Also, there is a recipe on the net for homemade Gookinaid that a famous CFIDS doc recommends. It also helps.
Best,
Karen
First off plain water is not always the best to rehydrate you, you can actually urinate important minerals out.
The best Electrolite replacement I have found is Electromix made by Alacer...
Most health food stores sell it, or you can get i tonline at vitacost.com or many other web sites... just punch in "electromix" in the search engine.
Anyway, it contains all the important minerals...and you just add it to your water...not sugar and a very light lemon/lime taste.
I never drink plaun water, always put some of this in it.
Also making sure you have enough salt is important as well.
I hope you feel better.
Hope you can find things to keep you hydrated!
--Annie
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Lyme Disease Awareness Products
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Bc
[QUOTE]Originally posted by Christine202:
[B]Hi India - Having dysautonomia, I have major dehydration issues so have become an "electrolite pro" lol
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"It is not genius, nor glory, nor love that reflects the greatness of the
human soul.....it is kindness..."
Here's some info on Dysautonomia:
"Dysautonomia literally means dysregulation of the autonomic nervous system. The autonomic nervous system is the master regulator of organ function throughout the body. It is involved in the control of heart rate, blood pressure, temperature, respiration, digestion and other vital functions. Dysregulation of the autonomic nervous system can produce the apparent malfunction of the organs it regulates. For this reason, dysautonomia patients often present with numerous, seemingly unrelated maladies." (From DINET
There are different forms of dysautonomia. The most common are POTS (Postural Orthostatic Tachychardia Syndrome) and NCS (Neurocardiogenic Syncope). They both can cause one to pass out due to a sudden drop in blood pressure which is caused by a pooling of the blood in the legs.
"Symptoms may include:
Tachycardia, bradycardia, palpations, chest pain, dangerously low blood pressure, wide swings/sudden drops in blood pressure, excessive fatigue, exercise intolerance, dizziness, fainting/near fainting, gastrointestinal problems, nausea, insomnia, shortness of breath, anxiety, tremulousness, frequent urination, seizures, cognitive impairment, visual blurring or tunneling, and migraines." (From DYNA)
And here's another site for information:
National Dysautonomia Research Foundation
I hope this helps you! I have NCS and my blood pressure can drop very low (recorded at 51/26 during the test to diagnose it) and I can pass out, although that's never happened outside of the test. It's not known what causes it but it can be induced by a viral infection. I believe it can also be caused by Vagus nerve damage which may be why some Lymies have dysautonomia. In itself, Dysautonomia doesn't cause dehydration but it gets worse when you're dehydrated.
Peace and healing,
Annie
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it is complex... I was diagnosed with a full Autonomic work up and seen 2 of the top specialists in the country who have been wonderful... especially about coorelating the Lyme Disease to it, which has really impressed me!
Anyway, I have a standing order for IV hydration at home when my symptoms get too bad... I have a bad virus right now , so Am on my IV drip.
The Dr's have explained that theer are different types and reasons for getting dysautonomia... Getting it from a bacterial or viral illness ( such as Lyem disease) can trigger a bloackage between the hypothalamus which in turn sends out incorrect signals to the body... for instance my brain sends the signals to my kidneys to dump my sodium and magnesium....which is why I end up unbalanced with electrolites...
Also I have been diagnosed with hypermobility which is a genetic condition which effects the collogen...and having this PLUS Lyme disease causes the breakdown of the collagenic fibers to be worse so that I actually "leak" fluids from my veins into my tissues ( called 3rd spacing)....this in turn mean that even the fluids I take by mouth may never get absorbed.
If you feel you might have dysautonomia I would definetly suggest getting a work up which includes a tilt table test...
Email me if you have any questions...
A good web site to check out is www.potsplace.com
They have a list of Dr's there as well.
Feel free to e mail me.
quote:
Originally posted by Christine202:
A good web site to check out is www.potsplace.com
That website is actually the same as the one I listed above as DINET (Dysautonomia Information Network). Thanks for explaining a little more about it!
--Annie
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Lyme Disease Awareness Products
Click here to see my Lyme journal.