I have been having muschle pain, crampsing, twitching, tingling, and numbness in both of my feet, legs, and sometimes pelvic region for the past three months. Syptoms are getting worse. I've had MRI's of my whole spine and am having one of my brain tomorrow. So far nothing shows except some disc bulges that they say are not touching nerves. All of my blood tests are negative EXCEPT one for Lyme - I was told today that it was borderline and I have to have it drawn again on Saturday. I don't remember ever getting bitten and I cannot remember a rash. Do you think this blood test is just a fluke? I would appreciate any feedback. Thanks
Posted by Cinder Binder (Member # 8225) on :
Snoop:
I don't think your blood test is a "fluke". Your symptoms sure sound like Lyme.
According to the research that I have done, blood tests for Lyme are not normally a "false" positive. In fact, the opposite is true. Unfortunately, a lot of people who do have Lyme test negative, hence a "false" negative. You will see that from numerous people on this site.
Also, only about 50% of people recall a tick bite or the classic bullseye rash.
You need to get a LLMD (Lyme literate doctor)to get you on antibiotics and the road to recovery. Post a request in the "seeking doctor" section.
A LLMD will listen to you and go by your symptoms, as well as your blood test.
Check out treepatrol's newbie links for more information. Read as much as you can to educate yourself (very important).
Good luck,
Cinder Posted by robi (Member # 5547) on :
Yes.... Cider is right. Get to an LLMD ASAP. DOn' waste your time with the medical community in general......... they will not dx Lyme unless your test is glaringly positive.
Lyme is a clinical diagnosis. You need to be with someone who really knows. Go to "SEEKING A DOCTOR" Get some reccomendtions, make an appointment, do not pass go.
robi
Posted by Lymetoo (Member # 743) on :
The pain of Lyme has been shown by researchers to be equal to or worse than post-surgical pain. I can personally attest to that fact!
PLEASE listen to everything Cinder said. Do not let this go unchecked. You need to get a Lyme WEstern Blot from Igenex labs in CA.
Most Lyme tests done thru LabCorp or Quest are VERY unreliable. You are also at the mercy of a non Lyme Literate MD reading the test results you mentioned.
Can you get a copy of the test? We can tell you more about your test if we know more about which kind you had and what they mean by "borderline."
PS...Don't let them pass you off as having MS just yet. I know you didn't mention it, but I know quite a few cases where all the muscle twitching and cramping was said to be MS....when adequate Lyme testing had not been done.
Posted by Areneli (Member # 6740) on :
It is good that some of other disease are excluded. Lyme is certainly a possiblity.
About 70% of us do not recall being bitten by a tick and having a rash. So don't get too fixed on not having a tick.
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