LymeNet Flash: Thought I would die.......

This is topic Thought I would die....... in forum Medical Questions at LymeNet Flash.

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Posted by HeavenlyHoller1 (Member # 4416) on :

Haven't been on in a long time..

I had seasures (can't spell any more..sorry) and the docs say a stroke.

Spend five days in he hospital and they found two leasions on my brain.

Doc says MS and stroke...

Any one else had this happen.

I had some short term memory loss but nothing else and I am fine now.

Achs and pains are bank big time.

Just glad to have gotten out of this epasode alive!!!

Now I can't drive for 6 months.......

Love, HeavenlyHoller1

Posted by wrotek (Member # 5354) on :

I feel sometimes having stroke too, can`t speak or move mouths. how long U have Lyme ?

Posted by Lymetoo (Member # 743) on :

Very sorry to hear that! I was in the hospital a few weeks ago with a serious infection following surgery. Very glad to get out of that alive myself!

Have you been treated for Lyme for a long time? Did they put you on blood thinners now? Many with Lyme have hypercoagulation and that puts us at risk for strokes.

I hope your recovery goes well. Hang in there!

------------------
Do not take anything I say as medical advice. I am not a doctor, but I DID stay at a Holiday Inn Express!
oops!
Lymetutu

Posted by johnnyb (Member # 7645) on :

I know how you feel..... I also landed in the hospital with a seizure-like attack.
I was home on disability for a month.

3 lesions on my brain. No MS diagnosis or anything else for a long time, until I got a positive WB at my new LLMD.....

Hang in there, it gets better. Don't overdo it for awhile- get your rest.

- JB

Posted by seibertneurolyme (Member # 6416) on :

Glad you are joining us, but sorry you are having such a hard time. Take good care of yourself.

The lesions on your brain are a common Lyme symptom -- you could have Lyme and other tick-borne diseases and NOT MS. Many are misdiagnosed with MS when they really have Lyme.

My husband has "several" brain lesions and he also has tremors which progress into seizure-like spells. It is really scarey for me because he has these episodes 2 or 3 times a day.

When he has these spells, sometimes he can only babble nonsense and other times his jaw locks up and he can't speak at all. I always worry that he could really be having a stroke and I wouldn't know the difference.

Seizure meds don't work for him -- have tried 5 or 6 different ones. When he takes antibiotics and herxes he could have 4 or 5 episodes a day and the tremors are much worse. Hubby also has babesia and bartonella.

Hope you are seeing a LLMD and are getting Lyme treatment. Have you been tested or treated for coinfections?

Bea Seibert

Posted by HeavenlyHoller1 (Member # 4416) on :

Thank you all for replying.
I have had diagnosed Lyme for four years.

I looked up MS on the net and surprize..sonds a lot like Lyme. I think MS is caused by Lyme. In all I read on MS they do not know what causes it.

Thank You all for your support.

Love, HH