posted
I have been having muschle pain, crampsing, twitching, tingling, and numbness in both of my feet, legs, and sometimes pelvic region for the past three months. Syptoms are getting worse. I've had MRI's of my whole spine and am having one of my brain tomorrow. So far nothing shows except some disc bulges that they say are not touching nerves. All of my blood tests are negative EXCEPT one for Lyme - I was told today that it was borderline and I have to have it drawn again on Saturday. I don't remember ever getting bitten and I cannot remember a rash. Do you think this blood test is just a fluke? I would appreciate any feedback. Thanks
Posts: 3 | From Michigan | Registered: Nov 2005
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I don't think your blood test is a "fluke". Your symptoms sure sound like Lyme.
According to the research that I have done, blood tests for Lyme are not normally a "false" positive. In fact, the opposite is true. Unfortunately, a lot of people who do have Lyme test negative, hence a "false" negative. You will see that from numerous people on this site.
Also, only about 50% of people recall a tick bite or the classic bullseye rash.
You need to get a LLMD (Lyme literate doctor)to get you on antibiotics and the road to recovery. Post a request in the "seeking doctor" section.
A LLMD will listen to you and go by your symptoms, as well as your blood test.
Check out treepatrol's newbie links for more information. Read as much as you can to educate yourself (very important).
Good luck,
Cinder Posts: 60 | From USA | Registered: Nov 2005
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robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
Yes.... Cider is right. Get to an LLMD ASAP. DOn' waste your time with the medical community in general......... they will not dx Lyme unless your test is glaringly positive.
Lyme is a clinical diagnosis. You need to be with someone who really knows. Go to "SEEKING A DOCTOR" Get some reccomendtions, make an appointment, do not pass go.
robi
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
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Most Lyme tests done thru LabCorp or Quest are VERY unreliable. You are also at the mercy of a non Lyme Literate MD reading the test results you mentioned.
Can you get a copy of the test? We can tell you more about your test if we know more about which kind you had and what they mean by "borderline."
PS...Don't let them pass you off as having MS just yet. I know you didn't mention it, but I know quite a few cases where all the muscle twitching and cramping was said to be MS....when adequate Lyme testing had not been done.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Areneli
Frequent Contributor (1K+ posts)
Member # 6740
posted
It is good that some of other disease are excluded. Lyme is certainly a possiblity.
About 70% of us do not recall being bitten by a tick and having a rash. So don't get too fixed on not having a tick.
Posts: 1538 | From Planet Earth | Registered: Jan 2005
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