LymeNet Flash: New and need some support and understanding...Please help!

This is topic New and need some support and understanding...Please help! in forum Medical Questions at LymeNet Flash.

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Posted by chloenstein (Member # 7442) on :

I am new to the lyme net site.

My boyfriend has lyme. He was dignosed in 2001. When he was first diganosed he was in denial and had not taken care of himself. As of December, he has gone back to his LLMD. She is great and we actually have an appt with her on the 9th.She put him back on antibodics and now he seems to be getting worse. Lately, he has been feeling really awful. Constant headaches, constant fatigue, aches and pains, shortness of breathe, major anxiety attacks also associated with heart palps. Two nights ago he was in NJ and had a severve anxiety attack along with heart palps. He was almost 200 miles away from home which made the attack even worse. It seems to me every stressful situation or thought of having to go to work or deal with people he has another severe attack.I have read that magensium is helpful during an attack? Is there anything I can do for him to get him through this herxing period?

I have done a lot of research on the disease and feel I am pretty knowledge of Lyme. The hardest thing right now is watching him go through all of this. He knows I am always there for him and he could talk to me when ever needed. I just wish there was more I could do. Any suggestions would be greatly apperciate.

Thanks,

Chloenstein

Posted by janet thomas (Member # 7122) on :

I am not a doctor and this is not medical advice ,but, as a Lyme patient, when I am herxing too badly I skip my antibiotics for a day or two.

There have been many discussions about whether Lyme can be transmitted sexually like its cousin, syphilus. Expecially from man to woman.

Posted by lou (Member # 81) on :

Yes, he should be on magnesium. Have you read the treatment guidelines in the newby links? It mentions a number of supplements, including magnesium. Also, need to separate mg and some others from the abx by two hours. Usually the drug package insert/pharmacy info sheet tells you things like this.

Epsom salt baths can be helpful. My formula (might be others) is half cup of epsom salts, half cup of baking soda, table salt. Epsom salts contain magnesium and so you can evidently have some skin absorption when used in a hot bath.

Have heard (not tried myself) that lemon juice in water can help in herxes. Something about changing the pH. Sorry, don't know the technical explanation and have no personal experience with this.

As Janet said, sometimes if the herx is too severe, docs will suggest stopping abx briefly.

Posted by bg (Member # 46416) on :

WELCOME CHLOE! I'm editing & breaking up the long paragraphs into 6-8 lines max and double space for us chronic, late-stage lymies so we can comprehend and try to help you ok.

Also, you can edit the text any time! You can NOT edit the subject line so be as specific as possible which you did this time. The more specific subject is; the more readers & replies you will get.

Also when I quoted you, I DELETED the [B] at the beginning & ending of quote ... helps those of us with severe eye/lyme problems.

quote:
Originally posted by chloenstein:
I am new to the lyme net site.
My boyfriend has lyme. He was dignosed in 2001. When he was first diganosed he was in denial and had not taken care of himself.
As of December, he has gone back to his LLMD. She is great and we actually have an appt with her on the 9th.
She put him back on antibodics and now he seems to be getting worse. Lately, he has been feeling really awful.
Constant headaches, constant fatigue, aches and pains, shortness of breathe, major anxiety attacks also associated with heart palps.
Two nights ago he was in NJ and had a severve anxiety attack along with heart palps. He was almost 200 miles away from home which made the attack even worse.
It seems to me every stressful situation or thought of having to go to work or deal with people he has another severe attack.
I have read that magensium is helpful during an attack? Is there anything I can do for him to get him through this herxing period?
I have done a lot of research on the disease and feel I am pretty knowledge of Lyme. The hardest thing right now is watching him go through all of this. He knows I am always there for him and he could talk to me when ever needed. I just wish there was more I could do. Any suggestions would be greatly apperciate.
Thanks,
Chloenstein

Chloe, sorry to read about your boyfriend's symptoms; I have most of these too.

What helps me also for my pain is using 5 frozen ICE packs...3M has some great ones. I put 2 in a dish towel DRAW-STRING that most crafters sell. I use this for my lower back or shoulder/back area. I use one on my neck, behind my neck, and my left leg..sciatic nerve area.

Here's TREEPATROL's and TINCUP'S combination newbie links.
http://flash.lymenet.org/ubb/Forum1/HTML/029917.html

Print off the links then check them off as you read as you could spend several months reading all of this.

print & read Dr. Barrascono's info first; you will come back to this often.

Also, see Cheryl's extensive web sites on: LD DIAGNOSIS, SYMPTOMS, & TREATMENT ... wonderful!
http://www.lymeinfo.net/lymediseasetreatment.html

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bettyg, Iowa .. I'm a former secretary who typed many legal agreements but not the type you folks are thinking of. Also been trying to get SSDI, disability insurance, benefits for 5 yrs. 8-05!