getting older and taking charge of my health I am thinking that they overlooked my permanently enlarged lymph nodes among other symptoms that do not seem to fit FM. And then as I look back headaches and the like really started in middle school, and I know that I had a really bad tick bite on my scalp when I was around 10, but I am not sure if there was a bullseye rash.
Now to the question, could I have been misdiagnosed? Is there a chance that they didn't catch it in the battery of tests they gave me? The symptoms continue today, hives, nausea, dizziness, muscle pain and fatigue, and swollen glands. The other thing is that I am recently married and I have read that Lyme can be passed on. How infectious is it?
posted
I'll answer your questions in the next post. here is the list of Lyme symptoms. You do not have to have all of them in order to have Lyme.
1. Unexplained fevers, sweats, chills, or flushing 2. Unexplained weight change--loss or gain 3. Fatigue, tiredness, poor stamina 4. Unexplained hair loss 5. Swollen glands: list areas____ 6. Sore throat 7. Testicular pain/pelvic pain 8. Unexplained menstrual irregularity 9. Unexplained milk production: breast pain 10.Irritable bladder or bladder dysfunction 11.Sexual dysfunction or loss of libido 12.Upset stomach 13.Change in bowel function-constipation, diarrhea 14.Chest pain or rib soreness 15.Shortness of breath, cough 16.Heart palpitations, pulse skips, heart block 17.Any history of a heart murmur or valve prolapse? 18.Joint pain or swelling: list joints_____________ 19.Stiffness of the joints, neck, or back 20.Muscle pain or cramps 21.Twitching of the face or other muscles 22.Headache 23.Neck creeks and cracks, neck stiffness, neck pain 24.Tingling, numbness, burning or stabbing sensations, shooting pains 25.Facial paralysis (Bell's Palsy) 26.Eyes/Vision: double, blurry, increased floaters, light sensitivity 27.Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity 28.lncreased motion sickness, vertigo, poor balance 29.Lightheadedness, wooziness 30.Tremor 31.Confusion, difficulty in thinking 32.Diffculty with concentration, reading 33.Forgetfuiness, poor short term memory 34.Disorientation: getting lost, going to wrong places 35.Difficulty with speech or writing 36.Mood swings, irritability, depression 37.Disturbed sleep-too much, too little, early awakening 38.Exaggerated symptoms or worse hangover from alcohol
quote:Originally posted by sd: Now to the question, could I have been misdiagnosed? Is there a chance that they didn't catch it in the battery of tests they gave me?
YES! and YES!
I was diagnosed with FM 25 yrs ago. I also have "permanently enlarged lymph nodes." I only found out 4 1/2 yrs ago that I have Lyme disease.
The tests for Lyme are very inaccurate....MUCH more likely to show false negatives than to show false positives.
The labs that are used by most drs are even worse than the tests for Lyme. They miss most Lyme infections.
Lyme can be passed on to children in utero. There are ways to prevent this, but there's no sure-fire way.
It can also be passed on to a spouse or sexual partner.
JillF
Frequent Contributor (1K+ posts)
Member # 5553
posted
I was diagnosed with FMS although the rheumatologist said MOST of my symptoms are NOT FMS related!
Duh.
I have 16 of the 18 trigger points but almost anywhere you touch me hurts - not just the trigger points. I'd say 98% of my body hurts if you touch it....
I went through twelve different doctors, including an infectious disease doc (ID), who all either never thought Lyme could be the cause of all my symptoms or they ruled out Lyme due to negative tests.
I have not once tested positive for Lyme.
The only odd test result I've had was my C-Reactive Protein (CRP). My test has been 10+ times higher than it should be. Noone could ever figure out why (it is at it's lowest now that I've been on ABX for 2 months).
I am being treated for Bart, Babs and Lyme.
My husband is showing signs of Lyme right now. I believe Lyme is sexually transmitted. I'm sure you could do a search and see the research and information yourself.
Lyme can be given to in utero (sp?) and in breast milk to your child. I had no idea I had Lyme until after my son was born. He has yet to show any symptoms, thank the Lord.
I have had 41 symptoms so far. My muscle spasms, stabbing pains, electric shock pains and muscle twitches are starting to fade. I still have alot of pain (stiffness, pulled muscle feeling, bone/achy pain, flu-like pain, etc), dizziness, lightheadedness, loss of balance, night vision problems, over-extended visions, blurriness, problems focusing, exhaustion and fatigue, sleeping problems, sore throats, nausea and memory/concentration problems....
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