This is topic Anyone else?? in forum Medical Questions at LymeNet Flash.


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Posted by cindyr (Member # 7826) on :
 
I am a newbie here...
I am a 40 year old new mom who was diagnosed and treated about 5 years ago (many different oral antibiotics and then ultimately IV treatment)
My question...
In the past two months or so (after the birth of my son) I have been feeling many of the symptoms I had years ago...Now I also feel the sensation of bugs crawling on me (ankles, toes, wrists, fingers), my memory is alarmingly bad, I find it nearly impossible to concentrate on anything and my hearing seems to be worse...
I haven't been involved in any networking before, but I was wondering if you all get any of these symptoms???
My chiropractor has ordered blood work for lyme, lupus, rheumotoid arthritis...
any comments would be much appreciated...
Cindy
 
Posted by Lisianthus (Member # 6631) on :
 
It really depends on how long you were treated for Lyme to begin with. And how long you had Lyme previous to treatment. If you were only treated for 4 weeks, the abx probably didn't eradicate it.

Lyme can go into cyst form and hide from your immune system. It can then come out at a later date.

In my opinion if you had Lyme before and you are having systems again (and your probably having more or worse symptoms now) you probably never killed it the first time around.

If it looks like a duck, walks like a duck, quacks like a duck..... its probably a DUCK.

Get a good lyme literate doctor, get tested again through Igenex Labs, and get treated long term.

Good Luck,
Lisi

[This message has been edited by Lisianthus (edited 01 September 2005).]
 


Posted by Monica (Member # 224) on :
 
Everything Lisi said.
 
Posted by Lymetoo (Member # 743) on :
 
If the test for Lyme comes back negative, please consider retesting through Igenex Labs in CA. www.igenex.com

here is the list of lyme symptoms:
1. Unexplained fevers, sweats, chills, or flushing
2. Unexplained weight change--loss or gain
3. Fatigue, tiredness, poor stamina
4. Unexplained hair loss
5. Swollen glands: list areas____
6. Sore throat
7. Testicular pain/pelvic pain
8. Unexplained menstrual irregularity
9. Unexplained milk production: breast pain
10.Irritable bladder or bladder dysfunction
11.Sexual dysfunction or loss of libido
12.Upset stomach
13.Change in bowel function-constipation, diarrhea
14.Chest pain or rib soreness
15.Shortness of breath, cough
16.Heart palpitations, pulse skips, heart block
17.Any history of a heart murmur or valve prolapse?
18.Joint pain or swelling: list joints_____________
19.Stiffness of the joints, neck, or back
20.Muscle pain or cramps
21.Twitching of the face or other muscles
22.Headache
23.Neck creeks and cracks, neck stiffness, neck pain
24.Tingling, numbness, burning or stabbing sensations, shooting pains
25.Facial paralysis (Bell's Palsy)
26.Eyes/Vision: double, blurry, increased floaters, light sensitivity
27.Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
28.lncreased motion sickness, vertigo, poor balance
29.Lightheadedness, wooziness
30.Tremor
31.Confusion, difficulty in thinking
32.Diffculty with concentration, reading
33.Forgetfuiness, poor short term memory
34.Disorientation: getting lost, going to wrong places
35.Difficulty with speech or writing
36.Mood swings, irritability, depression
37.Disturbed sleep-too much, too little, early awakening
38.Exaggerated symptoms or worse hangover from alcohol

and yes, Lyme can resurface....especially after things like the birth of a baby, surgery, trauma, etc

Hang with us here and we'll help you get the answers you need!

Treepatrol's links http://flash.lymenet.org/ubb/Forum5/HTML/000569.html

Tincup's Links for new members
http://flash.lymenet.org/ubb/Forum1/HTML/009342.html

Dr. Joseph J. Burrascano's Guidelines http://www.ilads.org/burrascano_1102.htm

Western Blot explanation: http://flash.lymenet.org/ubb/Forum1/HTML/022767.html

The cause and spread of Lyme http://flash.lymenet.org/ubb/Forum1/HTML/032259.html

More info: http://www.ILADS.org/

Camp A and Camp B http://flash.lymenet.org/ubb/Forum1/HTML/021395.html

Lyme Wars http://www.wildernetwork.org/Lyme_Wars.html

Lyme Disease State Info http://www.lymeinfo.net/support.html

Rose's 15 Facts for Newcomers http://flash.lymenet.org/ubb/Forum1/HTML/011977.html

Abbreviations for Lyme-speak
http://flash.lymenet.org/ubb/Forum1/HTML/020494.html

Making the most of your LLMD visit
http://flash.lymenet.org/ubb/Forum1/HTML/020605.html

Success Stories http://flash.lymenet.org/ubb/Forum1/HTML/022173.html


http://www.anapsid.org/lyme/matthewgoss/index.html


------------------
Do not take anything I say as medical advice. I am not a doctor, but I DID stay at a Holiday Inn Express!
oops!
Lymetutu
 


Posted by Corgilla (Member # 4066) on :
 
Hi,

One of the things that they've found about Lyme disease is that it can sit dormant or your immune system finds a way to keep it under control for long periods of time.

Many people have had a stressful experience (car accident, surgery, child birth) and have their Lyme come back. This may be what you are experiencing.

Congratulations on your baby,

Corgilla
 


Posted by lymie tony z (Member # 5130) on :
 
All of the above and just one more thing...

You may have passed on the disease to your child....

Have him/her checked out as well....zman

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Posted by niki (Member # 7720) on :
 
Pregnancy naturally lowers your imune system as you probably know, which is what allows your body to accept the baby.

Childbirth then aggravates an already diminshed body with stress and trama.

Also if the lyme has affected your hormones such as thyroid you are no longer sharing the babies and a depletion which could have been excused as tired normal pregnancy is now exasperated by trama and lack of sleep that comes with a new baby.

Make sure you get treated because it is vital to enjoying this time with your baby,

Remember to always take care of yourself because that is the best gift you can give to your child.

If mama is happy everyone is happy!
 


Posted by cindyr (Member # 7826) on :
 
Oh my gosh...
Thank you all who have responded! I will be checking in as much as possible to gather info...
Thanks again!
 
Posted by WildCondor on :
 
Congratulations on your new baby! Thats wonderful! Well, sorry to hear you are feeling "Lymie. " Pregnancy and childbirth tend to trigger it, and if you still have it, it can really make you crash after you give birth. Where are you located? if you can, email me ASAP and I will try to help you get in to see a good Lyme doctor. A good Lyme doctor will fix you right up. It is also very important that you have your child tested for Lyme. I believe most Lyme docs do a 3 sample urine collection test through IgeneX lab.
Normally, when you know you have Lyme, you treat it throughout your pregnancy with safe drugs like Amoxicillin. When the baby is born, the cord blood and the placenta are tested for Lyme. I know, that was months ago. Well, now it would be a good idea to get yourself and yoru baby checked out. Please make sure you go to a true Lyme doctor, and not just a general doc or infectious disease doc, they don't know what they are doing. Email me and I will do my best to help you.

------------------

WildCondor's Lymelinks
 


Posted by Starphoenix (Member # 2402) on :
 
Cindy: I wish I could offer something that hasn't been said already! I will say this: I live in Shohola! If you'd like to email me, it's [email protected]. I would be happy to speak with you by phone, or meet with you, if you'd like. I'd be happy to offer support.

I've had Lyme and co-infections for 20 years now.

Steph

[This message has been edited by Starphoenix (edited 02 September 2005).]

[This message has been edited by Starphoenix (edited 02 September 2005).]
 


Posted by troutscout (Member # 3121) on :
 
Cindy,

Its Lyme.

Sorry.

Love you child...I'll bet it has it, too.

Sorry again...I'm tired and they already said it allllllllllllllllll

Trout

------------------
Now is the time in your life to find the "tiger" within.
Let the claws be bared,
and Lyme BEWARE!!!
Iowa Lyme Disease Assoc.
www.ildf.info

 


Posted by cindyr (Member # 7826) on :
 
Again, thanks to all!
 
Posted by briteeyes30 (Member # 7742) on :
 
Hi Cindy

I am sorry that you are going through all of this. Just like it was said before definitely have the baby checked.

My son has Lyme he is 9 yrs old and we see Dr J in CT. He treats over 8,000 children with lyme and he also has alot of info on lyme being transferred to an unborn child.

I live in Port Jervis. If you would like to talk or get together. Or If you would like the info on Dr J please email me by hitting the email icon above my post.
 


Posted by cindyr (Member # 7826) on :
 
quote:
Originally posted by briteeyes30:
[I live in Port Jervis. If you would like to talk or get together. Or If you would like the info on Dr J please email me by hitting the email icon above my post. [/B]

I have emailed you, Thanks!

 


Posted by Andie333 (Member # 7370) on :
 
Cindy,

Im so sorry you're going through this. As I sit here typing, the tips of my fingers are numb. My feet and legs are also numb. I often feel as if I have something crawling on me, and I get really startled.

I've only been on abx for 3 months, but I've got many of the neurological symptoms you talked about.

Just know you're not alone!\

Andie
 




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