LymeNet Flash: herx or flagyl Please help

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Posted by infectomatt (Member # 7361) on :

I have been on IV abx (rocefin) and oral flagyl 500mg/day for 4 weeks now... the peripheral neuropathy in feet has become extreme this week (numbness and pain)...I am not sure if this is a herx reaction or from the flagyl. I have heard flagyl can cause nerve damage... I don't want to go off the flagyl because it supposedly attacks the cysts and lessens the risk of serious oportunistic bacterial infections, but I don't want to lose the feet either.. What do I do? The docs are really no help.

Posted by Tincup (Member # 5829) on :

Hey infecto..

Sorry to hear you are feeling worse.

I am not familiar with Flagyl side effects... sorry.

But I wanted to mention.. a herx is a fairly normal thing to have occur in the late 3rd to 4th week.. so the timing is about right.

I will NOT say you are herxing.... because I don't know.

But it is possible. Please check with your doctor to be sure.

Hope it feels better soon!!!

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If you get the choice to sit it out or dance...

Posted by MrsSAM (Member # 7079) on :

Hello: Just my humble opinion, GO OFF FLagyl right away, I knew someone recently who almost lost one of their feet over these symptoms with flagyl, it can be dangerous to keep on it. I was on flagyl too it didn't do that to me but only because I couldn't stomach it, I had bad side effects from it, I was put on its cousin tinidazole, it is much better tolerated with less side effects. Talk to your doc about this. SOON! Good luck

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Thank you MrsSAM

[This message has been edited by MrsSAM (edited 16 June 2005).]

Posted by troutscout (Member # 3121) on :

Check with your Doctor...I'm not one...but, I would drop the flagyl temporarily.

THen start it again after a few days.

Trout

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Now is the time in your life to find the "tiger" within.
Let the claws be bared,
and Lyme BEWARE!!!
Iowa Lyme Disease Assoc.
www.ildf.info

Posted by infectomatt (Member # 7361) on :

quote:
Originally posted by Tincup:
Hey infecto..
Sorry to hear you are feeling worse.
I am not familiar with Flagyl side effects... sorry.
But I wanted to mention.. a herx is a fairly normal thing to have occur in the late 3rd to 4th week.. so the timing is about right.
I will NOT say you are herxing.... because I don't know.
But it is possible. Please check with your doctor to be sure.
Hope it feels better soon!!!

Thanks for the answer... sometimes I think we have more information then the docs... but I will talk to him

Posted by infectomatt (Member # 7361) on :

quote:
Originally posted by troutscout:
Check with your Doctor...I'm not one...but, I would drop the flagyl temporarily.
THen start it again after a few days.
Trout

That;s kind of what I figured.. thanks for the advice

Posted by lhm312 on :

Infectomatt, if you are one of the people able to do a search here, I had started a long thread about peripheral neuropathy. The search works for some and not others, maybe someone can get the link for you.

I am on Tinidazole and Ketek, and was recently diagnosed with peripheral neuropathy, have it mostly in my feet and legs.

I was hospitalized with the pain, didn't know how I could go on.

That was last week, and I found that with the right pain management and a good neurologist, there can be great relief from the pain.

Hang in there, email me if you would like.

God bless.