LymeNet Flash: Insomnia - Which antibiotic?

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Posted by KeyLymePie (Member # 7434) on :

Hi everyone,

My main symptom is gnarly insomnia (for many many years). Only recently dx (to my great surprise popped up CDC positive and everything) with Lyme and Babesia

Am trying "other stuff" right now, but want to know - can anyone report that a certain abx or a certain combo really helped with their sleep?

THANKS for any info!

KLP

Posted by Pantsinsocks (Member # 7440) on :

After a month on Ketek and Plaquinil, my insomnia is much better, and I am no longer on sleep meds. Don't know if it was cause and effect, though - but I'll take it !

Posted by KeyLymePie (Member # 7434) on :

Thanks.Plaquinil is for coinfections, right?

Anyone else? Good sleep on certain abx or abx combo?

KLP

Posted by Lymied (Member # 6704) on :

Hi KeyLymePie,

Love your name - thats my favourite dessert!

As far as the insomnia...I found it got much better after the mepron/zithromax combo the first month.

I am finding zithromax and doxy together help a lot.

I think just getting the abx load down with the ones that seem to kill the strain you have will help. I find when I herx the insomnia comes back a couple nights but nothing like it was before tX.

Good luck and take care!

------------------
"If I can stop one/Heart from breaking/I shall not live in vain/If I can ease one Life the Aching/Or cool one Pain/Or help one fainting Robin/Unto his Nest again/I Shall not live in Vain." Emily Dickinson

Posted by KeyLymePie (Member # 7434) on :

Hi Lymied - thanks. That's good to know...

I'm trying to figur out the best combo to start with...

anyone else?

KLP

Posted by breathwork (Member # 567) on :

I don't know which drugs make insomnia better, but I can tell you that levaquin sure made mine worse!

Sleep disturbances are part and parcel of the lyme experience for me. I never had insomnia til lyme...Now it's a constant companion.

Good luck!

Posted by KeyLymePie (Member # 7434) on :

Me too - its my WORST symptom. Drives me craaaazzzzyyyy.

Is Levaquin used to tread Babs?

KLP

Posted by Linda LD (Member # 6663) on :

Have you had a sleep test?

I was waking up every five minutes from pain. Also had sinus problems I wasn't aware of...I am one tough Hillbilly, I could push the pain away during the day--I didn't even know I was in pain. But the doctors could tell from the alpha waves when I had my sleep test--I was getting no REM because of pain. Just be sure you are going to sleep "some" when you go--it is a bummer when you don't sleep any and waste your quarter.

Have you checked out Artisinin . That stuff rocks and really makes the buggers MAD. DIE, DIE, Die!!! Oh, sorry...

Linda

Posted by Aniek (Member # 5374) on :

After a few months on Ketek, I noticed it gave me insomnia. I had to change the schedule to not take it in the evening.

Posted by DeniseBunty (Member # 6559) on :

Hi my son and I use Melatonin, this is what your body actually produces, it is about $10.00 a bottle at the health food stores.I feel that works good, with no side affects.

Posted by breathwork (Member # 567) on :

Someone correct me if I'm wrong here...but wasn't there some study that said that lymies didn't do well with melatonin..I believe that I read this a few years ago, so my lyme brain may not be accurate.

Yes, levaquin can help with babs, but needs to be combined with flagyl or tinidazole for best effect.

I just started using Lunesta this week and so far so good. Lorazepam is my favorite, but developing a quick tolerance, thus using higher doses is a big risk for me.

Physiological dependence on benzodiazapines is rotten when it comes to withdrawl. Withdrawl can last up to a year, so it's an absolutely miserable experience. Narcotic withdrawl is a walk in the park in comparison.

I will use lorazepam but only occasionally when there is no other hope for sleep. It's a God send when all else fails, but I'm very cautious.

Seroquel makes me a zombie for two days, trazodone is better, but not by much.....

Posted by greg (Member # 1250) on :

after i was treated for babesia..(mepron) my sleep returned to normal..I found that babs was the most likely culprit for sleep issues..have talked to many others that felt the same..

greg.