LymeNet Flash: Lymenet is great, but...

This is topic Lymenet is great, but... in forum Medical Questions at LymeNet Flash.

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Posted by ellenluba (Member # 1707) on :

Lymenet is great, but it won't be enough to get you better if you lose your doctor and can't find another one to treat you.

This is a very real threat to every Lyme disease patient in the country.

And it will take ONE PHONE CALL to do your part in passing the bill to save your own medical care.

This is a winnable fight, but we need everyone of` you to act at this critical time.

THIS IS FOR PEOPLE IN EVERY STATE IN THE COUNTRY TO DO.

Don't even think of it as a political issue. Think of it as self preservation.

CALL SENATOR BRUNO TONIGHT OR TOMORROW AT 518-455-3191.

TELL HIM YOU WANT HIM TO PASS BLL S5057a.
Thanks,
Ellen

The text of S5057a is at www.healthlobby.com/OPMCtext.htm

[This message has been edited by ellenluba (edited 21 June 2005).]

Posted by ellenluba (Member # 1707) on :

To give more info on Bill S5057a:

In NYS we have some of the best known LLMDs in the country.

Without this law they are all ALL at risk for losing their licenses.
And most have already been targeted by the state.

The ripple effect throughout the country would leave many doctors afraid to treat chronic Lyme.

Also, all the medicial disciplinary boards like the OPMC belong to one national organization, and a win in NYS will embolden the boards in other states to go after LLMDs.

This bill will give all NYS doctors the right to protect themselves if the state disciplinary board (OPMC) tries to take away their licenses.

Right now they are not even guaranteed the right to submit scientific literature to defend the treatment choices they make.

Take a look at this very fair bill at www.healthlobby.com/OPMCtext.htm

It is only about due process.

As I said,don't even think of this as politics. Think of it as self preservation.
Ellen

Posted by FightFireWithWater (Member # 5781) on :

Well put, Ellen.

For everyone with persistent Lyme or who might someday need long-term treatment: Fast-forward your life and think about what it would be like without access to an LLMD.

Yes, it could happen! Don't let it!

Make your call to Senator Bruno now and stay tuned!

Posted by Nal (Member # 6801) on :

whats the phone number and is there an email address?

nancy

Posted by ivebinlymed2 (Member # 7330) on :

Okay, Ellen, you make a good point. How do we call the senator, though? What is the number? Do we do a google for Senator Bruno's office in NY?

Thanks. I am sorry I am so ignorant.

Posted by Melanie Reber (Member # 3707) on :

Hey There Nal and Ivebin!

Here is the info for you...

"It's time now to turn or attention to Senator Joseph Bruno and urge him to pass the due process bill to protect our doctors, S5057a.

His phone number is 518-455-3191. Just say please pass S5057a. If you call after 5pm, then leave the message with your name, phone number and zip code.

THANK YOU THANK YOU THANK YOU!!!

------------------
C O L O R A D O * S U P P O R T * S Y S T E M
[email protected]

Posted by tickedntx (Member # 5660) on :

Just called. There is a nice woman answering the phone. I explained about Lymenet and advised she may get similar calls. (She was wondering why someone was calling from Texas...)

Posted by groovy2 (Member # 6304) on :

Hi all
I just called and a nice lady answered--
this supprised me because its 320 am in NY.
She took my message and told me she is there all night-----Way to go NY state

I tried to call texas senitors a couple
of days ago--about the cut in PBS tv
funding--found out you cannot leave a message
or contact with email without giving out
all kinds of personal info --I dont like
eather of texas senitors anyways and from
how hard it is to contact them I guess
they dont get many Nice messages--
--Jay--

Posted by ellenluba (Member # 1707) on :

After all the work in writing the post,I can't believe I went and left out the phone number.

Thank, Melanie,for posting it. I did go add at to my original post now.
Ellen

Posted by Lyddie on :

7:20am I just called and got a pleasant woman on the phoe. For those who might be nervous about calling, I just said what Melanie and Ellen suggested (I'm calling to ask that the Senator vote to pass bill S5057a.)I mentioned that I and two of my children have Lyme Disease. She asked my name and phone number, and if we lived in NY (we don't). That was it.

I hope that it still helps, even if we don't live in NYS.

Posted by Lymester (Member # 5848) on :

Just called this a.m. Very nice woman adding my name to this list. She asked what county I was calling from--Fairfield County, CT.

I hope this will help. I have family members and friends in FL and MA e-mailing and calling.

Thank you for the reminders.

Posted by Lisianthus (Member # 6631) on :

I called Senator Bruno's office, was transfered, but I gave her my name and told her I lived in MI. and I asked that Senator Bruno pass the S5057a bill. She didn't want any info. from me. Just wrote down the Bill number and said "ok thank you"

It was easy.

Lisi

Posted by Foggy (Member # 1584) on :

Luba, do you know if any of the Lyme organizations have lobbyists?

Posted by Mo (Member # 2863) on :

UP!!

Keep calling, this can't be ignored.

If it is, we could be coming on here with bigger problems as there will be less doctors treating.

Posted by vandeb (Member # 6345) on :

I just called and I also got a very nice lady. I told her about my chronic Lyme and that we need to keep our LLMDs. She asked for my zip code and said they will add it to their list. So anybody with a zip code CALL.....PLEASE...........

------------------
Debbie V.

Posted by Mo (Member # 2863) on :

Anyone with a zipcode anywhere..

the only members (and their familes,ect) who are excused are those without one

Please take a minute or two to generate calls.

Posted by lightfoot (Member # 2536) on :

Doing all we can......let's hope it is enough!!!

------------------
C O L O R A D O * S U P P O R T * S Y S T E M
[email protected]

"A friend is someone who knows the song in your heart
and can sing it back to you when you have forgotten the words".
Unknown

Posted by marblenose (Member # 6477) on :

I called, I emailed, I'm scared. Thanks for all you are doing. I am in awe of your energy!
Blessings,

Marblenose

[This message has been edited by marblenose (edited 21 June 2005).]

Posted by Nal (Member # 6801) on :

Whats the email addres???

Nancy

Posted by FightFireWithWater (Member # 5781) on :

Nancy,

Thanks for your interest! I think today we are being asked to phone rather than email.
Not sure of the reasons.

(You could probably find out the email address if you needed to, by typing in the key words in your browser.)

Posted by FightFireWithWater (Member # 5781) on :

Please call now.

Posted by FightFireWithWater (Member # 5781) on :

Up