I started flagyl today I am taking 1500mg plus 800mg of minicycline plus 1000mg of valtrex. I am in my 4th month of treatment. I am believed to have had lyme since the age of 12 and I am now 21. As well I was treated for immune problems with pretnisone for over a year. Needless to say I am in a very advanced stage of lyme disease at this point. I haven't really noticed ne side effects yet from the flagyl besides dizziness and being naucious-although it is my first day.
I know there is a big concern with alcohol-even vanilla extract. Does anyone have in depth info on this? I have read all the phamlets as well as info on this website and I talked to a farmacist. However, there hasn't been to much info I could find-it's all pretty standard. If you have a personal experience with flagyl or know where i can find in depth info on this drug please let me know.
I would also like to find out what the long term effects of being on this drug is/are?
Thanks for all your time! Lindsay
Posted by jloisu (Member # 7538) on :
Hey girl, guess who?
Flagyl long term is known to cause neuropathy. That is why usually they will not leave you on it indefinately. Maybe pulse therapy, like a week on, a week or or something like that. They may keep you on it longer, but from what I understand you will have to take a break from it.
As you know it caused major neuro problems for me. I now use a similar med (same class - little more expensive (not really w/insurance), but less side effects) called tinidazole. Still can't use alcohol at all. I only take it Friday-Sunday.
The first time I took Flagyl the pharmacist told me not even to rinse w/Listerine (has alcohol in it) while on Flagyl. May be overkill, but better to be safe than sorry. I will post a link to Dr. B's guidelines about it too here in a sec. email me when you get a chance and keep you chin up. Others will chime in here soon with some more answers!
Posted by jloisu (Member # 7538) on :
Hope this helps a little. If not email me and I'll try harder Posted by DolphinLady (Member # 6275) on :
I've been in treatment with a top llmd for 2.5 years (since being dx with lyme). For 10 months straight I was on zithromax and flagyl combo. (I was on other abx before and after).
During this time he checked my liver enzymes often and thankfully I never had a problem. I made significant progress on this combo however I did get neuropathy in my feet the last three months.
The neuropathy is no longer an issue for me as it has resolved but it took a few months. I had drops of alcohol in vanilla extract once and homeopathic remedy a second time and had a terrible reaction both times while on the flagyl.
After these two incidents, I made sure I stayed away from alcohol even in the tiniest bit.
Posted by DolphinLady (Member # 6275) on :
I think flagyl can cause depression. Something to keep an eye on.
Best wishes.
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by DolphinLady: I think flagyl can cause depression.
You THINK it can cause depression!!?? That is a big understatement, if you ask me! Definitely "keep an eye on it"!!!!!
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![[Big Grin]](biggrin.gif)
That is a big understatement, if you ask me! Definitely "keep an eye on it"!!!!!