posted
Would like to know if anyone could shed some light on the above problem. I have been dealing with this for a number of years but recently there is so much pain and pressure involved.
The tests they did on me to diagnosis this I swear I would not do again they were horrible.(my expereience, of course)
Any thing on this subjuct would be appreciatel. Thanks to all.. I am unsure if it is creating the current symptoms because it does feel different.
I am getting nervous and don't know if i should request a ct scan to see if there could be a growth or something but it
The only thing I can say is it feels like something is
posted
I get about a 2 minute warning, before I lose my control......very tough mentally.
Posts: 103 | From LAS VEGAS | Registered: Oct 2004
| IP: Logged |
posted
Thanks for the site, Lymetoo. Interesting and similar in someways. Neurogenic bladder can go various ways, incontinence, lack of complete emptying of the bladder, urgency. It is caused by the nerves from the brain or in the spinal cord. I hope I explained it correct. I found out lyme loves all the nerves also.
TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019
posted
My daughter was born with a birth defect that caused her a permanent neurogenic bladder. It can also be caused above and beyond nerve and/or spinal cord problems.
Have they mentioned straight cathing to you? A neurogenic bladder can quickly turn into kidney reflux ( vesticoureteral reflux) and cause permanent kidney damage, as it did my daughter during gestation.
Not to mention the oddles of infections you can get from not voiding completely.
I have seen my daughter is some awfully severe pain from not cathing on time. I couldn't imagine being diagnosed with this and not straight cathing.
What type do you have? Did they do a void and cystiogrammy to confirm it?
Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003
| IP: Logged |
posted
Hi Crime, My heart goes out to your daughter for I know how painful this can be.
I had testing done as an in-pt. I know how the tests were performed however don't recall their names. I had bad experiences and never followed through the way I should have.
I was straight cathed in the hospital many times. When my nurses came to my home I refused it.
I try to deal with this on my own although am I only hurting myself. I don't know.
I never heard of kidney reflux. However it does make sense the urine has to go somewhere.
I have all three problems associated with neurogenic bladder.
I was treated for co-infections many years ago but think it is time to be retested.
quote:Originally posted by Lymetoo: [QUOTE]Originally posted by tickitout: [b] I was treated for co-infections many years ago but think it is time to be retested.
Just go straight to the treating. Testing is so inaccurate anyway.
[/B][/QUOTE]
I agree with inaccurate tests. What is the treatment. I have a dr. appt. tomorrow. Thanks...
posted
Since I was bitten 5 years ago my bladder gradualy became a mess......I've been with good 2 LLMD's I even had a ct scan ordered by my urologists. What changed my upset bladder to make it better was levaquin for bart (bartonella bothering my bladder?) + questran to get rid of neurotoxins (maybe most of the neurotoxins were attached to my bladder's walls) I don't know what happened but for sure was related to Lyme.These days I don't even remember having a bladder....that means I'm way better....
posted
Thanks to all who responded. I find this board so informative.
I have been on Levaquin a few times for the lyme. Mepron years ago but don't think I took Zithromax at the same time. Don't even know if I finished the Mepron therapy just remember how sick it made me. Very difficult to tolerate.
I will run these past my dr and see what his opinion is. Hopefully something will help.
quote:Originally posted by tickitout: Mepron years ago but don't think I took Zithromax at the same time. Don't even know if I finished the Mepron therapy just remember how sick it made me.
Probably a herx. Mepron needs to have Zithromax along with it to get the best results. You can also use clindamycin/quinine for babesia. Sounds like you need more treatment for that!
quote:Originally posted by Lymetoo: Probably a herx. Mepron needs to have Zithromax along with it to get the best results. You can also use clindamycin/quinine for babesia. Sounds like you need more treatment for that!
I have been trying to follow the postings today and just curious as far as opinions go babesia would be the cause of neurogenic bladder over lyme.
Is it more prone to affect the bladder? Or would it just be better to treat babesia?
I am currently on long term treatment for lyme and the neuro stuff is worsening.
If you could kindly explain this to me about the babesia before tomorrow I would greatly appreciate it soI can explain to my dr.
Hope I made sense you all know how difficult it is to understand things most of the time. Thanks...
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
oops! 
Printer-friendly view of this topic