posted
Sorry to hear this....I have definitely found that the burning skin symptom cycles. In my experience, it will lapse for a few days, and then unfortunately return a few days later...
sorry that you're feeling bad. Hang in there. When this happens to me at night, I have a fan ready, and then face it towards my body.
Hope this may help. Good luck,
Erica
Posts: 100 | From St. louis, MO | Registered: Sep 2003
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HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Burning on my arms and alittle on my legs.
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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posted
Are you currently treating babesia? Has nothing helped diminish these symptoms? I used to burn and sweat. I've noticed that lately, I'm only burning...no sweating. I don't know if this is improvement!
Posts: 100 | From St. louis, MO | Registered: Sep 2003
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lla2
Frequent Contributor (1K+ posts)
Member # 2364
posted
heels hurting and skin burning are both signs of bartonella...also stay out of sun wiht bactrim/septra or you'll really get burned...
sounds like bart to me..
Lisa
Posts: 4713 | From saunderstown, ri Usa | Registered: Apr 2002
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posted
bartonella? thanks for your reply...it's confusing because I have heard and read about babesia with skin burning...To tell you the truth, I am not sure that my Dr. had a strong opinion about which co-infection this was. I have not had an IGENEX test yet, so I guess that is next. thanks--
Posts: 100 | From St. louis, MO | Registered: Sep 2003
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lla2
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Member # 2364
posted
don't know too many people who test postive for bart..just go by symtopms ..most good llmds will anyway....
they don't have goood testign yet for bart...
lisa
Posts: 4713 | From saunderstown, ri Usa | Registered: Apr 2002
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liz28
Unregistered
posted
I've always heard bactrim/septra is a low level drug for bartonella. You try it to see if you flare, and it you do, then you move on to levaquin or rifampin. Rifampin is often taken with a macrolide, such as ketek or zithromax, and levaquin is usually taken with doxy. Bactrim is not the optimal choice for curing bart, but Lymenet people describe a high cure rate with rifampin or levaquin.
Although levaquin proved too strong for me, I just started the official rifampin herx. It is producing the same symptoms you describe, except that my skin is super-itchy, and I just have a lowgrade fever, not the full-blast burning sensation.
posted
thanks for this explanation! My llmd gave me 2 rounds for rifampin, but I did not have it combined with anything else. Maybe I should suggest a combination to him, since I still have burning skin, followed by periods of cold! I oscillate, and am sometimes so cold that the heat wave felt good to me!
Posts: 100 | From St. louis, MO | Registered: Sep 2003
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liz28
Unregistered
posted
I've also had the burning skin sensation when going through severe herxes with Lyme abx. In those cases, Celebrex helped, but as you know, there are side effects linked with it. I take it every day for systemic inflammation, with full knowledge of possible negative effects. A lot of Lymenet people have mentioned bromelain as a natural anti-inflammatory, but I've never tried it.
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posted
Since reading some recent posts about bartonella I'm wondering if I have it. I have all the sweating plus get this burning stuff lately - mostly on the top of my hands - Artemisinin makes it a lot worse. I had assumed it was babesia, now I'm not so sure.
This is all too damned confusing.
Anyway, my question:
What would someone take with Rifampin if they cannot tolerate a macrolide like zith?? It causes heart irregularities for me, plus other problems 'cause I'm on a SSRI.
Can Rifampin treat bartonella alone, or must it be used in conjunction with something else?
posted
Hi It does not have to be a co-inf. It can be Bb. My LLMD said Bb loves the skin.
He also suggested nuerotoxins.
Skin burning has been/is my primary symptom. I burn all over. To get some relief I take MANY warm baths in just water, or with Epsom salts, HP and bleach.
The warm water seems to calm down the burning skin.
I have taken Rifampin for 1 yr. It helped for about 6 weeks but I peacked. My LLMD keeps that my main abx anyway.
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