LymeNet Flash: Lyme Test Neg Not surprised

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Posted by jennygump31 (Member # 4199) on :

Well My test came back neg. So my PCP says I do not have a recurance of my lyme. I don't believe him but what am I to do. There is no LLMMD in my area and with a new baby it is hard to just getup and go.

What to do?

Posted by perplexed (Member # 1913) on :

up

Posted by johnnyb (Member # 7645) on :

Get a copy of the results and check the posts on this site for enterpretation of your Western Blot, to see if you have any specific bands for lyme. Unless you used Igenex or another good lyme-literate lab, you will probably get a negative back, even though you have lyme-specific antibodies. Quest is the worst.

Better would be to bring the results to an LLMD, if you can find one. Non-LLMD's are as thick as you-know-what when it comes to dismissing lyme as a cause of your symptoms.

"Oh, no, it CAN'T be lyme."

- JB

Posted by YorktownNL (Member # 7657) on :

Jenny

If you think its Lyme convince the PCP. Print out the symptoms, check those your experiencing and point your PCP to the clinical diagnosis.

Refer the duck to www.guideline.gov which is a gov't sponsored medical site and have him lookup up lyme disease. My PCP finally did this, on his own, while i was in the exam room and agreed to start treatment. even agreed to work with me on it.

You can continue to rule things out and should look for an LLMD but don't give up on that PCP for insurance if nothing else. I am on the waiting list at a llmd but it will be cash out of pocket.

The posts coninue to suggest Igenex and pocono confirmed all bands absent through another commercial followed by a positive at Igenex.

We have a house full of little ones too...makes it tough, i know.

GOOD LUCK!

Posted by groovy2 (Member # 6304) on :

Hi Jenny
I found that doxicycline can be
gotten from 1-800-Pet Meds-
No doc needed--Jay--

Posted by janet thomas (Member # 7122) on :

Jenny,

What test?, as suggested post your results here.

You can quantitate your symptoms at www.canlyme.com- more than 20 is a serious potential for lyme-you may wish to print it and take it to PCP.

Where (about) are you from?

janet

Posted by BostonLyme2005 on :

Hi,
This is great, but I think it is only 100mg tabs....What about Amox/Tetra?

quote:
Originally posted by groovy2:
Hi Jenny
I found that doxicycline can be
gotten from 1-800-Pet Meds-
No doc needed--Jay--

------------------
Rob

Posted by jennygump31 (Member # 4199) on :

I think one of my biggest problems is I am allergic to Cillian's. Penicillian I get hives in my throat and the others I get rashes. I have requested a copy of my test and will hopefully have then here in a few day and I will post them then.

The test that were run were:
Comp Metabolic Chem
CBC Profile
RBC SED
TSH R
CSF Lyme AB R
EBV4 AB profile

Does this tell you which Lyme was run?

Posted by jennygump31 (Member # 4199) on :

up

Posted by treepatrol (Member # 4117) on :

quote:
Originally posted by jennygump31:
up

Jennygump email me [email protected] where your from I may have Drs list for you. if you want to.

Posted by jennygump31 (Member # 4199) on :

Treepatrol I sent you an email thanks

Posted by Lymetoo (Member # 743) on :

quote:
Originally posted by jennygump31:
CSF Lyme AB R

This is the only test that would be for Lyme, but I do not recognize it. Is it a spinal tap?? [CSF]

More info: http://www.ILADS.org/

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Do not take anything I say as medical advice. I am not a doctor, but I DID stay at a Holiday Inn Express!
oops!
Lymetutu