Has anyone had POTS or dysautonomia caused by lyme? If so, has it gotten better with treatment?
Thanks all!!
tidegal
Posted by Dalphia (Member # 8305) on :
Sorry, I haven't a clue as to what these are? Can you explain?????? Thanks
Posted by tidegal (Member # 8262) on :
POTS (postual orthostatic tachycardia symdrome)and dysautonomia are disorders of the autonomic nervous system which can cause a large number of symptoms similar to lyme. For example, supine tachycardia, chills, low bp, low body temperature, skin sensitivities, migraines, nausea. Lyme can also cause dysautonomia. My LLMD seems to think that lyme caused mine. My tachy and low bp have not gotten better and I am in my 5th month of IV abx so I am wondering if it takes a long time to resolve. Any input from anyone helps.
thx, tidegal
Posted by Christine202 (Member # 6158) on :
I've been dealing with this for about 2 yeasr now.
I have been to some of the top POTS specialists
It has been confirmed that my POTS has been caused by My Lyme infection. I also have been diagnosed with hypermobility which is genetic and can also contribute to POTS and problems with Collegen with a chronic infection such as Lyme.
I have decided for now to try and stay away from any of the meds and go natural....
I increase my volume by wearing compression hose, Taking at least 1/4 tsp of celtic sea salt to every liter of water and adding electrolites to my water... I also make sure to comsume about 3 liters of water a day..... I have recently added hexaginal water to my regime and it has helped me tremendously..... also a low dose of xanax also helps...
There are disfferent drugs you can take for this also. www.potplace.com Has good info and a discussion group if you are interested.
The specialist I saw believes that with contiued Lyme treatment that I could possibly reverse this problem ir at least make it better.....