Just know your family is in my prayers. Please keep us updated about her recovery.
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Debbie V.
There is an imbalance. Guaranteed.
It is a simple spit (sputum) test.
Neuroscience in Wisconsin can run the tests.
My son was "sad" too...VERY!!!!!!
It takes NURTIENTS to make the neurotransmitters...several... and enzymes to convert them to a VERY important neurohormone.
Lupin Ap4A hydrolase has particularly high sequence identity with the Ap4A hydrolase encoded by ialA, one of two genes associated with the ability of Bartonella bacilliformis to invade and survive as a parasite of human erythrocytes [4].
Lupin Ap4A hydrolase is also a magnesium-dependent enzyme.
http://www.biochemj.org/bj/357/0399/bj3570399.htm
These pathogens...bacteria, viruses, etc...are ALL parasites...they deplete NUTRIENTS...ours. If they deplete a MAJOR electrolyte...we are in trouble...very fast.
Restore the balance to heal. Not easy and it takes TIME.
Peace and healing,
Annie
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I'm sorry to hear this. I'll keep your family in my prayers.
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quote:
Originally posted by pab:
Was she ever seen by Dr. J?I'm sorry to hear this. I'll keep your family in my prayers.
As someone who has been in your daughter's exact situation, I emphasize with what your family is going through. But there is a positive side to things...I spent time in psych wards BEFORE being diagnosed..for a period of years, alternating between relative sanity out in the normal world and confinement or psychiatric treatment..in and out of psychosis and delusions...and while I have sometimes been driven to that point in the course of treatment including recently, the good thing about your daughter is you have an idea of what is going on and what can be done about things. Sometimes it takes weeks to months for treatment benefits to appear. And that process can be excruciating.
But with the right doctors and right treatment, I have faith that your daughter and family can pull through this very difficult situation and find a brighter future.
Remember to take care of you too....
I'm thinking of both of you..
Carol Ann
Once your daughter gets home have her neurotransmitters tested.
Hubby had 4 psych admits prior to diagnosis and treatment of Lyme, babesia and bartonella.
He has been prescribed many different psychotropic meds and none of them helped with symptoms. Tremors/myoclonus/seizure-like episodes and nausea/vomiting/dry heaves continued despite these meds. He also had additional side-effects from the drugs on top of the symptoms he already had.
The worst episode was the psychiatrist who said that he didn't care how many neurologists my husband had been to he knew that hubby had Parkinson's.
This psychiatrist wanted to stop my husband's tremors in 3 days. He gave him a very high dose of Artane (an older anticholinergic for Parkinson's) plus 3 or 4 different psychotropic meds.
By the time this duck was through with him my hubby really did look like he had Parkinson's. He developed the classic shuffle step walk of a Parkinson's patient which he had never had before. This still comes back when he is the most symptomatic.
Find a doctor you can trust and get your daughter off the drugs she will be prescribed as soon as possible. Amino acids can be prescribed IV. They helped hubby some. He continues to take oral supplements as needed.
With his history of gastritis it was difficult to get things balanced. His physical symptoms are little improved but his mental attitude is 1000% better. It is a struggle every day but he is healing. The days of straight jackets are behind us I hope for good.
Hubby has been tested by 3 or 4 different labs but the one which gives the most comprehensive overall nutritional picture is Meta Metrix. The ION panel (Individual Optimal Nutrition) is worth the money. See http://www.metametrix.com
In our experience the doctors who know the most about nutrition are members of ACAM (American College for Advancement in Medicine) See http://www.acam.org click on Public then Find a Doctor
While treatment for Lyme and tick-borne co-infections are needed those treatments can actually worsen nutritional status and further deplete neurotransmitter levels.
You have to treat all these imbalances because there is frequently a domino effect where for example a deficiency in one nutrient can prevent 10 other things from working correctly.
For example, my husband's new primary care provider tests all her new patients for zinc deficiency with a taste test. She said that a low zinc level would keep vitamin B12 from crossing the blood-brain barrier. The blood level could be normal but without adequate zinc the B12 would be low in the cerebral spinal fluid and the brain which means it would be low in the nerves which is where it is really needed.
Sometimes psychotropic meds are necessary short term but long-term you must fix the supply side which is the amino acids (from protein) plus vitamins and minerals and fatty acids etc.
In my opinion you just can't get everything your body needs from food if it is already weakened from an illness plus there is the added stress to detox the drugs needed to treat the illness.
Just do whatever you have to do to get your daughter out of the psych ward as soon as possible. If they require you to schedule follow-up appointments do that and then if you can locate a nutritionally oriented doctor just cancel the psych appointment.
Don't stop psych meds without a doctor's approval as that can land you right back in the ER.
If you have not read it, read the article in Good Housekeeping magazine called "I Wouldn't Give Up on My Daughter". I think it was in the October 2003 issue. Hubby could really relate to this article on a Lyme patient as he had tried about 2/3rds of the meds she was prescribed.
Best wishes to you and your daughter
Bea Seibert
My best wishes to your family as well.
As a mom myself, I have been in a similar position that you find yourself in now.
It was very difficult to have a loved one have to stay in one of those facilities. But, under the circumstances, it was in the best interest for the patient.
In our case it turned out to be a very good thing--though it was unbearable for us as a family at the time. A lot of good did come from the experience.
Hang in there. Know that we have your family in our hearts.
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Tabby
It is hard when you are under such stress, but as others have said, take care of you. That is one of the best things that you can do for your daughter right now.
Please keep us posted so we can learn of her progress.
Hope that helps.
Shaz
Perhaps you could inquire if her MDs could consult with Dr. J. or The Columbia folks to help them comprehend the neuro-psych components of the disease.
My PCP consulted with Columbia re: IV protocols and they were very helpful.
[This message has been edited by Foggy (edited 27 July 2005).]
Best wishes & keep posting.
bettyg
My son did NOT test positive for bartonella. Luckily his llmd decided to treat him for it anyway with rifampin/bactrim.
It worked.
His lyme rages were aweful. (he is only 6) I was scared to death of them as he was so out of it angry. He has not had any since being treated for bart.
good luck to you and please keep us posted.
pattiecakes