Has anyone had this problem? It's not the constant dizziness I always feel, but weird waves. Like my brain is doing somersaults. When I am just sitting...not when standing up. Kind of disturbing.
Susan
Posted by hiker53 (Member # 6046) on :
Lymesly,
Do you get sudden jerks of the body or legs during the dizziness. I had similar weird feelings in the head and then got some jerks (called myoclonus).
Posted by lymesly (Member # 8528) on :
No, no jerks....that sounds uncomfortable! And it has a name....myoclonus. Is it from the Lyme?
Posted by cantgiveupyet (Member # 8165) on :
I had wierd waves like you describe before i knew i had lyme. I would be watching TV or driving and they would just happen. It was a scary feeling that landed me in the ER a few times.
Posted by lpkayak (Member # 5230) on :
i was hospitalized for 5 days in october with this-i described it just like you-intermitten -i think i said "whoooshes " of dizzines. my primary(non-llmd) and neurologist want me to take zoloft for this. i'm holding off. as time goes by it seems to get a little better-and i have a lot of other stuff going on: moving, abdom surgery, etc. if i start zoloft i want to be real clear what it does to me-so i am waiting til i'm back on all my regular meds and off the surgery pain pills. but i'm already getting a lot bertter(2 months)...and i really don't think i want to go on zoloft.
my dizziness seemed to start when i took ibuprofern, tylanol and skelactin all in the same day. plus a beer(stupid me-i hardly ever drink anthing)-but i had been walking on a fractured pelvis for over a week-it wasn't dx-and the pain just got to me. i woke up the next day and couldn't even crawl to the bathroom on my hands and knees --i had to go on my belly-and after 12 hrs of that went to er and was admitted for 5 days-the dizziness got a little better to the way you describe it. i don't remember this being a symptom before---but i guess it sure is now
Posted by lymesly (Member # 8528) on :
Well, it's good to know I'm not alone. I figured this must just be a new symptom, bit it is a little troublesome....or worrisome.
Posted by dontlikeliver (Member # 4749) on :
Yep. I've had those on and off for about 18 years...am going through another bout of them and this time they have been scarier than ever..momentarily I think I am going to pass out, but I don't, and sometime I get a palpitation with it also which makes it worse.
Another one of those weird symptoms.
DLL
Posted by lymelady (Member # 6207) on :
I have had vertigo as my major lyme symptom for three years. I think it is a combo of both lyme and babesia. The lyme attacks the cranial nerve that controls your inner ear which is your balance mechanism.
It is a murderous manifestation of lyme and has taken me to the brink of insanity. I bounce off walls, furniture and sometimes just fall down. Not to mention how exhausting it is to be constantly moving like a kid on a merrygoround, up and down, up and down every minute of the day.
Lyme sucks! Lymelady
Posted by lymesly (Member # 8528) on :
Lyme does suck!!! Those spirochetes are evil!!!!! It's just plain exhausting!
I have Lyme and Babs, too. So that makes sense to me.
Posted by millymollymandy (Member # 7703) on :
Yep, I get those too... It almost feels as if I'm going into another dimension, and I haven't even taken any recreational drugs to go there!!! Luckily it only happens for a few seconds at a time.
Posted by HECE99 (Member # 6749) on :
Yes, I would get this horrible scary feeling of almost wanting to pass out but never really hit the floor.
It was a strong wave that would last for about 5 seconds but enough to make you crazy. I kept thinking I was having a stroke at age 29 or perhaps low sugar levels.
I would get a numb face, my hearing was bizzare (faint buzzing), It was a head rush from hell!!!!!
Before I was diagnosed with Lyme I thought I was loosing my mind. Every 30 minutes I would jump up from bed. I thought I was going to die. I would look around the room after this would hit me and I felt like I drank a 12 martinis and took drugs.
Your not alone.......Keep taking your meds. The antibiotics did eventually help a little with some of those horrific symptoms.
Good luck and best of health!!!!
Posted by tothepoorhouse (Member # 8595) on :
I have these too! And realized yesterday while I thought it was my brain whooshing, it really exacerbates it when I move my eyes to one side or up/down. Then the whoosh seems to go from my ears to my head Posted by char (Member # 8315) on :
I had some minor dizziness last week. I thought I had ear infection and called LLMD. Advice was that I was probably herxing. Take break from abx.
I am better now being off so I think it is herx.
I can relate to the other dimension feeling.
Today, I decided not to drive...
Char
Posted by lymesly (Member # 8528) on :
Yeah, I haven't been driving much for years...too tired and dizzy. Thanks for all the replies!!
Posted by brighty (Member # 6808) on :
A few times I have had a feeling inside my brain like my brain flipped over.
Have had other times where I end up shaking my head voluntarily several times to get rid of the uncomfortable feeling from the brain. I felt like I was going to lose it with the jerking movements inside the brain.
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by lymesly: Has anyone had this problem? It's not the constant dizziness I always feel, but weird waves. Like my brain is doing somersaults. When I am just sitting...not when standing up. Kind of disturbing.
Susan
Yep,.... in my experience, this is from babs. Hated it intensely. All gone now!
Posted by Starphoenix (Member # 2402) on :
Wow. I was just trying to explain this to my husband recently! I get this, too, and you explained it so well.
I have it really bad right now as I type this. Upping my Neurontin is making it worse.
I feel quite drunk!
Steph
Posted by lymelady (Member # 6207) on :
Info from Tincup:
1: Acta Otolaryngol. 1988 Jul-Aug;106(1-2):111-6. Related Articles, Links
Borrelia infection and vertigo.
Rosenhall U, Hanner P, Kaijser B.
Department of Audiology, Sahlgrenska Sjukhuset, Goteborg, Sweden.
73 patients with vertigo were studied regarding serum antibodies to Borrelia spirochete antigen, using an indirect immunofluorescence method. Ten patients (14%) had serological evidence of Borrelia infection. All 10 patients had severe, incapacitating vertigo. Four of the Borrelia patients had positional vertigo and all 10 had positional nystagmus when tested using ENG. Five of them had unilateral caloric weakness. Five patients had abnormal oculomotor tests. Borrelia infection is an etiological factor which should be considered in patients suffering from vertigo especially if positional nystagmus is present.
PMID: 3421091 [PubMed - indexed for MEDLINE]
Posted by Elinor (Member # 8174) on :
I call them vertigo flashes........ these sudden 'whooshes' of dizziness started a few years ago for me and at first were very severe but gradually diminished in intensity.
They recently re-appeared, sometimes quite violent and scary, when I started antibiotics for chlamydia pneumoniae, maybe the brain inflammation is being aggravated by die-off.
Last night I was twice startled awake by a loud BANG!! in my head, no pain or dizziness but a loud echoing explosion, a new brain inflammation symptom??
Posted by lymesly (Member # 8528) on :
Elinor, that sounds horrible! A loud bang. Ouch!!
Lymetoo, I'm so happy they are gone now!! That is good news for you and maybe all of us. : )
Susan
Posted by chroniccosmic (Member # 7789) on :
I have had the loud bang symptom too! Sometimes it is like someone has dropped a book on the floor right by my bed and once it sounded like someone shouting BOO right in my ear.
I think someone should make a horror movie out of what we deal with in our brains!
And yes, I have had the whooshes, rushes, and major vertigo issues for a while.
Thanks Lymetoo for letting us know that it goes away with treatment. That is the piece of info we all live for.
![[Frown]](frown.gif)
![[loco]](graemlins/loco.gif)
![[Big Grin]](biggrin.gif)