LymeNet Flash: Has anyone had any luck......

LymeNet on Facebook

LymeNet on Twitter

Follow @LymeDiseaseNet

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

»	LymeNet Flash » Questions and Discussion » Medical Questions » Has anyone had any luck......

UBBFriend: Email this page to someone!

Author

Topic: Has anyone had any luck......

tidegal
Member
Member # 8262

posted

Has anyone had POTS or dysautonomia caused by lyme? If so, has it gotten better with treatment?

Thanks all!!

tidegal

Posts: 44 | From GA | Registered: Nov 2005 | IP: Logged |

Dalphia
Member
Member # 8305

posted

Sorry, I haven't a clue as to what these are? Can you explain?????? Thanks

Posts: 97 | From Tennessee | Registered: Nov 2005 | IP: Logged |

tidegal
Member
Member # 8262

posted

POTS (postual orthostatic tachycardia symdrome)and dysautonomia are disorders of the autonomic nervous system which can cause a large number of symptoms similar to lyme. For example, supine tachycardia, chills, low bp, low body temperature, skin sensitivities, migraines, nausea. Lyme can also cause dysautonomia. My LLMD seems to think that lyme caused mine. My tachy and low bp have not gotten better and I am in my 5th month of IV abx so I am wondering if it takes a long time to resolve. Any input from anyone helps.

thx,
tidegal

Posts: 44 | From GA | Registered: Nov 2005 | IP: Logged |

Christine202
LymeNet Contributor
Member # 6158

posted

I've been dealing with this for about 2 yeasr now.

I have been to some of the top POTS specialists

It has been confirmed that my POTS has been caused by My Lyme infection. I also have been diagnosed with hypermobility which is genetic and can also contribute to POTS and problems with Collegen with a chronic infection such as Lyme.

I have decided for now to try and stay away from any of the meds and go natural....

I increase my volume by wearing compression hose, Taking at least 1/4 tsp of celtic sea salt to every liter of water and adding electrolites to my water... I also make sure to comsume about 3 liters of water a day..... I have recently added hexaginal water to my regime and it has helped me tremendously..... also a low dose of xanax also helps...

There are disfferent drugs you can take for this also. www.potplace.com Has good info and a discussion group if you are interested.

The specialist I saw believes that with contiued Lyme treatment that I could possibly reverse this problem ir at least make it better.....

Posts: 437 | Registered: Sep 2004 | IP: Logged |

Printer-friendly view of this topic

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA
http://www.lymenet.org/