I feel like I have a sunburn. It has started from bactrim (3 day). I get the burning skin 2 hours after taking bactrim.
My heels hurt too.
Nite, Heather
Posted by Erica (Member # 4619) on :
Sorry to hear this....I have definitely found that the burning skin symptom cycles. In my experience, it will lapse for a few days, and then unfortunately return a few days later...
sorry that you're feeling bad. Hang in there. When this happens to me at night, I have a fan ready, and then face it towards my body.
Hope this may help. Good luck,
Erica
Posted by HEATHERKISS (Member # 6789) on :
Burning on my arms and alittle on my legs.
Posted by Erica (Member # 4619) on :
I actually burn all over! And then later, I may be cold...crazy!
Last night, I slept well, but a few days of this is usually followed by hot nights!
I am still trying to confirm for sure whether this is usually babesia. this seems to be the common perception. Is your Dr. attributing it to this??
Posted by lymeHerx001 (Member # 6215) on :
Ive had this before and still get it almost every day.
Posted by Erica (Member # 4619) on :
Are you currently treating babesia? Has nothing helped diminish these symptoms? I used to burn and sweat. I've noticed that lately, I'm only burning...no sweating. I don't know if this is improvement!
Posted by lla2 (Member # 2364) on :
heels hurting and skin burning are both signs of bartonella...also stay out of sun wiht bactrim/septra or you'll really get burned...
sounds like bart to me..
Lisa
Posted by Erica (Member # 4619) on :
bartonella? thanks for your reply...it's confusing because I have heard and read about babesia with skin burning...To tell you the truth, I am not sure that my Dr. had a strong opinion about which co-infection this was. I have not had an IGENEX test yet, so I guess that is next. thanks--
Posted by lla2 (Member # 2364) on :
don't know too many people who test postive for bart..just go by symtopms ..most good llmds will anyway....
they don't have goood testign yet for bart...
lisa
Posted by liz28 on :
I've always heard bactrim/septra is a low level drug for bartonella. You try it to see if you flare, and it you do, then you move on to levaquin or rifampin. Rifampin is often taken with a macrolide, such as ketek or zithromax, and levaquin is usually taken with doxy. Bactrim is not the optimal choice for curing bart, but Lymenet people describe a high cure rate with rifampin or levaquin.
Although levaquin proved too strong for me, I just started the official rifampin herx. It is producing the same symptoms you describe, except that my skin is super-itchy, and I just have a lowgrade fever, not the full-blast burning sensation.
Posted by Erica (Member # 4619) on :
thanks for this explanation! My llmd gave me 2 rounds for rifampin, but I did not have it combined with anything else. Maybe I should suggest a combination to him, since I still have burning skin, followed by periods of cold! I oscillate, and am sometimes so cold that the heat wave felt good to me!
Posted by liz28 on :
I've also had the burning skin sensation when going through severe herxes with Lyme abx. In those cases, Celebrex helped, but as you know, there are side effects linked with it. I take it every day for systemic inflammation, with full knowledge of possible negative effects. A lot of Lymenet people have mentioned bromelain as a natural anti-inflammatory, but I've never tried it.
Posted by CLC (Member # 7112) on :
Since reading some recent posts about bartonella I'm wondering if I have it. I have all the sweating plus get this burning stuff lately - mostly on the top of my hands - Artemisinin makes it a lot worse. I had assumed it was babesia, now I'm not so sure.
This is all too damned confusing.
Anyway, my question:
What would someone take with Rifampin if they cannot tolerate a macrolide like zith?? It causes heart irregularities for me, plus other problems 'cause I'm on a SSRI.
Can Rifampin treat bartonella alone, or must it be used in conjunction with something else?
Thanks
-CLC
Posted by HEATHERKISS (Member # 6789) on :
Wow! I was suspecting that I might have bart...... Shizer! Another coinfection! Blasted! bleepity bleep bleep!
How long or short do people treat for bart??? Dag nabbit!
Dreading more rx treatments, Heather
Posted by BJG (Member # 4723) on :
Hi It does not have to be a co-inf. It can be Bb. My LLMD said Bb loves the skin.
He also suggested nuerotoxins.
Skin burning has been/is my primary symptom. I burn all over. To get some relief I take MANY warm baths in just water, or with Epsom salts, HP and bleach.
The warm water seems to calm down the burning skin.
I have taken Rifampin for 1 yr. It helped for about 6 weeks but I peacked. My LLMD keeps that my main abx anyway.
