Anyone else had this??
Thanks Sue.
Not sure if that is causing your problem but it seems to be pretty commona mong Lymies..
Early into my use of heparin, I had an experience similar to yours. Turns out I had a fibroid that actually started bleeding once my blood was normalized by the heparin.
I got the fibroid taken care of and the bleeding stopped. I continued on heparin for another 2 years with no problems.
A side point. My daughter gave birth to her first while on heparin with NO bleeding problems.
I'm usually a heavy clotter myself....
(and I hope no one is lurking about taking weird statistical info about us...)
but since I've been on heparin shots, I have not noticed them being as bad.
I would suggest calling you're doc, and getting some feedback. You may call both your LLMD AND your gyno - just to make sure they're both on the same 'page'.
As far as the endometriosis - are you in much pain?
Endo was once 'ruled out' for me - but it was done by an absolute idiot who spent a whopping 3 minutes jabbing a laporoscopy camera around in my pelvic area. Let's just say, he didn't spend a lot of time or energy uncovering every 'stone' - so I've never been completely convinced he was right.
Hope you feel better - and CALL YOUR DOCS!
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DR. Wiseass - not a real doc - just a real wise ass.
www.twistoflyme.blogspot.com
almost 2 wks. with the symptoms you
described. I was sick as a dog. Talked to
my Gyno. She suggested that I take Depo.
shots. The majority of time your periods
stop all together. No Periods- No problems.
I take calcium suppliments to help my bones,
and the effects are completely reversable.
I haven't had a period in about 2 years,
and I feel sooo much better.
One good fringe benefit here is the improve-
ment in the relationship w/ hubby. I'm
sure you ladies can understand what I mean
here. It's much easier to have "private
time" w/ someone who has a chronic illness
when you don't have to just hope for the
times when your good days Don't come along
w/ your period.
Went to my gyno and there was nothing wrong, and it stopped after a few months.
I was always regular like clockwork and rather light flow. Over the past eight to twelve months, just as graphic and irregular.
Now anywhere from 19-28 days and start all over. I know menstrual irregularities are listed as a symptom.
As far as the Heparin flush to your port. That is a minute amount that shouldn't be enough to heparinize your system, simply to keep your port patent.
I am in my 5th month of treatment and until my 3 month or so, my period was ALL clots. It was getting really bad, and now it is gone and things are normal again. I do have a small fibroid, so have longer periods, but at least the clotting is gone. Hopefully it will improve with treatment for you too.
Take Care
Lymiecanuck