LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Lymenet is great, but...

 - UBBFriend: Email this page to someone!    
Author Topic: Lymenet is great, but...
ellenluba
LymeNet Contributor
Member # 1707

Icon 1 posted      Profile for ellenluba     Send New Private Message       Edit/Delete Post   Reply With Quote 

Lymenet is great, but it won't be enough to get you better if you lose your doctor and can't find another one to treat you.

This is a very real threat to every Lyme disease patient in the country.

And it will take ONE PHONE CALL to do your part in passing the bill to save your own medical care.

This is a winnable fight, but we need everyone of` you to act at this critical time.

THIS IS FOR PEOPLE IN EVERY STATE IN THE COUNTRY TO DO.

Don't even think of it as a political issue. Think of it as self preservation.

CALL SENATOR BRUNO TONIGHT OR TOMORROW AT 518-455-3191.

TELL HIM YOU WANT HIM TO PASS BLL S5057a.
Thanks,
Ellen

The text of S5057a is at www.healthlobby.com/OPMCtext.htm

[This message has been edited by ellenluba (edited 21 June 2005).]


Posts: 819 | From New York, NY | Registered: Oct 2001  |  IP: Logged | Report this post to a Moderator
ellenluba
LymeNet Contributor
Member # 1707

Icon 1 posted      Profile for ellenluba     Send New Private Message       Edit/Delete Post   Reply With Quote 
To give more info on Bill S5057a:

In NYS we have some of the best known LLMDs in the country.

Without this law they are all ALL at risk for losing their licenses.
And most have already been targeted by the state.

The ripple effect throughout the country would leave many doctors afraid to treat chronic Lyme.

Also, all the medicial disciplinary boards like the OPMC belong to one national organization, and a win in NYS will embolden the boards in other states to go after LLMDs.

This bill will give all NYS doctors the right to protect themselves if the state disciplinary board (OPMC) tries to take away their licenses.

Right now they are not even guaranteed the right to submit scientific literature to defend the treatment choices they make.

Take a look at this very fair bill at www.healthlobby.com/OPMCtext.htm

It is only about due process.

As I said,don't even think of this as politics. Think of it as self preservation.
Ellen


Posts: 819 | From New York, NY | Registered: Oct 2001  |  IP: Logged | Report this post to a Moderator
FightFireWithWater
Frequent Contributor (1K+ posts)
Member # 5781

Icon 1 posted      Profile for FightFireWithWater     Send New Private Message       Edit/Delete Post   Reply With Quote 
Well put, Ellen.

For everyone with persistent Lyme or who might someday need long-term treatment: Fast-forward your life and think about what it would be like without access to an LLMD.

Yes, it could happen! Don't let it!

Make your call to Senator Bruno now and stay tuned!


Posts: 1265 | From does not list | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Nal
Frequent Contributor (1K+ posts)
Member # 6801

Icon 1 posted      Profile for Nal     Send New Private Message       Edit/Delete Post   Reply With Quote 
whats the phone number and is there an email address?

nancy


Posts: 1594 | From Colorado | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
ivebinlymed2
LymeNet Contributor
Member # 7330

Icon 1 posted      Profile for ivebinlymed2     Send New Private Message       Edit/Delete Post   Reply With Quote 
Okay, Ellen, you make a good point. How do we call the senator, though? What is the number? Do we do a google for Senator Bruno's office in NY?

Thanks. I am sorry I am so ignorant.


Posts: 270 | From Charlotte, NC | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707

Icon 10 posted      Profile for Melanie Reber   Author's Homepage         Edit/Delete Post   Reply With Quote 
Hey There Nal and Ivebin!

Here is the info for you...

"It's time now to turn or attention to Senator Joseph Bruno and urge him to pass the due process bill to protect our doctors, S5057a.

His phone number is 518-455-3191. Just say please pass S5057a. If you call after 5pm, then leave the message with your name, phone number and zip code.

THANK YOU THANK YOU THANK YOU!!!

------------------
C O L O R A D O * S U P P O R T * S Y S T E M
[email protected]


Posts: 7052 | From Colorado | Registered: Mar 2003  |  IP: Logged | Report this post to a Moderator
tickedntx
LymeNet Contributor
Member # 5660

Icon 1 posted      Profile for tickedntx     Send New Private Message       Edit/Delete Post   Reply With Quote 
Just called. There is a nice woman answering the phone. I explained about Lymenet and advised she may get similar calls. (She was wondering why someone was calling from Texas...)
Posts: 977 | From Austin, TX, USA | Registered: May 2004  |  IP: Logged | Report this post to a Moderator
groovy2
Frequent Contributor (1K+ posts)
Member # 6304

Icon 1 posted      Profile for groovy2   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi all
I just called and a nice lady answered--
this supprised me because its 320 am in NY.
She took my message and told me she is there all night-----Way to go NY state

I tried to call texas senitors a couple
of days ago--about the cut in PBS tv
funding--found out you cannot leave a message
or contact with email without giving out
all kinds of personal info --I dont like
eather of texas senitors anyways and from
how hard it is to contact them I guess
they dont get many Nice messages--
--Jay--


Posts: 2999 | From Austin tx USA | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
ellenluba
LymeNet Contributor
Member # 1707

Icon 1 posted      Profile for ellenluba     Send New Private Message       Edit/Delete Post   Reply With Quote 
After all the work in writing the post,I can't believe I went and left out the phone number.

Thank, Melanie,for posting it. I did go add at to my original post now.
Ellen


Posts: 819 | From New York, NY | Registered: Oct 2001  |  IP: Logged | Report this post to a Moderator
Lyddie
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
7:20am I just called and got a pleasant woman on the phoe. For those who might be nervous about calling, I just said what Melanie and Ellen suggested (I'm calling to ask that the Senator vote to pass bill S5057a.)I mentioned that I and two of my children have Lyme Disease. She asked my name and phone number, and if we lived in NY (we don't). That was it.

I hope that it still helps, even if we don't live in NYS.


IP: Logged | Report this post to a Moderator
Lymester
LymeNet Contributor
Member # 5848

Icon 1 posted      Profile for Lymester     Send New Private Message       Edit/Delete Post   Reply With Quote 
Just called this a.m. Very nice woman adding my name to this list. She asked what county I was calling from--Fairfield County, CT.

I hope this will help. I have family members and friends in FL and MA e-mailing and calling.

Thank you for the reminders.


Posts: 519 | From CT | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Lisianthus
LymeNet Contributor
Member # 6631

Icon 1 posted      Profile for Lisianthus   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
I called Senator Bruno's office, was transfered, but I gave her my name and told her I lived in MI. and I asked that Senator Bruno pass the S5057a bill. She didn't want any info. from me. Just wrote down the Bill number and said "ok thank you"

It was easy.

Lisi


Posts: 986 | From Michigan | Registered: Dec 2004  |  IP: Logged | Report this post to a Moderator
Foggy
Frequent Contributor (1K+ posts)
Member # 1584

Icon 1 posted      Profile for Foggy         Edit/Delete Post   Reply With Quote 
Luba, do you know if any of the Lyme organizations have lobbyists?
Posts: 2451 | From Lyme Central | Registered: Aug 2001  |  IP: Logged | Report this post to a Moderator
Mo
Frequent Contributor (5K+ posts)
Member # 2863

Icon 3 posted      Profile for Mo     Send New Private Message       Edit/Delete Post   Reply With Quote 
UP!!

Keep calling, this can't be ignored.

If it is, we could be coming on here with bigger problems as there will be less doctors treating.

Mo


Posts: 8337 | From the other shore | Registered: Jul 2002  |  IP: Logged | Report this post to a Moderator
vandeb
LymeNet Contributor
Member # 6345

Icon 10 posted      Profile for vandeb     Send New Private Message       Edit/Delete Post   Reply With Quote 
I just called and I also got a very nice lady. I told her about my chronic Lyme and that we need to keep our LLMDs. She asked for my zip code and said they will add it to their list. So anybody with a zip code CALL.....PLEASE...........

------------------
Debbie V.


Posts: 125 | From Louisiana | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
Mo
Frequent Contributor (5K+ posts)
Member # 2863

Icon 4 posted      Profile for Mo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Anyone with a zipcode anywhere..

the only members (and their familes,ect) who are excused are those without one

Please take a minute or two to generate calls.

Mo


Posts: 8337 | From the other shore | Registered: Jul 2002  |  IP: Logged | Report this post to a Moderator
lightfoot
Frequent Contributor (5K+ posts)
Member # 2536

Icon 1 posted      Profile for lightfoot     Send New Private Message       Edit/Delete Post   Reply With Quote 

Doing all we can......let's hope it is enough!!!

------------------
C O L O R A D O * S U P P O R T * S Y S T E M
[email protected]

"A friend is someone who knows the song in your heart
and can sing it back to you when you have forgotten the words".
Unknown


Posts: 7228 | From CO | Registered: May 2002  |  IP: Logged | Report this post to a Moderator
marblenose
LymeNet Contributor
Member # 6477

Icon 12 posted      Profile for marblenose     Send New Private Message       Edit/Delete Post   Reply With Quote 
I called, I emailed, I'm scared. Thanks for all you are doing. I am in awe of your energy!
Blessings,

Marblenose

[This message has been edited by marblenose (edited 21 June 2005).]


Posts: 287 | Registered: Nov 2004  |  IP: Logged | Report this post to a Moderator
Nal
Frequent Contributor (1K+ posts)
Member # 6801

Icon 1 posted      Profile for Nal     Send New Private Message       Edit/Delete Post   Reply With Quote 
Whats the email addres???

Nancy


Posts: 1594 | From Colorado | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
FightFireWithWater
Frequent Contributor (1K+ posts)
Member # 5781

Icon 7 posted      Profile for FightFireWithWater     Send New Private Message       Edit/Delete Post   Reply With Quote 
Nancy,

Thanks for your interest! I think today we are being asked to phone rather than email.
Not sure of the reasons.

(You could probably find out the email address if you needed to, by typing in the key words in your browser.)


Posts: 1265 | From does not list | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
FightFireWithWater
Frequent Contributor (1K+ posts)
Member # 5781

Icon 14 posted      Profile for FightFireWithWater     Send New Private Message       Edit/Delete Post   Reply With Quote 
Please call now.
Posts: 1265 | From does not list | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
FightFireWithWater
Frequent Contributor (1K+ posts)
Member # 5781

Icon 1 posted      Profile for FightFireWithWater     Send New Private Message       Edit/Delete Post   Reply With Quote 
Up
Posts: 1265 | From does not list | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.