What is the average time you were ill for, before finding out for sure, no questions asked, that you had lyme??
I have been ill for just over a year now, been on meds four times, felt good at some times, like it went away, then came back...I have stopped today for seven days so I can send a test to Igenex, then back to the Amox, 1500mg's a day..I have felt my energy increase at times, then other times, I felt like crap! I guess this must be the herx. If I do too much physical activity, I may become burnt out, but usually after a solid nights sleep, I am feeling better. My legs seem to vibrate more these days, maybe because they are dying and making me suffer a bit...It did stop mostly for a few weeks, then comes back...I see the LLMD on Nov, 9.
Thanks,
Rob
Posted by groovy2 (Member # 6304) on :
--18 years--Jay
Posted by Lymetoo (Member # 743) on :
42 yrs + 5 yrs of treatment = 47
[ 09. October 2005, 08:16 AM: Message edited by: Lymetoo ]
Posted by gwenb (Member # 7217) on :
16 years
Gwen
Posted by wrotek (Member # 5354) on :
3 years
Posted by Pocono Lyme (Member # 5939) on :
Nearly three years
Posted by ArtnSoul (Member # 4561) on :
me - 39 yrs., my daughter - 17 yrs., my son - 16 yrs. (they have congenital lyme)
Posted by janet thomas (Member # 7122) on :
20 yrs
1500 mg of amoxy is less than ILADS recommends I believe-you may want to google burrascano guidelines
Posted by Lymetoo (Member # 743) on :
(It doesn't seem possible that I'm old enough to say such things.... ">25 years" Mentally I think & 'feel like I'm still in my early 20's -- but physically... my body feels like I'm in my late 80's!)
Posted by aiden424 (Member # 7633) on :
19 years- Kathy
Posted by Andie333 (Member # 7370) on :
Nine years for me Posted by ponytail (Member # 36) on :
15+ years for me (In treatment since 1999)
12 years for daughter (congenital - tx w/ Dr. J since 2002)
?? for husband (In treatment since 2002)
[ 10. October 2005, 12:40 AM: Message edited by: ponytail ]
Posted by BorreliaBrain (Member # 7603) on :
15 years of being really inexplicably sick - and at least as many doctors.
bb
Posted by silveradofarmgirl (Member # 8044) on :
I'm the baby here. Was feeling cruddy for about a year then finally got VERY sick a year ago in June. So, a year before diagnosis.
Posted by Starphoenix (Member # 2402) on :
17 years. Now at 20, and just getting proper treatment.
Steph
Posted by clpgotlyme (Member # 7875) on :
13 years Cindy
Posted by I Have Lyme Etc (Member # 7439) on :
4 Years
Posted by SAK (Member # 7387) on :
18 years misdiagnosed.
Posted by bettyg (Member # 6147) on :
Rob,
34 yrs. not dx correctly since age 21!
1 yr. on abx & other stuff.
bettyg, Iowa Posted by Softballmom (Member # 6235) on :
Infected Feb. 1997 not diagnosed as Lyme til Sept of 2004.
So 8 1/2 years toal, under treatment 1 year.
Posted by Kimmi_K_75 (Member # 7438) on :
I guess I'm a baby too!
exactly one year before dx. in may of this yr.
Posted by Lisianthus (Member # 6631) on :
38 years undiagnosed. In treatment now for 10 months.
Posted by Beverly (Member # 1271) on :
39 years undiagnosed. In treatment for 4 years so far.
Posted by HEATHERKISS (Member # 6789) on :
7 years. 10 months of treatment.
[ 14. October 2005, 08:03 PM: Message edited by: HEATHERKISS ]
Posted by Paula 007 (Member # 8002) on :
quote:Originally posted by BostonLyme2005: Hey Guys,
What is the average time you were ill for, before finding out for sure, no questions asked, that you had lyme??
I have been ill for just over a year now, been on meds four times, felt good at some times, like it went away, then came back...I have stopped today for seven days so I can send a test to Igenex, then back to the Amox, 1500mg's a day..I have felt my energy increase at times, then other times, I felt like crap! I guess this must be the herx. If I do too much physical activity, I may become burnt out, but usually after a solid nights sleep, I am feeling better. My legs seem to vibrate more these days, maybe because they are dying and making me suffer a bit...It did stop mostly for a few weeks, then comes back...I see the LLMD on Nov, 9.
Thanks,
Rob
Posted by duke77 (Member # 5051) on :
I would have to say about 20 years before diagnosis and 2 years of treatment.
Posted by marks (Member # 6965) on :
33 years before diagnosis in Feb. 2005.
Posted by wrotek (Member # 5354) on :
It is unbelieveable how this bacteria can stay long wothout dying or killing host. I wonder how it happens, does it contols it`s population in a body ? if body can kill it somehow than why do not kill it to the end, eradicate to zero?
Posted by Linda LD (Member # 6663) on :
37 years
Posted by lymeinhell (Member # 4622) on :
10 years
1 year of treatment. Stopped abx last November - and am perfectly ok now. Posted by SForsgren (Member # 7686) on :
Sick since April 1997. So 8 1/2 years. Diagnosed July 2005. On treatment just over 2 months.
Posted by DolphinLady (Member # 6275) on :
12 years misdx. 2.5 years in treatment. It'll be 15 years total in March.
Posted by map1131 (Member # 2022) on :
I was very fortunate. 10 days after coming down with flu-like symptoms, fatigue and unbelievable pain in all my joints, I went to my PCP and told him I thought I had food poisoning because something very bad was attacking my body.
He listened to all my symptoms and told me, no does't sound like food poisoning, I think it could be lyme disease. Told me not to worry, we caught it early. Started me on the doxy by the old doc book. Added amox, ampicillian, zitro in there the first 2 months.
It was too late. Chronic stages from the onset. That was summer of 99. As bad as it's been, I can't even image going through all that and not having any answers or support for years like most of you. God blessed with a lyme literate doc, he just couldn't fix it. He tried.
Take care, Pam
Posted by tjtighe (Member # 4057) on :
25 years. 21 months of treatment and no better.
tj
Posted by Bugmenot (Member # 7878) on :
Sick about 8 months now. Determined Bb, Babs 2 months after tick discovered from all the symptoms and available test results (joke). At this point I realized that complete idiots and dishonest SOBs are licensed to practice medicine in Oregon. I don't know how many times I mentioned the tick, the rash, etc. to (so called) physicians here and getting blank stares for my efforts. This is Oregon with elk and deer running everywhere and certain areas are just infested with ticks.
Thank god for this site and others like it. The accumulated knowledge here is absolutly priceless, the quackes in Oregon have none.
Posted by WildCondor (Member # 434) on :
10 years of misdiagnosis and undertreatment before the docs finally figured out the true cause...Lyme, babesia, and bartonella. Posted by Christine202 (Member # 6158) on :
13 years, but before this I had problems as a child and tenager that were unexplaiable and now linked to Lyme so I can say more realisticall the number is more 30 years....
Posted by shiloah831 (Member # 3643) on :
I don't really know..Living in Chicago(born and raised) and going back and forth to a family farm in Wisconsin ... i can go back as far with certain symptoms and being bit by ticks since i was 2 because this farm had a gazillion ticks everywhere ..it was on 120 acres.... i wasn't diagnosed til 1989 and i had bells palsy and a stroke in 1986.. and before that i had numerous panic attacks and stomach problems and alot of neuro problems and strept throats.. even in 1989 they gave me the wrong meds for 2&1/2 yrs.. 1995 i was given only 3 wks of IV rocephin.. now in 2005 i am taking doxy.. my brain is so messed up i can't count how long i can even figure i have had this..(maybe i just don't want to know :<))along time let's say.. very long...tooooooooooooooooooooooooo long.... too many drs OKKEEEEEEE let's NOT go there ...lol
Posted by Gabriella7 (Member # 7862) on :
It's really just a quess but over 30 years. Had a lot of misdiagnosis and symptoms treated but dx'd with MS 3 years ago. I told the duck something has got to be causing me to be sick for sooooo looooong so will you run some tests? No! Or try a month of antibiotics such as Doxy to see if it helps me? No!
So Bye Bye to the duck who quacks whatever the BigPharma Cartel tells him to quack! I'm just starting treatment with a LLMD who dx'd Lyme 3 weeks ago.
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Or try a month of antibiotics such as Doxy to see if it helps me? No! ![[bonk]](graemlins/bonk.gif)
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