The CDC endorses ISDA treatment guidelines and states on their website that "Most cases of Lyme disease can be treated successfully with a few weeks of antibiotics. "
The guidelines put forth by the CDC as the guide that your doctor and mine should follow and adhere to has resulted in no treatment and undertreatment of a desease that has been problematic, painful, debilitating, expensive and deadly in several cases.
So I have to wonder why there are no class action law suit against the CDC? How can they recommend 2000 guidelines for physicians to treat lyme? Haven't they learned anything new since 2000?
I travel too far, spend too much money to see a doctor that ignores what the CDC has to say. Why? Because the CDC isn't being held responsible to do their JOB.
If they are going to stand by the inaccurate information that they put out and it causes harm (which it has) then they are responsible - which they are.
Why isn't anyone holding them responsible?
I unstand they are a giant but even giants are required to "DO NO HARM" in the medical profession -
elle
Posted by elle (Member # 7721) on :
quote:Originally posted by elle: The CDC endorses ISDA treatment guidelines and states on their website that "Most cases of Lyme disease can be treated successfully with a few weeks of antibiotics. "
The guidelines put forth by the CDC as the guide that your doctor and mine should follow and adhere to has resulted in no treatment and undertreatment of a desease that has been problematic, painful, debilitating, expensive and deadly in several cases.
So I have to wonder why there are no class action law suit against the CDC? How can they recommend 2000 guidelines for physicians to treat lyme? Haven't they learned anything new since 2000?
I travel too far, spend too much money to see a doctor that ignores what the CDC has to say. Why? Because the CDC isn't being held responsible to do their JOB.
If they are going to stand by the inaccurate information that they put out and it causes harm (which it has) then they are responsible - which they are.
Why isn't anyone holding them responsible?
I unstand they are a giant but even giants are required to "DO NO HARM" in the medical profession -
elle
Hmmmmm . . . . ISDA guidelines have been withdrawn
I'm not sure, but I don't think that you can sue the USG.
Any lawyers out there?
Posted by lou (Member # 81) on :
They have been withdrawn, probably because a new version is coming out soon from IDSA. Worse than ever too.
Posted by elle (Member # 7721) on :
Hey Lou - What do you think the CDC is referring to in the meantime and have they notified the physicians that are relying on the OLD guidelines that they have been withdrawn? Somehow I can't imagine my BC ID primary memorizing a new paragraph anytime soon.
elle
Posted by melerle (Member # 8658) on :
Hi Elle, I am a newbie from MN. Diagnosed in Aug but feel that I have had LD for many years.
I just visited the LDF website and read "Topic #1" on the site which gives the same info you are questioning.
Mind you the Dr.s I have been dealing with are well aware of LD, but I feel that I am being undertreated rather than overtreated.
Do you think that because of the CDC and the ISDA stand on Chronic Lyme Disease (it does not exist) that Dr.s and the general medical community tend to ingnore our maladys because they need to stay within the medical guidelines, thus we are undertreated and made to believe we are imaging our physical problems?
Just wondering what others think.
Posted by elle (Member # 7721) on :
Well I can't answer that in total but I'd be willing to provide a personal story that you may draw from. . . .
I have a friend who has had LD for 8 years, cdc positive, labcorp (almost impossible). She has seen several docs, neuros and even had surgery on her tendons by the top east coast hospital. She remains ill with LD.
She waited for an appointment with a well known BC ID doc in our area that sets the tone for ID in our community. He examined her records saw her new labs confirming her old CDC positive lyme diagnosis, took her hand and explained to her how she really needed a good psychotherapist because she had become obsessed with this "lyme" idea. He further explained she had received 6 weeks of doxy, 100mg 2x @ day 8 years ago and she was cured. The current tests were just showing residual antibodies in the blood.
So where do you think he got this bit of mis-information from?
Posted by DamnTics (Member # 8667) on :
quote:Originally posted by tickedntx: I'm not sure, but I don't think that you can sue the USG.
Any lawyers out there?
I think you have to call your state's attorney general's office and have them investigate, they usually bring the suits against the feds... then you will see congressional hearings and such. But I think if "Joe Schmoe" brings a suit against the CDC (without the support of a AG) it will most likely get squashed.
**I am not an attorney nor claim to be, any information is not legal advice and should not be taken as such ** Posted by tequeslady (Member # 6832) on :
It sure would be interesting though if we could file some kind of class action suit, if that's possible.
Posted by 5dana8 (Member # 7935) on :
Lets say that all the people that ended up with chronic lyme who got the lyme shuffle,swept under the rug,under treated ect...and basically left on the vine to die.
Where to file a case against the CDC or any of the medical establishments,ID's,GP's,Neuro ducks and all the other ducks,with their tired old saying "lyme is hard to get and easy to cure" stance.And two weeks doxy is will cure everyone.
Some day the real truth will come out and I think this is what scares them is the thought of being sued by hundred's of thousands of people that became chronic because of their ignorance,pride,and selfish self interests.
I think this is what really scares them,being sued and left penniless and in disgrace.
Their time will come for them to be held accountable. Some day...the sooner the better before thousand more suffer.
Sorry for the long rant,Just had to get it out of my system Posted by MizMo (Member # 8389) on :
That same website lists 2004 guidelines from the International Lyme and Associated Diseases Society
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