LymeNet Flash: Neurogenic bladder

This is topic Neurogenic bladder in forum Medical Questions at LymeNet Flash.

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Posted by tickitout (Member # 6982) on :

Would like to know if anyone could shed some light on the above problem. I have been dealing with this for a number of years but recently there is so much pain and pressure involved.

The tests they did on me to diagnosis this I swear I would not do again they were horrible.(my expereience, of course)

Any thing on this subjuct would be appreciatel. Thanks to all..
I am unsure if it is creating the current symptoms because it does feel different.

I am getting nervous and don't know if i should request a ct scan to see if there could be a growth or something but it

The only thing I can say is it feels like something is

Posted by Lymetoo (Member # 743) on :

I don't recall what neurogenic bladder is, but many of us have Interstitial Cystitis caused by Lyme. Lyme loves to camp out in the bladder.

Check this site out:
www.ichelp.org

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Lymetutu

Posted by EZ-E (Member # 6436) on :

I get about a 2 minute warning, before I lose my control......very tough mentally.

Posted by tickitout (Member # 6982) on :

Thanks for the site, Lymetoo.
Interesting and similar in someways. Neurogenic bladder can go various ways, incontinence, lack of complete emptying of the bladder, urgency. It is caused by the nerves from the brain or in the spinal cord. I hope I explained it correct. I found out lyme loves all the nerves also.

But then again what doesn't it like?

Posted by TheCrimeOfLyme (Member # 4019) on :

My daughter was born with a birth defect that caused her a permanent neurogenic bladder. It can also be caused above and beyond nerve and/or spinal cord problems.

Have they mentioned straight cathing to you? A neurogenic bladder can quickly turn into kidney reflux ( vesticoureteral reflux) and cause permanent kidney damage, as it did my daughter during gestation.

Not to mention the oddles of infections you can get from not voiding completely.

I have seen my daughter is some awfully severe pain from not cathing on time. I couldn't imagine being diagnosed with this and not straight cathing.

What type do you have? Did they do a void and cystiogrammy to confirm it?

Posted by daniella (Member # 6753) on :

tickitout I too had a neurogenic bladder. It was caused in my case from babesia..

Once I started the treatments..quinine/cleosin, mepron, zithromax it slowly subsided.

have you been checked for co-infections?..I know it's painful..hang in there..and maybe get something stronger for the pain.

daniella

Posted by tickitout (Member # 6982) on :

Hi Crime, My heart goes out to your daughter for I know how painful this can be.

I had testing done as an in-pt. I know how the tests were performed however don't recall their names. I had bad experiences and never followed through the way I should have.

I was straight cathed in the hospital many times. When my nurses came to my home I refused it.

I try to deal with this on my own although am I only hurting myself. I don't know.

I never heard of kidney reflux. However it does make sense the urine has to go somewhere.

I have all three problems associated with neurogenic bladder.

I was treated for co-infections many years ago but think it is time to be retested.

Thank you all for your input.

Posted by Lymetoo (Member # 743) on :

quote:
Originally posted by tickitout:

I was treated for co-infections many years ago but think it is time to be retested.

Just go straight to the treating. Testing is so inaccurate anyway.

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Lymetutu

Posted by tickitout (Member # 6982) on :

quote:
Originally posted by Lymetoo:
[QUOTE]Originally posted by tickitout:
[b]
I was treated for co-infections many years ago but think it is time to be retested.

Just go straight to the treating. Testing is so inaccurate anyway.

[/B][/QUOTE]

I agree with inaccurate tests. What is the treatment. I have a dr. appt. tomorrow.
Thanks...

Posted by Lymeblue (Member # 6897) on :

Since I was bitten 5 years ago my bladder gradualy became a mess......I've been with good 2 LLMD's I even had a ct scan ordered by my urologists.
What changed my upset bladder to make it better was levaquin for bart (bartonella bothering my bladder?) + questran to get rid of neurotoxins (maybe most of the neurotoxins were attached to my bladder's walls)
I don't know what happened but for sure was related to Lyme.These days I don't even remember having a bladder....that means I'm way better....

Posted by tickitout (Member # 6982) on :

Thanks to all who responded. I find this board so informative.

I have been on Levaquin a few times for the lyme. Mepron years ago but don't think I took Zithromax at the same time. Don't even know if I finished the Mepron therapy just remember how sick it made me. Very difficult to tolerate.

I will run these past my dr and see what his opinion is. Hopefully something will help.

Posted by GiGi (Member # 259) on :

D-Mannose worked for me when I needed it.
It also tastes good. NOW makes one.
http://www.tahoma-clinic.com/mannose.shtml

Take care.

Posted by Lymetoo (Member # 743) on :

quote:
Originally posted by tickitout:
Mepron years ago but don't think I took Zithromax at the same time. Don't even know if I finished the Mepron therapy just remember how sick it made me.

Probably a herx. Mepron needs to have Zithromax along with it to get the best results. You can also use clindamycin/quinine for babesia. Sounds like you need more treatment for that!

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Lymetutu

Posted by tickitout (Member # 6982) on :

quote:
Originally posted by Lymetoo:
Probably a herx. Mepron needs to have Zithromax along with it to get the best results. You can also use clindamycin/quinine for babesia. Sounds like you need more treatment for that!

I have been trying to follow the postings today and just curious as far as opinions go babesia would be the cause of neurogenic bladder over lyme.

Is it more prone to affect the bladder? Or would it just be better to treat babesia?

I am currently on long term treatment for lyme and the neuro stuff is worsening.

If you could kindly explain this to me about the babesia before tomorrow I would greatly appreciate it soI can explain to my dr.

Hope I made sense you all know how difficult it is to understand things most of the time.
Thanks...

Posted by Lymetoo (Member # 743) on :

Daniella said the babs treatment helped her bladder. I can't say for sure about mine.

I don't know if the medical world knows either...??

But you should make sure you are treated for babesia if you want to get over the Lyme. That's fact.

I would ask for mepron/zith or clindamycin/quinine. You can also rotate the meds for Lyme and babesia.

Maybe do a month or two of each.

I'm not a dr and this is not medical advice!

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Lymetutu

Posted by tickitout (Member # 6982) on :

Thanks for the advise. That is all I needed. Unless I have notes forget it.

I hate to waste my time as well as the drs.

You have helped so very much. Truly appreciated. I w ill see how far I get.
Goodnight to all.