LymeNet Flash: Insomnia - Which antibiotic?

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Insomnia - Which antibiotic?

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Author

Topic: Insomnia - Which antibiotic?

KeyLymePie
Member
Member # 7434

posted

Hi everyone,

My main symptom is gnarly insomnia (for many many years). Only recently dx (to my great surprise popped up CDC positive and everything) with Lyme and Babesia

Am trying "other stuff" right now, but want to know - can anyone report that a certain abx or a certain combo really helped with their sleep?

THANKS for any info!

KLP

Posts: 47 | From New York, NY | Registered: Jun 2005 | IP: Logged |

Pantsinsocks
Member
Member # 7440

posted

After a month on Ketek and Plaquinil, my insomnia is much better, and I am no longer on sleep meds. Don't know if it was cause and effect, though - but I'll take it !

Posts: 67 | From Fredericksburg, VA USA | Registered: Jun 2005 | IP: Logged |

KeyLymePie
Member
Member # 7434

posted

Thanks.Plaquinil is for coinfections, right?

Anyone else? Good sleep on certain abx or abx combo?

KLP

Posts: 47 | From New York, NY | Registered: Jun 2005 | IP: Logged |

Lymied
LymeNet Contributor
Member # 6704

posted

Hi KeyLymePie,

Love your name - thats my favourite dessert!

As far as the insomnia...I found it got much better after the mepron/zithromax combo the first month.

I am finding zithromax and doxy together help a lot.

I think just getting the abx load down with the ones that seem to kill the strain you have will help. I find when I herx the insomnia comes back a couple nights but nothing like it was before tX.

Good luck and take care!

------------------
"If I can stop one/Heart from breaking/I shall not live in vain/If I can ease one Life the Aching/Or cool one Pain/Or help one fainting Robin/Unto his Nest again/I Shall not live in Vain." Emily Dickinson

Posts: 655 | From NC, Exit 88 on the Deer SuperHighway | Registered: Dec 2004 | IP: Logged |

KeyLymePie
Member
Member # 7434

posted

Hi Lymied - thanks. That's good to know...

I'm trying to figur out the best combo to start with...

anyone else?

KLP

Posts: 47 | From New York, NY | Registered: Jun 2005 | IP: Logged |

breathwork
Frequent Contributor (1K+ posts)
Member # 567

posted

I don't know which drugs make insomnia better, but I can tell you that levaquin sure made mine worse!

Sleep disturbances are part and parcel of the lyme experience for me. I never had insomnia til lyme...Now it's a constant companion.

Good luck!

Posts: 1062 | From CA USA | Registered: Jan 2001 | IP: Logged |

KeyLymePie
Member
Member # 7434

posted

Me too - its my WORST symptom. Drives me craaaazzzzyyyy.

Is Levaquin used to tread Babs?

KLP

Posts: 47 | From New York, NY | Registered: Jun 2005 | IP: Logged |

Linda LD
Frequent Contributor (1K+ posts)
Member # 6663

posted

Have you had a sleep test?

I was waking up every five minutes from pain. Also had sinus problems I wasn't aware of...I am one tough Hillbilly, I could push the pain away during the day--I didn't even know I was in pain. But the doctors could tell from the alpha waves when I had my sleep test--I was getting no REM because of pain. Just be sure you are going to sleep "some" when you go--it is a bummer when you don't sleep any and waste your quarter.

Have you checked out Artisinin . That stuff rocks and really makes the buggers MAD. DIE, DIE, Die!!! Oh, sorry...

Linda

Posts: 1171 | From Knoxville, TN US | Registered: Dec 2004 | IP: Logged |

Aniek
Frequent Contributor (1K+ posts)
Member # 5374

posted

After a few months on Ketek, I noticed it gave me insomnia. I had to change the schedule to not take it in the evening.

Posts: 4711 | From Washington, DC | Registered: Mar 2004 | IP: Logged |

DeniseBunty
Member
Member # 6559

posted

Hi my son and I use Melatonin, this is what your body actually produces, it is about $10.00 a bottle at the health food stores.I feel that works good, with no side affects.

Posts: 43 | From Hanover Pa USA | Registered: Nov 2004 | IP: Logged |

breathwork
Frequent Contributor (1K+ posts)
Member # 567

posted

Someone correct me if I'm wrong here...but wasn't there some study that said that lymies didn't do well with melatonin..I believe that I read this a few years ago, so my lyme brain may not be accurate.

Yes, levaquin can help with babs, but needs to be combined with flagyl or tinidazole for best effect.

I just started using Lunesta this week and so far so good. Lorazepam is my favorite, but developing a quick tolerance, thus using higher doses is a big risk for me.

Physiological dependence on benzodiazapines is rotten when it comes to withdrawl. Withdrawl can last up to a year, so it's an absolutely miserable experience. Narcotic withdrawl is a walk in the park in comparison.

I will use lorazepam but only occasionally when there is no other hope for sleep. It's a God send when all else fails, but I'm very cautious.

Seroquel makes me a zombie for two days, trazodone is better, but not by much.....

Posts: 1062 | From CA USA | Registered: Jan 2001 | IP: Logged |

greg
LymeNet Contributor
Member # 1250

posted

after i was treated for babesia..(mepron) my sleep returned to normal..I found that babs was the most likely culprit for sleep issues..have talked to many others that felt the same..

greg.

Posts: 740 | From frederick,md,usa | Registered: Jun 2001 | IP: Logged |

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