posted
High dosages of oral abx have me dehydrated to the point that i had a fever and low bp. I drink TONS of water. NP at LLMD office said water will hydrate but not provide nutrients. Suggested Gatorade and "liquid foods" (jello, etc) that willl do both. I want to stay away from sugar. Are ES a good alternative to that?? THX!
Posts: 18 | From md | Registered: May 2005
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kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
I rehydrate by mixing Sea Salt and water. Specifically Sea salt not table salt. 1/4tsp to 4 oz of water or 1/2tsp to 8 oz. of water. I heat the water a little to dissolve the salt but you don't have to.
Also, there is a recipe on the net for homemade Gookinaid that a famous CFIDS doc recommends. It also helps.
arg82
Frequent Contributor (1K+ posts)
Member # 161
posted
I'm another Lymie with dysautonomia so I've tried quite a few electrolyte drinks (although never the powders or solutions you guys are talking about). If you want to avoid the sugar, you can try smart water which is basically plain water with elecrolytes. Or there's fruit water which is basically smart water but with a little fruit flavoring. Personally I like vitamin water because it has a little more flavor and also has vitamins and minerals added to it. And I admit I do drink gatorade because I just have to get the fluids in and it helps me a lot to have variety (right now I have three different flavors of gatorade and one flavor of propel in my fridge).
Posts: 2184 | From Rochester, MA | Registered: Oct 2000
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beachcomber
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Member # 5320
posted
Alacer makes an electrolyte packet (for 1 litre of water) that has no sugars or flavorings in it. It comes in a green box and is about $8.00 - $12.00, depending on where you buy it. It is not the one called "Emergen - C". I use 1/2 a packet in a 16 oz bottle of water and drink throughout the day for dehydration.
posted
Hi Christine, Can you please tell me how one gets dysautonomia? Im only asking because I have been dry for yrs no matter how much water I take in Im still dry and the doctors can't seem to figure it out.. The ONLY time I feel remotely better is if I end up in the er and they give me some kind of IV bag...Thanks for any information..
[QUOTE]Originally posted by Christine202: [B]Hi India - Having dysautonomia, I have major dehydration issues so have become an "electrolite pro" lol
------------------ "It is not genius, nor glory, nor love that reflects the greatness of the human soul.....it is kindness..."
Posts: 209 | From South Carolina by the beach | Registered: Jun 2005
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arg82
Frequent Contributor (1K+ posts)
Member # 161
posted
Lyme etc. and everyone else,
Here's some info on Dysautonomia:
"Dysautonomia literally means dysregulation of the autonomic nervous system. The autonomic nervous system is the master regulator of organ function throughout the body. It is involved in the control of heart rate, blood pressure, temperature, respiration, digestion and other vital functions. Dysregulation of the autonomic nervous system can produce the apparent malfunction of the organs it regulates. For this reason, dysautonomia patients often present with numerous, seemingly unrelated maladies." (From DINET
There are different forms of dysautonomia. The most common are POTS (Postural Orthostatic Tachychardia Syndrome) and NCS (Neurocardiogenic Syncope). They both can cause one to pass out due to a sudden drop in blood pressure which is caused by a pooling of the blood in the legs.
"Symptoms may include: Tachycardia, bradycardia, palpations, chest pain, dangerously low blood pressure, wide swings/sudden drops in blood pressure, excessive fatigue, exercise intolerance, dizziness, fainting/near fainting, gastrointestinal problems, nausea, insomnia, shortness of breath, anxiety, tremulousness, frequent urination, seizures, cognitive impairment, visual blurring or tunneling, and migraines." (From DYNA)
I hope this helps you! I have NCS and my blood pressure can drop very low (recorded at 51/26 during the test to diagnose it) and I can pass out, although that's never happened outside of the test. It's not known what causes it but it can be induced by a viral infection. I believe it can also be caused by Vagus nerve damage which may be why some Lymies have dysautonomia. In itself, Dysautonomia doesn't cause dehydration but it gets worse when you're dehydrated.
posted
Hi - The post above does a decent job of explaining the crux of dysautonomia...
it is complex... I was diagnosed with a full Autonomic work up and seen 2 of the top specialists in the country who have been wonderful... especially about coorelating the Lyme Disease to it, which has really impressed me!
Anyway, I have a standing order for IV hydration at home when my symptoms get too bad... I have a bad virus right now , so Am on my IV drip.
The Dr's have explained that theer are different types and reasons for getting dysautonomia... Getting it from a bacterial or viral illness ( such as Lyem disease) can trigger a bloackage between the hypothalamus which in turn sends out incorrect signals to the body... for instance my brain sends the signals to my kidneys to dump my sodium and magnesium....which is why I end up unbalanced with electrolites...
Also I have been diagnosed with hypermobility which is a genetic condition which effects the collogen...and having this PLUS Lyme disease causes the breakdown of the collagenic fibers to be worse so that I actually "leak" fluids from my veins into my tissues ( called 3rd spacing)....this in turn mean that even the fluids I take by mouth may never get absorbed.
If you feel you might have dysautonomia I would definetly suggest getting a work up which includes a tilt table test... Email me if you have any questions...
Posts: 2184 | From Rochester, MA | Registered: Oct 2000
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi all the best electrolytes suplement I have found is- Bioplasma-- from Schuesslers-- google it Cost about $13 for a years supply you will feel the good effects in minutes--has no sugar-- this stuff is the Real Deal-- --Jay--- Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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